Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Jul 20th, 2019, 11:57am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board The beast is back


   Clusterheadaches.com Message Board
   New Message Board Archives
   2004-2005 Getting to Know Ya Posts
(Moderator: DJ)
   The beast is back
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: The beast is back  (Read 249 times)
krusen
New Board Newbie
USA 
*



I love YaBB 1G - SP1!

   


Posts: 2
The beast is back
« on: Feb 21st, 2004, 3:50pm »
Quote Quote Modify Modify

Misery sure likes company.  I haven't had a CH in 4 years and over the last week the beast creeped back into my life. I got on the internet to see if treatment has changed and I found this website.  Boy it was good to hear there were others out there like me.  When the beast returned this week I was confused at first because I'd been suffering from tension headaches and prior to that migraine headaches.  But the beast's pain is so different, I think I was in denial.  Anyway to make a long story short, I finally fessed up that they were back and forced my regular doctor's offce to squeeze me in today.  No chance of getting the neurologist to see me on a Saturday. Saw the Physician's Assistant, told him my history and what I wanted was prednisone cuz that's what I'd been treated with in prior years.  He said no problem but didn't know how much to start me out with, so we settled with 40mg but he gave me enough that I could bump that up.  I got the perscrip filled as fast as I could and bought a power bar and swallowed those pills in the parking lot.  I expect the beast will visit tonight, will take Maltex to get me through it.  I leave for a business trip on Monday, boy I hope the prednisone does the trick.  Anyone have suggestions on the dosage of prednisone?  I had 3 clusters last night, the Maxalt made them go away for about 3 hours each (after taking 45 minutes to work).
IP Logged
Janice
Guest

Email

Re: The beast is back
« Reply #1 on: Feb 21st, 2004, 6:52pm »
Quote Quote Modify Modify Remove Remove

Hi Krusen,
I have been pain free for almost 2 yrs now, but then again, mine hit me about every 2 years or so.  Unfortunately with me what worked 4 yrs ago did not work the last time, nor the times before.  I think most of the meds are about the same as 4 yrs ago, with a few variations of the old stand-bys.  The Imitrex injections are what seem to work for most people, but try getting them in the quantities you need!  It's just about impossible with the insurance companies these days.  I'll keep you in my prayers, as I know exactly what you are going through.    Janice
IP Logged
Giovanni
New Board Hall of Famer
USA 
*****




I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 764
Re: The beast is back
« Reply #2 on: Feb 22nd, 2004, 10:27am »
Quote Quote Modify Modify

Hi Krusen,
 
I have taken steroids during several cycles and for the most part have had marginal/no success but a number of complications.  As soon as the taper would begin--they would return and would make up for a few days of pf times.  Having said that, some people here it has worked well.
 
In a work situation, you might investigate imitrex injections.  In my case, a single headache is aborted in less than 5 minutes.  I am now trying the alternative treatment: www.clusterbusters.com
and am not using imitrex, but O2 only.
 
Best of luck,
John
IP Logged
Bob_Johnson
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 1796
Re: The beast is back
« Reply #3 on: Feb 22nd, 2004, 10:35am »
Quote Quote Modify Modify

The medical literature I've seen suggests Pred. startring dose in a range from 10mg to 100mg.
 
The recommendation is to start a cycle of Pred at a low dose, then repeat the cyle at higher doses until you find the level which works for you.  
 
Don't assume that one cycle of Pred which does not work means that this med won't work for you.
IP Logged

Bob Johnson
sgarner
New Board Newbie

*



I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 43
Re: The beast is back
« Reply #4 on: Feb 26th, 2004, 1:08am »
Quote Quote Modify Modify

I see a headache specialist (Ford Headache clinic) and he prescribed 60 mg 1st day, 55 the 2nd until it reduced to 5mg and then stopped. He will not prescribe it anymore because of the side effects of Hip pain. I have never had the hip pain but apparently many have.  I am seeing him tomorrow and will do my best to get him to understand that no hip pain could be as bad as the head pain.
IP Logged
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB 2000-2003. All Rights Reserved.


1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss