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Topic: How many total CH days so far? (Read 2005 times) |
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KarynG
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How many total CH days so far?
« on: Feb 10th, 2004, 10:55am » |
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Okay, maybe I have TOO much time on my hands and maybe someone has done this before, but I was wondering approximately how much time we have each spent with the beast. Obviously, this is not a scientific study and it won't be exact or specify shadow days vs. really bad days. It is just interesting to me and like I said, it is a slow day around here!
For me:
2003 September - December 12 weeks=84 days
2002 July - November 16 weeks=112 days
2001 August - September 6 weeks=42 days
2000 June - July 6 weeks=42 days
1999 March - April 6 weeks=42 days
1998 Pregnant 0 0
1997 July - August 6 weeks=42 days
The beast owes me around 392 days or so, but I'd call it even at a year!
Karyn - Sorry, I couldn't make it line up once I posted it!
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| « Last Edit: Feb 10th, 2004, 11:02am by KarynG » |
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thomas
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Re: How many total CH days so far?
« Reply #1 on: Feb 10th, 2004, 11:02am » |
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AAAAALLLLLLLLL RIIIIIIIIIGGGGGGHHHHHHHTTTTT!!!!!!!!! A KarynG post.... I don't keep track of my cycles.... so I can't help, sorry  But roughly about 2.5 years..........
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| « Last Edit: Feb 10th, 2004, 2:42pm by thomas » |
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dodie
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Re: How many total CH days so far?
« Reply #2 on: Feb 10th, 2004, 12:25pm » |
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I would like to be able to help but .......
when the cycle started I would go to the Dr. and get prednisone to break the cycle.
This time I had been on pred. 2 times for 1 week each, and it didnt work.
so far Im at 3 weeks down and out, I will try to keep track for you and report.
dodie ( new bee )
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dodiehowe
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brain_cramps
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Re: How many total CH days so far?
« Reply #3 on: Feb 10th, 2004, 12:30pm » |
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i'm not betting but i think that jonny will "win" this one.
grant
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J.ten_Dam
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Re: How many total CH days so far?
« Reply #4 on: Feb 10th, 2004, 12:37pm » |
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this question is obviusly meant for episodics  so I wont let you know how many 
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BobG
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Re: How many total CH days so far?
« Reply #5 on: Feb 10th, 2004, 1:00pm » |
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on Feb 10th, 2004, 12:37pm, J.ten_Dam wrote:this question is obviusly meant for episodics so I wont let you know how many
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Yeah, what she said.
It wouldn't be fair to compare chronics with episodics. The chronics would have more days total and win. Or would that be the chronics would lose.
I hate those chronics.
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Virginia
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Re: How many total CH days so far?
« Reply #6 on: Feb 10th, 2004, 1:02pm » |
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Yeah, you DO have too much time on your hands....
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The Clusterhead formerly known as 9erfan.
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UN_SOLVED
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Re: How many total CH days so far?
« Reply #7 on: Feb 10th, 2004, 2:23pm » |
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I agree ... too much time ... lol
My current cycle started in October ... OF 2000 !! Who's gonna add that up ? This makes my...uhmm ... 15th or 16th cycle.
Start addin' !!!
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I'm STILL alive ?
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KarynG
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Re: How many total CH days so far?
« Reply #8 on: Feb 10th, 2004, 2:31pm » |
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Thanks Thomas! I feel so welcomed! (Genuine, not sarcasm)
Okay, so the general consensus is...
I need a hobby?
Not a contest, not a study, just wondering on a slow afternoon...
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| « Last Edit: Feb 10th, 2004, 5:50pm by KarynG » |
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bobkip
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Re: How many total CH days so far?
« Reply #9 on: Feb 10th, 2004, 2:41pm » |
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Well lesee, about 23 days this cycle at an average of
2 1/2 a day times 5 minutes (yeah, the O2 is working that well) comes to about 300 minutes using fuzzy math divide by 60 = abot 5 hours so far. BUT when I was chronic it was every day, at least 1 and up to 8 times a day for 1 1/2 years so a conservative estimate would be 1800 hours. Chronic sucks.
Kip
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Linda_Howell
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Re: How many total CH days so far?
« Reply #10 on: Feb 10th, 2004, 4:31pm » |
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hmmmm. Lemmee see.
17 years X 365 days X 5 per day=31025 ha's
I think I just made myself sick.........
Linda 
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Charlie
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Re: How many total CH days so far?
« Reply #11 on: Feb 10th, 2004, 4:41pm » |
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Hard to say but it would likely average out to close to twice a year for 4 or 5 weeks for 22 years (sometimes a third times for a week or so) Odd, I know.
Charlie
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echo
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Re: How many total CH days so far?
« Reply #12 on: Feb 10th, 2004, 5:19pm » |
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I used to keep a journal -- but it depressed the hell out of me so I quit.
Now that I went chronic I really don't want to keep track.
Some day in the future I'll be in total remission. I'll be taking a dirt nap -- but I'll be in remission.
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BlueMeanie
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Re: How many total CH days so far?
« Reply #13 on: Feb 10th, 2004, 6:24pm » |
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Way too many to count.
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t_h_b
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Re: How many total CH days so far?
« Reply #14 on: Feb 10th, 2004, 6:32pm » |
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Approximately 1,400 days, 2,400 attacks.
