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   Author  Topic: occipital nerve stimulator - help please  (Read 250 times)
Connie2
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occipital nerve stimulator - help please
« on: Apr 7th, 2004, 11:09pm »
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i am Chronic and my neuro has suggested the installation of the occipital nerve stimulator.  has anyone on this board had any experience with this?  any information would be very helpful.  I'm apprehensive and also at the end of my rope.  thank you.  connie
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sgarner
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Re: occipital nerve stimulator - help please
« Reply #1 on: Apr 8th, 2004, 12:55am »
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No but my doctor is talking about a gamma knife radiation surgery.
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Connie2
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Re: occipital nerve stimulator - help please
« Reply #2 on: Apr 8th, 2004, 5:35am »
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I'd talk to him about this option befor that one for sure....  Connie
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Tiannia
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Re: occipital nerve stimulator - help please
« Reply #3 on: Apr 8th, 2004, 1:13pm »
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Talk to unsolved.  He had a temp one put in. Think it is out now.  But send him a PM or Email. or do a search.
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notseinfeld
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Re: occipital nerve stimulator - help please
« Reply #4 on: Apr 8th, 2004, 11:58pm »
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I had the block a while back and it worked like some sand castles I built trying to hold back the tide. There was 0 appreciable difference in frequency of attack, duration, or severity.  
 
In studies I've seen since then (they're around here somewhere) the results are pretty poor but it is used just in case it can help out on a long shot. Desperate times, desperate measures.  
 
Also, a friend of mine and sometime frequenter to this site has the Gamma Knife to no avail as well. 40 thousand bucks and the beast gave it the middle finger. I think he's on his 6th month after having the radiation and still no difference.  
 
Hate to be the bearer of bad news but it is the truth from my direct experience.  
 
FWIW--the procedure for the block is not really too invasive and hurts about as much as a bee sting. Probably worth a try.  
 
BOL,  
 
nots
« Last Edit: Apr 8th, 2004, 11:59pm by notseinfeld » IP Logged

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Connie2
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Re: occipital nerve stimulator - help please
« Reply #5 on: Apr 9th, 2004, 6:02am »
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Thank you nots
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