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   Author  Topic: The Best Advice  (Read 274 times)
tpitts77
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The Best Advice
« on: Oct 8th, 2004, 3:55pm »
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I have had CHs for over 8 years now.  I have been properly treated for CHs for 2 years now.  The best advice I can give anyone with these things is:  Find a doctor that's is willing to do everything and try everything he can to help you.  I've seen probably at least 15 different doctors, 6 of them being neurologists.  I finally found one that was willing to say, "I don't know, but I promise I will try my best to help you."  He called other doctors, headache clinics, (ones my insurance wouldn't cover), and after talking to a neurologist in Hershey, PA, who specializes in the treatment of CHs,  we found a combination of preventative drugs (High doses of Verapamil ,high doses of Indocin and Imitrex when I have one) that works for me.  Don't settle for a neurologist, who only knows about seizures and Alzheimers, like I did for 6 years.  You deserve better help.
 
If I hit this Powerball on Saturday,  I'll advocate for money for CH research. laugh  
 
Imitrez Rules!!! Grin
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Re: The Best Advice
« Reply #1 on: Oct 8th, 2004, 8:34pm »
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on Oct 8th, 2004, 3:55pm, tpitts77 wrote:
Imitrez Rules!!! Grin

 
Imitrex ain't bad either!   Grin
 
Just bustin your chops.  Welcome to the website.  Glad you have found a doc that will work with you.  They seem to be few and far between.  
 
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nani
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Re: The Best Advice
« Reply #2 on: Oct 8th, 2004, 8:37pm »
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Quote:
If I hit this Powerball on Saturday,  I'll advocate for money for CH research
 Oh sorry honey, I've already got the winning ticket. I plan on spreading it around though... Grin
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Re: The Best Advice
« Reply #3 on: Oct 9th, 2004, 6:09am »
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I'd sure like to hit the Power Ball jackpot. But, I can't.
 
I live in a state that does not allow it...........Nevada.
 
Go figure.  Sad
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Re: The Best Advice
« Reply #4 on: Oct 9th, 2004, 8:29am »
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on Oct 9th, 2004, 6:09am, BobG wrote:
I'd sure like to hit the Power Ball jackpot. But, I can't.
 
I live in a state that does not allow it...........Nevada.
 
Go figure.  Sad

 
That is really funny!  Yes yo all kinds of casinos and brothels, but a big no to powerball!  Irony is fantastic.
 
Casey
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