Crap, I never really thought about that.
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| « Last Edit: Feb 10th, 2004, 6:33pm by t_h_b » |
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Paigelle
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Re: How many total CH days so far?
« Reply #15 on: Feb 10th, 2004, 7:10pm » |
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OMG! Karyn you do have too much time on your hands! Of course so do I, we do need hobbies!
I will have to do some calculating and I will let you know.
Paige
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vig
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Re: How many total CH days so far?
« Reply #16 on: Feb 10th, 2004, 9:36pm » |
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probably easier just to say 'thousands'.....
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ClusterChuck
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Re: How many total CH days so far?
« Reply #17 on: Feb 10th, 2004, 10:10pm » |
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Let me see ... Had CH for 26 years now, episodic, about 3 months every year, 3 to 6 hits a day, 'cept did have 5 years PF, chronic for the last 6 years, usually 1 or 2 hits a day, except about 2 months every year of 4 to 8 hits, except since July 2003, 5 to 12 hits a day, every day ... Ok let me think ... ummmm ...mumble, mumble, mumble, carry the 2, ahhh ... figgure, figgure, figgure, and carry the .. Um what was it I was suppose to carry? Kerap! Now I lost count ... Ummmm
Ummmm ....
Let me see ...
Where was I?
Ah, Karyn?
scroll down .....
Down ...
STFU !!!
Chuck
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KarynG
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Re: How many total CH days so far?
« Reply #18 on: Feb 11th, 2004, 7:29pm » |
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Thanks everyone! It is really interesting to me how very different cycles can be and how strong we all are in dealing with this. Especially all the chronics.
Paige - I'm thinking scrapbooking or crank calling...
Linda H - Wow, I don't even know what to say except you must be an amazingly strong person and I hope something changes for you soon
Chuck - Joe and I haven't laughed out loud like that since... since... the last time we saw YOU! Of course we weren't laughing with you, but AT you...
I have to tell you that the picture you have of the "beast" rising up is disgusting... eeewww... accurate... but disgusting
On top of needing a hobby, my post was moved. I hang my head in shame. I'll get the hang of it eventually, but meanwhile you all have to suffer. Ha.
Karyn
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t_h_b
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Re: How many total CH days so far?
« Reply #19 on: Feb 11th, 2004, 8:19pm » |
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Karyn, I think your post was moved because DJ thought it was worthy of jump-starting the new topic He created, not because it was in the wrong place!
Your post made me at least TRY to quantify what I've been through over the last few years. The fact that I'm still alive and functioning after all the CH attacks certainly does help my self-confidence about dealing with this in the future. Thanks.
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| « Last Edit: Feb 11th, 2004, 8:20pm by t_h_b » |
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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thomas
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Re: How many total CH days so far?
« Reply #20 on: Feb 12th, 2004, 8:48am » |
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on Feb 11th, 2004, 8:19pm, t_h_b wrote:| Karyn, I think your post was moved because DJ thought it was worthy of jump-starting the new topic He created, not because it was in the wrong place! |
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Bingo, and ditto....
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HeartMom
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Re: How many total CH days so far?
« Reply #21 on: Feb 12th, 2004, 11:46am » |
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New here!
I have been suffering for so long. After reading this site, I wonder if they are clusters. My eyes hurt, my sinuses get plugged up, ice helps, and pain killers don't. I have 3 little kids, and my husband is not all that understanding. I feel like I have abondened my family. Last night I went to bed at 6 without dinner. I got back up again at 8 and the kids were getting ready for bed. What can I do?? I am now at work and ready to burst into tears! I have read that clusters come and go throughout the day, I get one and it lasts all day. Then goes away when I sleep and comes back slowly through the day...by dinner time, I want to cry. What do you all think?
Thanks
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thomas
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Re: How many total CH days so far?
« Reply #22 on: Feb 12th, 2004, 11:54am » |
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on Feb 12th, 2004, 11:46am, HeartMom wrote:New here!
I have been suffering for so long. After reading this site, I wonder if they are clusters. My eyes hurt, my sinuses get plugged up, ice helps, and pain killers don't. I have 3 little kids, and my husband is not all that understanding. I feel like I have abondened my family. Last night I went to bed at 6 without dinner. I got back up again at 8 and the kids were getting ready for bed. What can I do?? I am now at work and ready to burst into tears! I have read that clusters come and go throughout the day, I get one and it lasts all day. Then goes away when I sleep and comes back slowly through the day...by dinner time, I want to cry. What do you all think?
Thanks
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I'm no doctor, but it almost sounds like migraines to me...clusters wake you up from a dead sleep, it is to sleep one off.
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eyhavhedaches
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Re: How many total CH days so far?
« Reply #23 on: Feb 12th, 2004, 1:01pm » |
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cycle begins in late november lasting till bigining or end of febuary. Sometimes cycle pattern changes, cycles will start in june and last till end of september usually three whole months of suffering. 3 to 4 attacks a day usually 5 to 6 days a week. Sometimes all seven days.
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Prense
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Re: How many total CH days so far?
« Reply #24 on: Feb 12th, 2004, 5:48pm » |
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on Feb 12th, 2004, 11:54am, thomas wrote:
clusters wake you up from a dead sleep, it is to sleep one off. |
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No idea what kind of HA it may be, but I am not thinking CH...
Chris
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