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Topic: AAARRRGGGHHH! I jinxed myself! (Read 354 times) |
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nani
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AAARRRGGGHHH! I jinxed myself!
« on: Dec 15th, 2004, 9:36am » |
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I knew I shouldn't have posted that the indo was working and I was PF...(stupid, stupid, stupid!) I have had the WORST non CH headache since yesterday afternoon. I'm guessing it's rebounds, so I didn't take the indo last night. I woke up with a DOOZIE and could barely move my head without pounding pain all over. So I guess it's down to this...horrifying rebounds or not so horrifying CPH/or cluster pain. At least I'm used to those. (I had 3 PF days and now I'm gonna have to start all over with my pain threshold)Life sucks sometimes, doesn't it. 
Pain free wishes to all!!!
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Jeepgun
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #1 on: Dec 15th, 2004, 9:44am » |
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  Hang in there, Nani... You've got my number, so call if you need some support.
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vig
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #2 on: Dec 15th, 2004, 9:44am » |
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OuCH,
sorry Nani.
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never, Never, NEVER quit. -Winston Churchill
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becky8
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #3 on: Dec 15th, 2004, 9:50am » |
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Nani,
Oh hon sorry you are going throught that, that is EXCATLY what happen to me but mine happened pretty fast like that, I still took it but I wouldn't stand after a couple days and thats why the Dr. said I didn't have CPH. I would ask to up your lithium, it is working so far for me. I am also on 360 verapamil. I have no side affects,they did the lithium blood test on me and I was low, so I am cool. Again so sorry I was really hoping it would work for you!
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Lobster
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #4 on: Dec 15th, 2004, 10:22am » |
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AAAAARRRRR!
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| « Last Edit: Dec 15th, 2004, 12:44pm by Lobster » |
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ZAIRA
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #5 on: Dec 15th, 2004, 10:51am » |
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Just wanted to let you know we are right there with you, and we truly, literally feel your pain..... Hope you feel better soon, hang in there..... we're behind ya all the way.............. Love, Zaira
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Hirvimaki
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #6 on: Dec 15th, 2004, 10:55am » |
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ACK! So sorry, hon! Let me know if there is anything I can do for ya!!
PF vibes and hugs to you...
Hirvimaki-Isi
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Bethany1
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #7 on: Dec 15th, 2004, 10:57am » |
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UGHHHH! I hate it when that happens. Hang in there, NANI.....
B
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nani
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #8 on: Dec 15th, 2004, 12:05pm » |
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Damn Rock...that was funny , but it hurt my effin head to laugh!
Thank you all soooo much. I'm feeling sorry for myself and weepy today. It's so incredible that you are here for me! 
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karma
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #9 on: Dec 15th, 2004, 12:32pm » |
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Hi Nani,
I'm real sorry to hear you in so much pain.
I don't know anything about indo but it did make a positive difference, at least for awhile.
Maybe its the combo of all the other stuff that is making the indo not work for long.
Sorry I can't help you with some answers but it may be worth trying to figure out why it stopped instead of giving up on it.
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broomhilda
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #11 on: Dec 15th, 2004, 12:40pm » |
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Awwww Nani that sucks, so sorry to hear this happened...
Hugs on over
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Suck it up Princess...
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aprilbee
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #12 on: Dec 15th, 2004, 12:49pm » |
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sorry to hear about your pain...I've been pain free for almost a year and here I go again...started having CHs... I/we all know how you feel....hang in there, stay strong and I'm sending you PF vibes...
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clarence
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #13 on: Dec 15th, 2004, 1:18pm » |
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Sorry nani. It goes back and forth so much that it is really discouraging and depressing. Hang in there.
Casey
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LeLimey
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #14 on: Dec 15th, 2004, 1:55pm » |
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wish I could take the pain away Nani
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lionsound
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #15 on: Dec 15th, 2004, 2:52pm » |
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Nani,
I'm so sorry your head is hurting like this. It is not fun. It's not fair to have to exchange one pain for another.
The same happened to me on indo.Do not wait an entire month like I did to do something about it(I discontinued it). Please call you doc. Maybe just a dose adjustment is the answer for you.
PF and wellness vibes for you...
lionsound
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| « Last Edit: Dec 15th, 2004, 9:23pm by lionsound » |
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cschick
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #16 on: Dec 15th, 2004, 9:21pm » |
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I hope you get to feeling better soon - SOMEONE told me that you can't jinx yourself!  I'm thinking of you sweetie! Added to my prayer list!
Love and hugs to you!
Karen
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thebbz
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #17 on: Dec 15th, 2004, 9:58pm » |
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Vibes and a prayer to ya Nani. Hope ya get some relief soon.
BB
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Bandette74
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #18 on: Dec 15th, 2004, 10:19pm » |
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Nani, that's terrible! best wishes and prayers to you.
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Bill-G
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #19 on: Dec 15th, 2004, 10:37pm » |
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Awww...so close! Truely sorry Indo didn't work out for you 
It does seem that life sucks at times but when your in pain gravity is not the force holding you on the planet...The Earth sucks!
Hope you find your answer soon
Hope springs eternal
Take care,
Bill
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Charlie
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #20 on: Dec 16th, 2004, 12:14am » |
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Rats....
All I can offer is my thing. Can't hoit.
Dr. Wright’s Circulatory Technique
What follows is a technique learned from a neurologist:
I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
I hope this technique is helpful and I wish you the best of luck
Charlie
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K-9
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Re: AAARRRGGGHHH! I jinxed myself!
« Reply #21 on: Dec 16th, 2004, 2:34am » |
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That really sucks!!!!! I hope you get some relief soon!!!
You know your options aren't good when your two choices are really bad headache, and REALLY, REALLY bad headache. Can't we just say, I'll pass, thank you!!! 
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