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   Author  Topic: I'm new and need to talk to poeple that understand  (Read 1116 times)
The_Kid
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I'm new and need to talk to poeple that understand
« on: Jan 29th, 2004, 3:48pm »
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I choose my screen name the kid because i've been a clusterhead since i was 14.  My doctors always just thought that i had migrains a lot.  But i really don't have a lot of money so it is hard to even go see a doctor about the pain.  So i've tried everything to prevent the migrians (clusters) from coming on.  I went 2 months of never looking at a tv or computer because a doctor said that it MIGHT be a cause.  I've gone on very striked dietes to hopefully prevent an episode.  I've done several thing and none of them work.  Most recentlay around my 18th b-day my new doctor finally figured it out and told me that i had cluster headaches.  He had me try Prednison and Verapimil.  Both had no effect.  I need help badlly.  The clusters caused me to drop out of school and i can barely work (i have to call in sick all of the time).  I'm afriad to sleep or eat or well do anything.  It was out of pure desperation that i came searching for you guys.  
 
> Just so you now about me i have moved all my life and have never really settled down.  I've had at least migrians since i can remember( my lovely mother passed that nice trait on to me).  I have a beatiful, caring, and conserned girlfriend of 2 and a half years.  My family tries to help but their busy and can't always be their for me.  That's what i'm hoping you guys can help with.
 
Any suggestions, sympathy,  or just a hello will be greatly apreciated. Thanks.
 
P.S.- is it weird that i've been a clusterhead this long and this early in my life? Do i have hope for the futrue?
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Re: I'm new and need to talk to poeple that unders
« Reply #1 on: Jan 29th, 2004, 3:51pm »
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Try melatonin, it's cheap and readily available, see if you can get some samples of zomig or amerge from a doc, they should have some for people like yourself who don't have good insurance.  Welcome, and there is always hope as long as you're breathing.
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echo
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Re: I'm new and need to talk to poeple that unders
« Reply #2 on: Jan 29th, 2004, 3:51pm »
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Sorry to read that the animal has chosen to reside within you.  This is the place to come to for support, empathy and the occasional kick to the back side to keep you fighting the beast head on.
 
Sorry that CH is in the way of the job.  It happens to many of us.  
 
Thankful that you have a caring partner.  Have her check out the supporter MB.
 
Welcome to the family
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Re: I'm new and need to talk to poeple that unders
« Reply #3 on: Jan 29th, 2004, 4:12pm »
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Welcome Kid,  
Have you tried oxygen to abort your headaches? If not you should try and get your Dr to prescribe it. It has been a life saver for me and many others here. It's fairly cheap with minimal side effects and it will usually kill my h/a's in under 10 minutes.
There's a lot of good info here so read, read, read!
 
Jim
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Re: I'm new and need to talk to poeple that unders
« Reply #4 on: Jan 29th, 2004, 5:45pm »
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hey Kid ,
    try the melatonin, it worked great for me, most people need 9mg but I needed 12mg a day to keep the beast ( that's what we call it ) at bay. Also try these abortives and preventatives.
 
 
Non Med Treatments
 
And also  
 

 
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Re: I'm new and need to talk to poeple that unders
« Reply #5 on: Jan 29th, 2004, 5:48pm »
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Welcome aboard Kid!!
 
Chris
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Re: I'm new and need to talk to poeple that unders
« Reply #6 on: Jan 29th, 2004, 5:49pm »
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Sorry to see you here.  
 
You might ask your doctor for  lithium carbonate (Eskalith) in combination with the verapamil. This has worked reasonably well for me since '86. 480 mg of verapamil and 900 mg of lithium spread out in doses over the day.  
 
Eskalith is not too terribly expensive.
« Last Edit: Jan 29th, 2004, 5:53pm by Miklos » IP Logged

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Re: I'm new and need to talk to poeple that unders
« Reply #7 on: Jan 29th, 2004, 5:50pm »
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Hey Kid,
  I had my first cluster at 13. I wasn't as lucky as you, I wasn't diagnosed until 21.
 
I'm 45 and still have them. Also managed to get through college, get married and have 2 great kid.
 
See  Wink  there is always hope. Hang in there. If nothing else, these damn things do make you stronger.
 
Christine
« Last Edit: Jan 29th, 2004, 5:54pm by cakelady » IP Logged

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jonny
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Re: I'm new and need to talk to poeple that unders
« Reply #8 on: Jan 29th, 2004, 6:15pm »
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Try some Lithium with the Verapamil.
 
