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Topic: They could do with advice (Read 1276 times) |
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Ghost
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Re: They could do with advice
« Reply #25 on: Jan 17th, 2006, 5:33pm » |
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Looks like donna's is the only unedited one with the link so far. ooops maybe I shouldn't have said anything they will clip it out too.  
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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Jonny
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Re: They could do with advice
« Reply #26 on: Jan 17th, 2006, 5:38pm » |
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Im pretty sure that when I registered there was something about not posting links, lets be glad they left DD's link up.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Ghost
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Re: They could do with advice
« Reply #27 on: Jan 17th, 2006, 5:41pm » |
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funny part is most prior have links attached. for their busness which is what they are pushing. its kinda funny you know that they wipped the others out. God I love open forums!
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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Sandy_C
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Re: They could do with advice
« Reply #28 on: Jan 17th, 2006, 6:01pm » |
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I just posted this message on their forum
Angelfish, I am so sorry that you are suffering with cluster headaches. I, too am a CH sufferer.
Cluster headaches are the most debilitating, painful headaches known to mankind (and womankind). There is no other headache like it, and there is no known cure, at this time, although studies are finally beginning. So at this time, all we can do is hope. In the meantime, we sufferers will try almost anything to relieve our misery. If the routes you have/will take are helping you, then please share your experiences with the rest of us. However, there are many other methods that help CH sufferers as well, not necessarily using pharmaceutical drugs.
I note, in reading through this thread, that Amelia has edited the posts from bfull2 and seasonal bloomer on the topic of cluster headaches, both of whom I know are CH sufferers and I'm asking why?
To Amelia, why have you edited posts from cluster headache sufferers who have found this forum through their research into CH, and are only trying to provide information to one of your forum members? Is there something in our posts that frightens you, or makes you uncomfortable? We are not advocating the use of drugs, whether legal or illegal, all we are trying to do is help a fellow CH sufferer by offering other websites that dedicated to putting forth factual information on CH, and suggested methods of dealing with our affliction. If you feel this is wrong for us to do this, then you are doing a disservice to Angelfish and to other members of your forum who might also be CH sufferers. Please allow us to share our experiences with your forum members, unedited, and we welcome you and your members to visit our forums at clusterheadaches.com.
Sandy
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pattik
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Re: They could do with advice
« Reply #29 on: Jan 17th, 2006, 6:05pm » |
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I guess you and goatie are still awaiting approval as of right now 
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Jonny
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Re: They could do with advice
« Reply #30 on: Jan 17th, 2006, 6:14pm » |
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on Jan 17th, 2006, 6:01pm, Sandy_C wrote:To Amelia, why have you edited posts from cluster headache sufferers who have found this forum through their research into CH, and are only trying to provide information to one of your forum members? Is there something in our posts that frightens you, or makes you uncomfortable? We are not advocating the use of drugs, whether legal or illegal, all we are trying to do is help a fellow CH sufferer by offering other websites that dedicated to putting forth factual information on CH, and suggested methods of dealing with our affliction. If you feel this is wrong for us to do this, then you are doing a disservice to Angelfish and to other members of your forum who might also be CH sufferers. Please allow us to share our experiences with your forum members, unedited, and we welcome you and your members to visit our forums at clusterheadaches.com.
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I like that!!! 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Kevin_M
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Re: They could do with advice
« Reply #31 on: Jan 17th, 2006, 6:42pm » |
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editor's note on the site by Ameliajane:
Quote:| This thread will now be locked due to spam posts |
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the previously posted misinformation before being brought here will also not be read.
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| « Last Edit: Jan 17th, 2006, 6:57pm by Kevin_M » |
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nani
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Re: They could do with advice
« Reply #32 on: Jan 17th, 2006, 6:44pm » |
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Hmmm...I just registered and posted there and now I can't open the site at all. 
All I did was provide the same links Donna did.
Spam?
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Others may come and go, but MY power is MINE.
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chewy
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Re: They could do with advice
« Reply #33 on: Jan 17th, 2006, 6:46pm » |
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Quote:| This thread will now be locked due to spam posts |
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The Truth: AKA the arch enemy of scammers, witch doctors, and snake oil salesmen.
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mcf69
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Re: They could do with advice
« Reply #34 on: Jan 17th, 2006, 8:17pm » |
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Quote:This thread will now be locked due to spam posts
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I could see that one coming, you know how.......
The tarot cards told me
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Opus
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Re: They could do with advice
« Reply #35 on: Jan 17th, 2006, 9:51pm » |
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Ghost
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LOL that says it all, did you post a link to goatse?
