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Topic: Clusterheads Documentary (Read 306 times) |
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justin
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Clusterheads Documentary
« on: Dec 22nd, 2004, 12:06pm » |
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Hey guys!
Just shot an hours worth of footage with my neuro, dr. lawrence newman, on friday. he is aweomse and i can't believe i have all that information on tape now. it will be such a great tool for dr.s and patients i hope.
so i'm still looking for volunteers to have me come visit them and shoot with them.i have about 5 right now. so email me if you are interested, and I'll be sending questionairres out this week.
I'm also looking for stories about attacks. maybe the worst one you ever had or just an embarassing or tough timeyou had. if you can keep it to a couple paragraphs that would be great. just email me.
ALSO...  looking for younger clusterheads. Someone who's attacks started while they were still in school. HS or college. email me...
Thanks all & Happy Holidays!
Justin
Email me here not through the board if you can:
clusterheadsmovie@mac.com or
justinott@mac.com
they are the same email address actually
justin
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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nani
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Re: Clusterheads Documentary
« Reply #1 on: Dec 22nd, 2004, 12:10pm » |
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I am old now...but my first episode was at 16. Do I count?
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Jeepgun
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Re: Clusterheads Documentary
« Reply #2 on: Dec 22nd, 2004, 12:13pm » |
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Justin, I just want to take this opportunity to say thank you for all of your hard work and the time and devotion that you have put into this. The way I see it, the biggest obstacle OUCH and cluster headache sufferers face, is the appalling lack of knowledge in the medical community about cluster headaches. Blessings to you for "lighting a candle in the darkness." My best to you and yours.
-Frank
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Jimi
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Re: Clusterheads Documentary
« Reply #3 on: Dec 22nd, 2004, 1:19pm » |
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I gotta echo Frank. Thanks a lot for what you are doing. I have been pain free now for 4 years. Never went this long before. Maybe there is hope that for some of us, they do disappear after you get older.
Good luck on the documentary, you are off to a great start.
Jimi
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marlin
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Re: Clusterheads Documentary
« Reply #4 on: Dec 22nd, 2004, 1:43pm » |
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on Dec 22nd, 2004, 1:19pm, Jimi wrote:
Maybe there is hope that for some of us, they do disappear after you get older.
Jimi |
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Tell me it's true. Some of my neuros have told me the same thing and my cycles have been getting further and further apart. My father said his (I think he had migraines) went away after he hit 50. If so I only have a few years to go.
I can only hope.
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Little Deb
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Re: Clusterheads Documentary
« Reply #5 on: Dec 22nd, 2004, 3:56pm » |
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Yes Justin. What Frank said. You are to be commended for your long hours of work and dedication to this project. Thanks.
Little Deb
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justin
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Re: Clusterheads Documentary
« Reply #6 on: Dec 22nd, 2004, 11:14pm » |
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thanks guys
nani - yes you count! if you'd like to tell me what it was like living with clusters as a teen that would be great. how was school affected, etc.
also marlin, my neuro said that they tend to start slowing down in periodicity and intensity around 60 and can often dissapear completely around then
j
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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Mark C
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Re: Clusterheads Documentary
« Reply #7 on: Dec 22nd, 2004, 11:16pm » |
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