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dagger
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question
« on: Dec 22nd, 2004, 8:28am »
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Hi all,  
 
Has anyone's doctor told them that the ch's will stop when you get into your 40's or 50's?  My brother's neurologist at the Mayo clinic told him that and it was true for him.  In another area of the board I posed the question when responding to somebody's post and nobody there had heard of that.
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karma
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Re: question
« Reply #1 on: Dec 22nd, 2004, 8:33am »
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Sorry to say that thats not true. It may stop for some folks or go into a long long remission. But age has nothing to do with it although some people have reported longer remissions and shoreter cycles as they get older. Others have not been so lucky.
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don
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Re: question
« Reply #2 on: Dec 22nd, 2004, 8:57am »
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I wish someone would tell my Doc that so he could in turn instruct me to no longer have CH.
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Kris_in_SJ
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Re: question
« Reply #3 on: Dec 22nd, 2004, 9:15am »
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If that were only true, I would never have had CH's.  Mine started at the tender young age of 41!
 
Kris
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Re: question
« Reply #4 on: Dec 22nd, 2004, 9:44am »
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From what I have read, I would say that some people get relief in their old age.  Only a lucky few have them go away completely.  I'm planning on being a lucky one!
 
Jesse
 
Edit: I did not mean to imply 40's and 50's are old age.
« Last Edit: Dec 22nd, 2004, 10:00am by JJA » IP Logged

Is it illegal because it's dangerous or is it dangerous because it's illegal? Our drug laws are ruining lives.
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Re: question
« Reply #5 on: Dec 22nd, 2004, 12:34pm »
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on Dec 22nd, 2004, 8:28am, dagger wrote:
Hi all,  
 
Has anyone's doctor told them that the ch's will stop when you get into your 40's or 50's?  My brother's neurologist at the Mayo clinic told him that and it was true for him.  In another area of the board I posed the question when responding to somebody's post and nobody there had heard of that.

I've been told that they just go away sometimes, but they haven't for me yet.
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Re: question
« Reply #6 on: Dec 22nd, 2004, 1:03pm »
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Mine didn't start til' I was 55 - - - must have gotten someone elses  - - - where do I go to complain?
 
  OH . . .  sorry, HERE of course!
 
   Be safe and PF
 
    Richard
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Re: question
« Reply #7 on: Dec 22nd, 2004, 1:13pm »
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on Dec 22nd, 2004, 9:15am, Kris_in_SJ wrote:
If that were only true, I would never have had CH's.  Mine started at the tender young age of 41!
 
Kris

 
Ditto
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allan_r
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Re: question
« Reply #8 on: Dec 22nd, 2004, 9:07pm »
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My doctor has told me that it is rare for CH to continue into the 60's and that he has not had patients in that age range.  
 
I am counting down the years and holding out hope.
Please do not post any contrary statistics, knowledge, or anecdotal evidence to offset this one ray of hope I still hold near and dear to my heart.   
 
allan r.
« Last Edit: Dec 22nd, 2004, 9:09pm by allan_r » IP Logged
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Re: question
« Reply #9 on: Dec 22nd, 2004, 9:19pm »
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on Dec 22nd, 2004, 9:07pm, allan_r wrote:
My doctor has told me that it is rare for CH to continue into the 60's and that he has not had patients in that age range.  
 
I am counting down the years and holding out hope.
Please do not post any contrary statistics, knowledge, or anecdotal evidence to offset this one ray of hope I still hold near and dear to my heart.   
 
allan r.

 
Take me to your doctor - I need to educate him! Grin
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Re: question
« Reply #10 on: Dec 22nd, 2004, 10:07pm »
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Had my first CH at 57, 3 months ago.
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Had heard about CH and wondered if anything could posiiblly be all that bad. Seriously thinking of having idiot tatoo done on my forehead now
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Re: question
« Reply #11 on: Dec 23rd, 2004, 4:41am »
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Dagger
 
Sadly this is total bollocks. The opposite is more likely to be true
 
Quote from Goadsby:
 
"It can occur at any age, although the most common age of onset is the third or fourth decade of life"
 
W the B
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Filbert
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Re: question
« Reply #12 on: Dec 23rd, 2004, 7:05am »
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From the OUCH uk info leaflet
 
     " An encouraging piece of information for sufferers is that a substantial proportion of them can expect longer pain-free periods as they age. "
 
   Written by Dr Manjit Matharu who used to be a research registrar to Prof. Goadsby.
 
                     Hope is a great thing!
  
                                  Filbert.
« Last Edit: Dec 23rd, 2004, 7:10am by Filbert » IP Logged
don
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Re: question
« Reply #13 on: Dec 23rd, 2004, 10:11am »
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Quote:
Written by Dr Manjit Matharu

 
And a well educated compassionate guy. I know this from an hour or so in conversation with him.
 
This guy is on our side.
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nani
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Re: question
« Reply #14 on: Dec 23rd, 2004, 10:15am »
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Quote:
" An encouraging piece of information for sufferers is that a substantial proportion of them can expect longer pain-free periods as they age. "  

 
God bless those that bring this aging boomer some hope. After 31 years of CH...maybe I only have another 10-15 to go... Undecided
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Re: question
« Reply #15 on: Dec 23rd, 2004, 1:47pm »
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on Dec 23rd, 2004, 10:11am, don wrote:

 
And a well educated compassionate guy. I know this from an hour or so in conversation with him.
 
This guy is on our side.

 
Don's absolutely right! Dr Matharu gives a presentation on CH at virtually every OUCHuk regional meeting. Not only will he not accept a fee but also refuses any payment for his travel or accomodation expenses! He certainly cares!
 
   Merry Christmas  
      Filbert.
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marlin
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Re: question
« Reply #16 on: Dec 23rd, 2004, 2:27pm »
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In my case I can honestly say the CHs condition has improved with age.  Cycles are getting further apart and a little less intense.  The decrease in intensity could very well be due to the meds.  I rarely let myself go past a K4 without blasting myself with trex.  The exception would be if I've already taken 3 shots within 24hrs.
 
I used to fight the beast without meds and to this day I don't know how I made it.
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Re: question
« Reply #17 on: Dec 23rd, 2004, 8:09pm »
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Hi,
Got em 8 years ago at 40. Gone chronic for the last 2 yrs. freq. and intensity up. 3 weeks ago I broke my own record of 8 Imitrex shots in 24 hrs.  I'm hoping this is their "life" peak and it's all downhill from here. Have to agree, hard to believe how I survived the early years.  Just goes to prove, things get better with time. PFD! Bobbio.
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