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Topic: Wahoo! It works! (Read 671 times) |
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phydeaux
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And I, of course, am innocent of all but malice.
    
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Wahoo! It works!
« on: Jan 27th, 2005, 11:13pm » |
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I've been seeing Dr. Neil Raskin, and we have found what seems to be working for me (so far, so good!)
Using Verapamil as a preventative has been wonderful. I'm at 1000mg / day, and have now gone three weeks with only minor headache and no CH at all. This is the longest I have been without in three years!
Mucho water and Oxygen have been my key abortatives, with the od slapshot of Demerol thrown in.
But three weeks! I feel like a new man!
Wahoo!!
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Necrophelia means never having to say... well, anything!
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BigRick
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Please remove the axe
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Re: Wahoo! It works!
« Reply #1 on: Jan 28th, 2005, 2:37am » |
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Thats great news,Im glad to hear you're getting a handle on things.3 years is an AWFULLY long time to go without a break.You must be one strong SOB.
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phydeaux
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And I, of course, am innocent of all but malice.
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Re: Wahoo! It works!
« Reply #2 on: Jan 28th, 2005, 3:12am » |
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not always. It's been really REALLY tough. But I have a GREAT wife, who has helped more than I can ever say.
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Wahoo! It works!
« Reply #3 on: Jan 28th, 2005, 3:14am » |
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I'm so happy for you that you've found meds, which work! 
Best wishes & lots of more PFdays,
Sandie
another chronic
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Tom_Thumb
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Re: Wahoo! It works!
« Reply #4 on: Jan 28th, 2005, 5:08pm » |
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That 's great you have found what works . Jump for joy and keep on smiling you deserve any and everything you want . WOW 3 years of hell an NOW let it all hang out . LOVE THAT WIFE BE THERE FOR HER SHE MUST BE A VERY GOOD LADY . BEST OF LUCK MANY PF DAYS TO COME
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mynm156
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Re: Wahoo! It works!
« Reply #5 on: Jan 31st, 2005, 6:50am » |
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Rock on dude!!!
Stay that way!
MYNM156
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RichardN
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Re: Wahoo! It works!
« Reply #6 on: Jan 31st, 2005, 2:33pm » |
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I can live with the beast as long as I don't have to "dance" with the bastard.
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BMoneeTheMoneeMan
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Re: Wahoo! It works!
« Reply #7 on: Jan 31st, 2005, 11:44pm » |
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That's really cool man!! I have been lucky lately. I have started verapimil and I think it may be working. I also have started taking melatonin and dyphenhydramine before bed and I sleep through the whole night with not so much as a shadow. When I wake up, i do not feel groggy at all. For the first time in many months, I slept through the whole night!!
It's completely amazing, I wake up feeling totally rejuvenated and refreshed.
I think you'll agree: thanks to this board and all the supportive people here.
PF wishes
BMonee
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Major_Headcase
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Re: Wahoo! It works!
« Reply #8 on: Feb 1st, 2005, 5:32pm » |
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Just a reminder ... taper off the Verapamil slowly when you think your cycle's over; you don't want to quit suddenly. I was at 720mg (240mg SR 3X day) Verapamil this past cycle and my doc has me dropping down by 120mg every 2-3 weeks. I have high blood pressure so I stay at 240mg SR 365/year.
CONGRATS on finding something that works for you!! 
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Jeepgun
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Re: Wahoo! It works!
« Reply #9 on: Feb 3rd, 2005, 12:22am » |
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Congratulations on finally getting some relief! Wonderful news!!
What happens if you drop Verapamil suddenly?
-Frank
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Ruth
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Re: Wahoo! It works!
« Reply #10 on: Feb 3rd, 2005, 10:23am » |
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This is wonderful news, so happy for you.
Enjoy your PF time.
Ruth
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ahf330
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Re: Wahoo! It works!
« Reply #11 on: Feb 3rd, 2005, 7:27pm » |
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I've been seeing a headache specialist for about 10 years. Same one. Trie numerous drugs until we found the right combo. I am usually on Depakote 500mg AM and PM as well as Verapamil 120 AM and 180 PM. Right now I am in a cluster. Have been for 4-5 weeks. Doubled the meds. Hop it works.
I go in the Hospital about once per year for IV drug treatment when I can't get out of cluster. That might be soon.
Glad to hear that you are on the right road to recovery.
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