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cakelady
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Anyone else have trouble speaking?
« on: Dec 28th, 2003, 5:38pm »
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i have realized that I can't talk very well when I'm having a CH. The thought forms, but the words don't come. Like last night my head said " Help, my icepack broke, I need a new one" it came out "BROKE BAG"
I speak in single words or incomplete phrases. I'll ask the neuro, but just wondered if anyone else had this happen.
Christine
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Re: Anyone else have trouble speaking?
« Reply #1 on: Dec 28th, 2003, 5:49pm »
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I've never had trouble speaking during an attack.  
 
But, I never want to either, other than using some very choice words that no one else should be exposed to.
 
And I don't want anyone talking at or near me. Other than hearing my own voice I want silence.
« Last Edit: Dec 28th, 2003, 5:49pm by BobG » IP Logged

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Re: Anyone else have trouble speaking?
« Reply #2 on: Dec 28th, 2003, 5:56pm »
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on Dec 28th, 2003, 5:49pm, BobG wrote:
I've never had trouble speaking during an attack.  
 
But, I never want to either, other than using some very choice words that no one else should be exposed to.
 
And I don't want anyone talking at or near me. Other than hearing my own voice I want silence.

 
Big time ditto, Bob!!!
 
.............................jonny
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don
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Re: Anyone else have trouble speaking?
« Reply #3 on: Dec 28th, 2003, 6:23pm »
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Big Time Double Ditto.
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ckelly181
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Re: Anyone else have trouble speaking?
« Reply #4 on: Dec 28th, 2003, 7:21pm »
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I've dealt with that. I just don't have the wherewithall to form thoughts in my head, much less speak in complete sentences.  
 
During this last cycle, a coworker asked me if I needed anything, and I replied, "Can't...just...don't" and that was it.
 
Chris
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Re: Anyone else have trouble speaking?
« Reply #5 on: Dec 28th, 2003, 7:48pm »
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I usually have a hard time saying any word that has more than 4 letters.
 
I wonder why ?
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don
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Re: Anyone else have trouble speaking?
« Reply #6 on: Dec 28th, 2003, 8:15pm »
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Get = 3
 
The =3
 
Fuck = 4
 
Away = 4
 
From = 4
 
Me = 2
 
I guess no mor than a 4 letter word for me.
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Melissa
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Re: Anyone else have trouble speaking?
« Reply #7 on: Dec 28th, 2003, 8:42pm »
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I use very broken sentences when I NEED to tell my family I'm getting hit or need help (ice, coffee, whatever).  I think because the pain is so intense, it takes all the energy and concentration you have to deal with it, let alone talk.
 
Smileymel
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mickey
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Re: Anyone else have trouble speaking?
« Reply #8 on: Dec 28th, 2003, 9:18pm »
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I have noticed on a few occaisions that it almost felt like I had been to the dentist and had a mouth full of novicane during some headaches.
Thats the only trouble I have had talking except the cuss words.
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Carl_D
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Re: Anyone else have trouble speaking?
« Reply #9 on: Dec 28th, 2003, 9:49pm »
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I can talk during a CH. I can say things like "Go away now!" To "Get the fuck out of here now!"
 
Otherwise, if I am pissed, I curse any form of god and usually say 'godfuckingdammit' alot.
 
Carl D
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Rick_K
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Re: Anyone else have trouble speaking?
« Reply #10 on: Dec 28th, 2003, 10:41pm »
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Don, well said
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pubgirl
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Re: Anyone else have trouble speaking?
« Reply #11 on: Dec 29th, 2003, 3:15am »
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Personally I don't speak at all, I howl like a deranged animal and everyone stays away from me!
 
Wendy
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Lizzie2
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Re: Anyone else have trouble speaking?
« Reply #12 on: Dec 29th, 2003, 3:32am »
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Hiya,
 
This is a very vague abstract.  But it's a report of instances of CH similar to hemiplegic migraine.  If you've ever seen a person in a hemiplegic migraine...they're not talkin too well!  Would have to find out a LOT more about this before I could really comment on it, though.  Hemplegic migraines often have a sort of temporary paralysis involved with them, and I'm not sure if that is what is meant by the documented cases in this study.  You could buy the article online and really read the case study, if you wanted.
 
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed &list_uids=12005289&dopt=Abstract
 
Lizzie Smiley
 
Come to think of it...I might have access to this journal...I'd have to check into that.
« Last Edit: Dec 29th, 2003, 3:35am by Lizzie2 » IP Logged





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Re: Anyone else have trouble speaking?
« Reply #13 on: Dec 29th, 2003, 3:55am »
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Lizzie
 
Christine might be worried by what you have posted. It seems a huge jump to me from someone who says they have a problem speaking in full sentences when in agony to an abstract about one-sided paralysis!
I am sure many, many people here find it hard to speak when in that much pain, and it would certainly be worth talking to a neuro about, but that is VERY different from a neurological symptom such as hemiparesis.
 