..................................jonny
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Jayne
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Re: I'm new and need to talk to poeple that unders
« Reply #9 on: Jan 29th, 2004, 6:24pm »
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Yeah...Listen to Jonny.. I have been pain free for just over a month thanks to that cocktail...and speaking of cocktails  I can even have a drink now with no HA's which to me is unbloody believable!!!!!!!!!!!!!
I LOVE LITHIUM AND VERAPAMIL YAHOOO
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Re: I'm new and need to talk to poeple that unders
« Reply #10 on: Jan 29th, 2004, 11:17pm »
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Hey KID,
Sorry you have to find us. But this is a great site to learn about CH. i myself have had CH for 5 years now. The past two years i have been cluster free till three weeks ago. Mine cycle usual last 4 to 6 weeks.
I take ZOMIG, IMITREX INJECTIONS and OXYGEN.
 
Ask your doc. for some ZOMIG samples, they should have some.  
 
Neal
 
 
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Re: I'm new and need to talk to poeple that unders
« Reply #11 on: Jan 29th, 2004, 11:38pm »
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on Jan 29th, 2004, 4:12pm, JDH wrote:
Have you tried oxygen to abort your headaches? If not you should try and get your Dr to prescribe it. It has been a life saver for me and many others here. It's fairly cheap with minimal side effects and it will usually kill my h/a's in under 10 minutes

 
O2 is a wonderful thing
 
Hang in there Kid, you will get through this.  I had my first CH in '69 and it took till the the mid 80's before I knew what the hell was going on with me.  Been dealing with the beast for 35 years, still alive and kicking!  You can get through this and were all here pulling for ya.
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Re: I'm new and need to talk to poeple that unders
« Reply #12 on: Jan 30th, 2004, 12:19am »
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Hi Kid,
 
Welcome to the family.  Miklos and Jonny both nailed it, and the others with the O2 recommendation.  Put the three together and there is a very good liklyhood you can beat this thing.  At least to the point of having a life again.  Find a way to get back into school as soon as you can get a handle on these things, and get on with your life.  You are to young togive up now!!!  You CAN do it!
 
Jerry
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Re: I'm new and need to talk to poeple that unders
« Reply #13 on: Jan 30th, 2004, 12:35am »
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Welcome to the board, Kid  Wink
 
The above posts give you lots of info and some good advice.
 
Let us know how you are doing.  Remember you are not alone.  
 
Jean
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Re: I'm new and need to talk to poeple that unders
« Reply #14 on: Jan 30th, 2004, 6:17am »
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Welcome Kid,
 
Sorry you have to be here, but with CH, Clusterville is the place to be. There's usually someone around here 24/7.  
 
On your meds -- ask you doc (or his nurse) about the Patients in Need (PIN) program. There's a little paperwork (some companies require your income tax) about your financial status. BUT, if you qualify, the meds are about $5 a script. Each pharm company has their own form, but the doc office should have them. You have to ASK for it tho.  
 
Wishing you PF days in the future.
 
Hugs BD
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Re: I'm new and need to talk to poeple that unders
« Reply #15 on: Jan 30th, 2004, 7:01am »
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Welcome Kid.
 
Don't let the beast beat you.  Keep looking for the right med mix for you.  Keep fighting.  Never ever let up.  
 
After all, it's your life and he must not win.
 
Steve G
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Re: I'm new and need to talk to poeple that unders
« Reply #16 on: Jan 30th, 2004, 10:42am »
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Welcome to clusterville!
 
Melotonin has work for me.
 
The Beast never wins rest a sure on that!
 
David
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Re: I'm new and need to talk to poeple that unders
« Reply #17 on: Jan 31st, 2004, 1:15am »
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Welcome aboard kid and sorry you had reason to find us. If you stick around you'll find some good ideas and ways to deal with this horror.  
 
I'm posting two links for you. One is for a technique that works for me and the younger you are, the better.  The second is to a description of your headaches that you can copy and give to your employers, family and friends. It's worth a look.
 
http://www.netsync.net/users/charlies/
 
[url]"http://www.ouch-uk.org/ch/note_colleagues.cfm" [/url]
 
Good luck and let us know how you're doing.
 
Charlie
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Re: I'm new and need to talk to poeple that unders
« Reply #18 on: Jan 31st, 2004, 2:12pm »
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Hey Kid,
 
This here website has an absolute TON of info to help ya out.  Check out the buttons to the left.  You can spend a day here and be so much ahead of the doctors you are not insured for.*
 
As to the non meds - i'm tellin ya, check it out.  There's BUNCHES of stuff for you to read and learn.  
 
Here's what I did (it's in the archives - look)
 
hot strong black coffee at first *inkling of attack* gulp it.  It sometimes helps abort.
 
try that and try all the gazillions of things people have for years documented as helpful.  So, get readin*** Smiley  It's going to help you more than you can imagine.
Well wishes.
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Re: I'm new and need to talk to poeple that unders
« Reply #19 on: Feb 6th, 2004, 5:40pm »
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Sorry you have to be here Cry  But you are in good hands now Grin
Andrea
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