Opus/Paul
PS The reason they see it as spamming is becouse the same links were posted more than once, Donna's links are still there, I'm sure if other peaple posted diffrent links they would still be there too.
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sandie99
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Re: They could do with advice
« Reply #36 on: Jan 18th, 2006, 3:34am » |
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Personally, I'm glad that you guys gave them advice/tried to do that. I've learned so much about CH right here. It seems to me that there are some gatekeepers at that site who don't know that much about CH, though. That's a shame to those who suffer CH and don't know about CH.com yet.
Sanna
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chewy
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Re: They could do with advice
« Reply #37 on: Jan 18th, 2006, 7:31am » |
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The thread is locked. Check it later. There might be a new thread. 
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PollyPocket
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Re: They could do with advice
« Reply #38 on: Jan 18th, 2006, 7:44am » |
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Sandy, this was the reply to your post.......
"Hi Sandy
I'm sure you're already aware that all that has been edited from the post are the links to your forum, I have left them in D.D's post as I feel that they only need to be mentioned once & I hope that someone will benifit from any help & advice that your forum can offer.
I can assure you that there is nothing in your post that worries me, as you are already aware, HP does not allow the forums to get spammed by links!
Please feel free to join in the forums with an open mind
Regards Amy"
Your post was excellent, btw 
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Sandy_C
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Re: They could do with advice
« Reply #39 on: Jan 18th, 2006, 8:18am » |
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Hmmmm. I guess that makes us spammers. Who knew???
Sandy
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Lean on me when you're not strong
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I'll help you carry on
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burnt-toast
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Re: They could do with advice
« Reply #40 on: Jan 18th, 2006, 10:00am » |
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You're a bunch of spammers that didn't sign up with open minds.
They can't handle the truth!
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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Ghost
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Re: They could do with advice
« Reply #41 on: Jan 18th, 2006, 10:09am » |
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Ok guys This was my post there in case you didnt get to read it
Quote:I hope that you are able to find relief in the ways priorly mentioned but if relief takes more than an hour the chances are pretty good it was just the end of the attack. It almost looks like people are trying to push things they may profit from. I hope you are able to try looking deeper into treatments from unbiased sources. Alot of witch doctors selling snake oil out there and I hope you really look before buying. I have had Cluster Headaches as long as I can remember and there is no cure so far, but there is viable treatments. Any meds you take check with a doctor first and dont be afraid to get a second opinion. Good Luck
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Did I did good?
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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sandie99
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Re: They could do with advice
« Reply #42 on: Jan 18th, 2006, 10:14am » |
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Yep, they can't handle the truth.
Ghost, I wish I'd seen your post in there.
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Ghost
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Re: They could do with advice
« Reply #43 on: Jan 18th, 2006, 10:19am » |
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See all I did was warn them about the spammers, acupuncture, meditation, massage therapy, ect... but I didnt name names I just warned and gave advise to check doc and if necessary get 2nd opinion.
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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chewy
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Re: They could do with advice
« Reply #44 on: Jan 18th, 2006, 11:39am » |
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R US
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Gator
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Re: They could do with advice
« Reply #45 on: Jan 18th, 2006, 1:31pm » |
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on Jan 17th, 2006, 9:51pm, Opus wrote:Ghost
Posts: 1
Joined: 17 January 2006,
Status: offline [Awaiting Approval]
LOL that says it all, did you post a link to goatse?
Opus/Paul
PS The reason they see it as spamming is becouse the same links were posted more than once, Donna's links are still there, I'm sure if other peaple posted diffrent links they would still be there too. |
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I did post a different link - I posted a link to the IHS Headache Diagnostic Guide so they could look up the symptoms of CH as well as what other headache they were having. That link was deleted, also. Scratch that notion.
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Ghost
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Re: They could do with advice
« Reply #46 on: Jan 18th, 2006, 1:56pm » |
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Ya know I think the problem was we are not selling a product and only trying to sell experience! all the posts with there buisness links are still in tact. See we are doing it wrong we need to sell something to show we know what we are talking about.
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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Jonny
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Re: They could do with advice
« Reply #47 on: Jan 18th, 2006, 1:58pm » |
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Send a link to their website to Ali
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BarbaraD
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Re: They could do with advice
« Reply #48 on: Jan 18th, 2006, 2:09pm » |
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That's why so many CHers are still in the dark. Wish there was something we could do about stuff like this, but...... thank goodness we have Clusterville....
Hugs BD
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Ghost
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Re: They could do with advice
« Reply #49 on: Jan 18th, 2006, 2:14pm » |
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on Jan 18th, 2006, 1:58pm, Jonny wrote:| Send a link to their website to Ali |
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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