Author |
Topic: another newbie (Read 211 times) |
|
jeremy
New Board Newbie
Gender: 
Posts: 4
|
 |
another newbie
« on: May 11th, 2004, 1:24pm » |
 Quote  Modify
|
Hello there fellow sufferers,
My story:
I'm 47, my first cluster was about 25 years ago. They were very bad originally, mis-diagnosis, etc. My father ( a Dr. ) was a regular migraine sufferer in his youth so I spent years going down the wrong avenue. I actually found out what my problem was years ago myself. My father had given me a book to read by the brilliant Oliver Sacks who funnily enough had written a book on migraine. In the book, he had a short chapter titled ' migraneous uralgia' ( sp?) which perfectly described my cluster headaches. To this day it is one of the best descriptions I have read, complete with gory details.
Anyway, it didn't really help as I still wasn't being given the right treatments for me. I remember sansert, beta-blockers, all kinds of things that made little or no difference.
Over the years I've had clusters on and off, I even had a seven year remission which was terrific. The worst was in 1985 when I had a year of one or two a day with no effective treatment - pure hell - if there is anything I could say to people who are currently in a similar state to what I was in back then, I have nothing but huge respect for their strength and suffering.
I'm back in a cluster now. I guess I'm one of the lucky ones because when I discovered Imitrex three clusters ago, I couldn't believe it. For me it is almost a miracle. I almost weep with delight when I feel the pain back-off from maximum to nothing in one minute flat, despite the depression that follows.
Just thought I'd stop lurking and say hello.
Canucks in '05.
|
|
 IP Logged |
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender: 
Posts: 3757
|
|
Re: another newbie
« Reply #1 on: May 11th, 2004, 3:22pm » |
Quote Modify
|
Hi Jeremy and welcome.
Have you looked into oxygen therapy? It's also been a Godsend for many.
C'mon over and visit us at O.U.C.H. Canada - we started our website in January of this year and have a number of Canadian clusterheads there now. We have a message board like this one and, uh, we've also got a hockey pool on the go!! http://clusterheadaches.ca
GO FLAMES GO!! Canucks in '05, indeed! 
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: another newbie
« Reply #2 on: May 18th, 2004, 2:06pm » |
Quote Modify
|
Well, just don't stand around out there looking in the windows, wipe your feet and come on in.
Welcome to the website.
Gator
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss