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Topic: Help - any hope left (Read 1464 times) |
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Redd
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Re: Help - any hope left
« Reply #25 on: Feb 24th, 2005, 1:35pm » |
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Listen dip shite! You stated your symptoms and they are NOT CH! Yes we have an inalliable right to tell you idiots to go away. It's you who aren't listening very well! Of course you don't want to share your email because you know you are a scum bag and will be innundated with hate mail. Now get your sorry but outta here before we run an IP trace. You are pathetic.
We support clusterheads here. Not trolls. We help and support true sufferers. Your symptoms prove you are not and nevere were a clusterhead. You take us for idiots, but it is you who are the idiot!
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| « Last Edit: Feb 24th, 2005, 1:39pm by Redd » |
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tc12346
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Re: Help - any hope left
« Reply #26 on: Feb 24th, 2005, 1:55pm » |
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So what help do you have for people? And maybe I did have CH. I didn't mention every detail. I don't like being called "dip shite", "scum bag", and "pathetic" so you should apologize. Is anyone with me?
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| « Last Edit: Feb 24th, 2005, 1:56pm by tc12346 » |
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Redd
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Re: Help - any hope left
« Reply #27 on: Feb 24th, 2005, 2:01pm » |
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on Feb 24th, 2005, 1:55pm, tc12346 wrote:So what help do you have for people? And maybe I did have CH. I didn't mention every detail. I don't like being called "dip shite", "scum bag", and "pathetic" so you should apologize. Is anyone with me?
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HAHAHAHA....you won't find support here...isn't that obvious? Tom and I, LeLimey, we all have your number...12346 isn't it? Gawd you a tenatious troll. I love your type!
There is no cure for CH and if your candida theory held any water what-so-ever then there would be pamplets in every neuro and headache clinic around. You are such a brainless wonder. Is your monkey doing your typing for you?
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| « Last Edit: Feb 24th, 2005, 2:02pm by Redd » |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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TomM
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Re: Help - any hope left
« Reply #28 on: Feb 24th, 2005, 2:02pm » |
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on Feb 24th, 2005, 1:29pm, tc12346 wrote:| All I want to do is share very good info. |
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You did and we thank you.
on Feb 24th, 2005, 1:29pm, tc12346 wrote:| Sorry if I'm not here 24/7, I do have a job and other things to do. If you don't have any answers for people, then you shouldn't be telling me to go away. |
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Many of us have jobs, too. My work address is:
Finnegan, Henderson, Farabow, Garrett, & Dunner, LLP
901 New York Ave
Washington, DC 20001
202.408.4000
Please call and ask for Tom Meyer.
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Margi
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Re: Help - any hope left
« Reply #29 on: Feb 24th, 2005, 2:06pm » |
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hey, TC - I'm glad you've found relief. The candida theory has been discussed here before and actually a lot of clusterheads do test positive for a candida overgrowth. Flash (who posted in your first thread), brought this candida test to us years ago and everyone posted their results over the next few days. I'd say roughly 70 - 80% of them were positive.
I think there really is something to the theory, but I don't believe candida flourish causes cluster. Cluster is popularily believed to be caused by a hypothalmic abnormality, that's all there is to it.
I do believe, however, that if you can get rid of the candida overgrowth, you will notice a reduction in all the symptoms you mention and, sure - headache of any kind is going to be one of them. I'm glad you've found your magic fix, but it's always dangerous to mention the word "cure" to a mob mentality that has for years gone undiagnosed with an affliction for which there sadly IS no cure.
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kathy copelin, ch.com 8/8/06
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tc12346
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Re: Help - any hope left
« Reply #30 on: Feb 24th, 2005, 2:11pm » |
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thanks, Margi.
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TomM
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Re: Help - any hope left
« Reply #31 on: Feb 24th, 2005, 2:21pm » |
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Margi--very well stated but, I am doubtful of "magic fixes". I am also leary of people who promote thier "fix" as a "cure" for all and that all symptoms disapear.
TC--the address and phone number I posted is real. My e-mail in my profile is real. Call or e-mail me. I would love the opportunity to chat.
TomM
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Redd
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Re: Help - any hope left
« Reply #32 on: Feb 24th, 2005, 2:22pm » |
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Margi,
Thank you for your calm comments, but it looks as though he still didn't get it. 
TC...don't confuse Margi's calmness and polite manner for support. If this was a viable treatment for CH you can bet your last dime that she and her Hubby would have had tripple mortgaged their home to provide this infomation to the world.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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TomM
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Re: Help - any hope left
« Reply #33 on: Feb 24th, 2005, 2:39pm » |
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on Feb 24th, 2005, 2:22pm, Redd715 wrote:| If this was a viable treatment for CH you can bet your last dime that she and her Hubby would have had tripple mortgaged their home to provide this infomation to the world. |
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As would all of us!
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"Everyone should believe in something. I believe I'll go fishing."
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broomhilda
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Re: Help - any hope left
« Reply #34 on: Feb 24th, 2005, 2:41pm » |
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I'm itchy....  I think its this thread...
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Suck it up Princess...
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Redd
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Re: Help - any hope left
« Reply #35 on: Feb 24th, 2005, 2:43pm » |
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on Feb 24th, 2005, 2:41pm, broomhilda wrote:| I'm itchy.... I think its this thread... |
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I luv ya sis!
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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broomhilda
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Re: Help - any hope left
« Reply #36 on: Feb 24th, 2005, 2:58pm » |
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And lookie here I got boots on today, here if needed 
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Suck it up Princess...
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Margi
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Re: Help - any hope left
« Reply #37 on: Feb 24th, 2005, 2:59pm » |
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on Feb 24th, 2005, 2:58pm, broomhilda wrote:| And lookie here I got boots on today, here if needed |
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Well, shine 'em up, darlin - I'm giving you the reins.
Illegitimus non carborundum.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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seasonalboomer
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Re: Help - any hope left
« Reply #38 on: Feb 24th, 2005, 3:45pm » |
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If the claims you make are false, or if you don’t know your neuralgia from your neurosis, please be careful in making claims of cure-alls.
While you will find an abnormal level of skepticism is one of the universal side-effects of the cluster sufferer (it’s natural conditioning, just when we’re fooled into thinking they’re through, they’re not through…..) you also will find people that have had to find that hope exists somewhere in this affliction. Whether it be in the beautiful pictures of kids and grandkids posted elsewhere on this site, or just in the kind words that many of these people share with each other. Or, maybe just in the cool morning air after a long night of pacing the floor.
So every time there is something with a glimmer of a chance being mentioned on these boards, you can see the number of times something is read. So, please show some compassion. We are all operating on different levels of emotional reservoir and depending upon where we are in our cycle, you see some people in despair and other people in jubilation. All of them hoping something might change their future.
What a sad case you must be if you are hawking some bull to this crowd. Your soul would have to be rotted to do such a thing if you’ve spent any time reading these folk’s messages of despair and pain (and sometimes joy).
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karma
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Re: Help - any hope left
« Reply #39 on: Feb 24th, 2005, 4:44pm » |
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Quote:
BULLS EYE
Good one brudda
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jasckorohod
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Opiates (percodan, vicodan, dilaudid, etc.) do not cause rebound headaches in people with CCH. They can in some cases cause them with other types of HAs and perhaps with some CH sufferers, but not as a rule. As far as opiates not being effective in helping to manage CCH pain, that depends upon the individual taking them; they do not work for everyone but they do work for some (I use them, have had CH since 1980 and CCH since 1996), just like any of the plethora of medications that CH people try. Just because it is written in posts here that they don't work or that they cause rebound HAs does not make it so. While it is valuable for us to share with others our experiences with various medications, it is irresponsible to "play doctor" and give medical advice. I find it difficult to believe that some people who are writing that opiates "never" work are advocating the use of hallucinogenics as a valid treatment method-please direct me to a website that shows hard evidence that that stuff works. What medications to use is a matter to be decided between patient and physician-let us leave it that way and use this site to share information, experiences and support and not to try to dictate treatment.
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karma
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Re: Help - any hope left
« Reply #41 on: Feb 24th, 2005, 5:18pm » |
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jaskorohod,
I believe that throughout your time of pushing opiates here. You have been given advice based on experience not hearsay. People have also congratulated you on the fact that you have found relief.
Take it or leave it.
As far as the website for psilosybin, its right here in front of you. Its called Clusterheadaches.com. Take the time to read about it.