Wendy
« Last Edit: Dec 29th, 2003, 4:19am by pubgirl » IP Logged
Lizzie2
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Re: Anyone else have trouble speaking?
« Reply #14 on: Dec 29th, 2003, 7:42am »
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well let's put it this way...some people lose feeling in half their face or half their mouth with a hemiparesis and don't know what it is or how to describe it.  doesn't have to be full-bodied, and it doesn't even have to last a LONG time...hemiplegic migraines last a very big variety of lengths of times.  if there is such a thing as this existing in CH...which it appears can be possible...don't you think it would be better to be informed than unawares?  to be informed in life is our best weapon.
 
Lizz
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thomas
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Re: Anyone else have trouble speaking?
« Reply #15 on: Dec 29th, 2003, 8:16am »
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on Dec 28th, 2003, 8:15pm, don wrote:
Get = 3
 
The =3
 
Fuck = 4
 
Away = 4
 
From = 4
 
Me = 2
 
I guess no mor than a 4 letter word for me.

That's about all I care to say, also. Wink
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Paigelle
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Re: Anyone else have trouble speaking?
« Reply #16 on: Dec 29th, 2003, 8:36am »
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I have had HA that leave me speaking strangely.  I am like you and things just don't come out completely or something.  Of course, most of the words out of my mouth when I have a cycle are four letters.  I say nothing nice.
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CJohnson
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Re: Anyone else have trouble speaking?
« Reply #17 on: Dec 29th, 2003, 9:21am »
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1. There are a lot of things going on in your brain during an attack besides the pain, although the pain is, of course, the most significant. Its no surprise at all that you aren't able to speak clearly during an attack. Hell, its impressive that you are able to even form the full thought.
 
2. What Don said.  
 
3. Liz, fascinating link. It sort of correlates with the other thread about clusters as a symptom. In this case, a possible symptom of ion channel dysfunction.
   
"Ion channels are the most basic elements of neuronal function. Proper structure, expression, localization and regulation of these channel proteins are essential for their normal activity. Abnormalities of ion channels contribute to many diseases that are now generically categorized as channelopathies. While channelopathies are broadly investigated in heart, kidney, and skeletal muscle, these disorders are seriously understudied in the central nervous system."  
 
http://www.ninds.nih.gov/news_and_events/channelopathy.htm  
 
PFDANs  
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Re: Anyone else have trouble speaking?
« Reply #18 on: Dec 29th, 2003, 9:25am »
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During K8-10 all my efforts are concentrated on dealing with the pain, not sentence structure, like Wndy I may revert back to grunting even...
 
No paralysis, but some numbness on that side for sure.
 
Ozzy
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Re: Anyone else have trouble speaking?
« Reply #19 on: Dec 29th, 2003, 9:35am »
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I can speak from experience here. Had a CH in the neuro's office with his assistant there. When the neuro came in, it was over but I still couldn't "find" words. This is quite typical for me, especially with the really rough CHs.
 
Neuro said it's something that is more likely to happen with a meegraine, but does happen with CH. He isn't concerned about it (or some of the other weird stuff) as long as it comes back.
 
So.... know you're not alone, Christine. This is normal for me, starting before the CH hits and lasting about 30 minutes after it ends.
 
Lizzie aka ASB
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Re: Anyone else have trouble speaking?
« Reply #20 on: Dec 29th, 2003, 10:15am »
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I speak in tongues.
 
It's the Church of the Horribly Potty Mouthed Nazis from the Far Side of Hell, though.
 
I am surprised no one heard me last night around 12.45 AM.
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CHmess
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Re: Anyone else have trouble speaking?
« Reply #21 on: Dec 29th, 2003, 10:26am »
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on Dec 29th, 2003, 10:15am, Brian_Y wrote:
I speak in tongues.
 
It's the Church of the Horribly Potty Mouthed Nazis from the Far Side of Hell, though.
 
I am surprised no one heard me last night around 12.45 AM.

 
LMAO  Grin  That is sooooooo funny!!!!!!   laugh
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Re: Anyone else have trouble speaking?
« Reply #22 on: Dec 29th, 2003, 11:15am »
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Don't have trouble speaking, when I need help, I just have to say one word, like pills, or ice, or door and my husband and daughter know what I mean...
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Re: Anyone else have trouble speaking?
« Reply #23 on: Dec 29th, 2003, 11:18am »
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on Dec 29th, 2003, 10:26am, CHmess wrote:

 
LMAO  Grin  That is sooooooo funny!!!!!!   laugh

 
 
I stand and give a hellfukinya on that one
 
Gena
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Re: Anyone else have trouble speaking?
« Reply #24 on: Dec 29th, 2003, 11:51am »
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on Dec 28th, 2003, 5:38pm, cakelady wrote:
i have realized that I can't talk very well when I'm having a CH. The thought forms, but the words don't come. Like last night my head said " Help, my icepack broke, I need a new one" it came out "BROKE BAG"
I speak in single words or incomplete phrases. I'll ask the neuro, but just wondered if anyone else had this happen.
Christine

 
 
Exactly I have tried to explain to my wife.  It is like there isn't enough of me left to form sentences.  I am just all pain, I have become the pain and the pain has become me.  Ain't it just grand.
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