But be careful you won't find much in the way of help for CCH
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Redd
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Re: Opiates and CH
« Reply #42 on: Feb 24th, 2005, 5:34pm » |
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on Feb 24th, 2005, 5:04pm, jasckorohod wrote:| Opiates (percodan, vicodan, dilaudid, etc.) do not cause rebound headaches in people with CCH. You know this HOW? Because of a pain clinic? Every good Neuro and HA specialist KNOWS narcotics can and do cause rebounds in ECH and CCH. Who is playing Dr. here? They can in some cases cause them with other types of HAs and perhaps with some CH sufferers, but not as a rule. As far as opiates not being effective in helping to manage CCH pain, that depends upon the individual taking them; they do not work for everyone but they do work for some (I use them, have had CH since 1980 and CCH since 1996), just like any of the plethora of medications that CH people try. Just because it is written in posts here that they don't work or that they cause rebound HAs does not make it so. While it is valuable for us to share with others our experiences with various medications, it is irresponsible to "play doctor" and give medical advice. Yet you have advised in all your posts thus far to seek treatment in a pian clinic and to hail narcotics rather than to see a knowlegable neurologist or headache specific specialist. Sorry I'd put my money on a head specialist before an orthopedist any day. Your words are hypocritical and that is my biggest pet pieve. I find it difficult to believe that some people who are writing that opiates "never" work are advocating the use of hallucinogenics as a valid treatment method-please direct me to a website that shows hard evidence that that stuff works. www.clusterbusters.com and the pending Harvard Medical School study that came from all the positive reports. Obviously you have been reading selectively, not here to get education, just push narcotics What medications to use is a matter to be decided between patient and physician-let us leave it that way and use this site to share information, experiences and support and not to try to dictate treatment. It would be neglectful of us as supporters and sufferes alike to NOT redirect people from the usage of drugs that are and I'll list in no particulat order of importance....expencive, usless, dangerous, and in many cases sheer quackery. I have yet to read one post of yours that doesn't praise the narcotics. |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Ueli
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Re: Help - any hope left
« Reply #43 on: Feb 24th, 2005, 6:22pm » |
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I wonder if jaskorohod is identical to / a reincarnation of our old junkie friend Waterdog ?
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Redd
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Re: Help - any hope left
« Reply #44 on: Feb 24th, 2005, 6:24pm » |
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on Feb 24th, 2005, 6:22pm, Ueli wrote:| I wonder if jaskorohod is identical to / a reincarnation of our old junkie friend Waterdog ? |
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Waterdog ever go to Diamond HA Clinic? jasckorohod has a dis on the place on the Mediactions board.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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jasckorohod
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Re: Help - any hope left
« Reply #45 on: Feb 24th, 2005, 9:10pm » |
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Did I hit a nerve, girls?
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Redd
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Re: Help - any hope left
« Reply #46 on: Feb 24th, 2005, 9:25pm » |
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on Feb 24th, 2005, 9:10pm, jasckorohod wrote:| Did I hit a nerve, girls? |
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Only the nerves of those that know your game. Ohhhh Ueli..............
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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jasckorohod
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Re: Help - any hope left
« Reply #47 on: Feb 24th, 2005, 9:52pm » |
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Wie self-righteous Sie Amerikaner sind! Sie sind in Richtung zu allen moeglichen Ideen so feindlich, die zu Ihrer unterschiedlich sind. Moeglicherweise hben Sie zu viele Pilze genommen?
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clarence
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Re: Help - any hope left
« Reply #48 on: Feb 24th, 2005, 10:27pm » |
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on Feb 24th, 2005, 9:52pm, jasckorohod wrote:| Wie self-righteous Sie Amerikaner sind! Sie sind in Richtung zu allen moeglichen Ideen so feindlich, die zu Ihrer unterschiedlich sind. Moeglicherweise hben Sie zu viele Pilze genommen? |
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What the hell? If you are going to argue, at least do it so we can all understand it. This is lame.
Casey
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clarence
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Re: Help - any hope left
« Reply #49 on: Feb 24th, 2005, 10:28pm » |
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By the way,
I really hope that this is providing hope for rcw134.
Casey
Damn, broke my own rule.
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