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Chonas
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Mental Control
« on: Jan 15th, 2006, 10:55am » |
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My wife is putting a lot of pressure on me about something that I had never heard before, she calls it 'Mental Control', and says this is something that should allows us to avoid the pain via some kind of discipline or technique. I have been safe till now with answers like: 'to achive what you suggest I should first have a mind...'.
Have you ever heard anything like this before?. What is this?. Thanks in advance.
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Richr8
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I'd start by saying..
« Reply #1 on: Jan 15th, 2006, 11:32am » |
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it's easy for someone to say who has never had a CH. Good luck? Also, I think it is what is I use every day while in cycle to keep from killing myself.
Rich
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
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Jonny
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Re: Mental Control
« Reply #2 on: Jan 15th, 2006, 11:46am » |
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Ask your wife if you can smash a frying pan into her head, if she says no tell her to leave you and your pain alone.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BarbaraD
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Re: Mental Control
« Reply #3 on: Jan 15th, 2006, 1:29pm » |
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They tried that at the Houston Headache Clinic and I told them a few heated things...... I'm with Jonny on this one - until someone goes thru it.....
I do try to FOCUS on something - anything to get my mind off the pain, but I don't think you can block it out - Mental Control might work on some types of pain, but not this type.....
Hugs BD
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What don't kill ya, Makes ya stonger!
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Karla
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Re: Mental Control
« Reply #4 on: Jan 15th, 2006, 5:17pm » |
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I have tried biofeedback which consists of focusing on something and deep breathing and getting into a relaxed state. It did nothing for my clusters. I agree with Jonny. Tell your wife to back off until she walks in your shoes. Don't waste your time on that and try oxygen, imitrix, verapamil or predisone or lithium or something that is apt to be more helpful. Good luck!
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Karla
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Chonas
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Re: Mental Control
« Reply #5 on: Jan 15th, 2006, 6:29pm » |
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Thanks a lot to all of you.
I've already smashed a frying pan into her head 
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Kevin_M
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Re: Mental Control
« Reply #6 on: Jan 15th, 2006, 6:57pm » |
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on Jan 15th, 2006, 6:29pm, Chonas wrote:| she calls it 'Mental Control', and says this is something that should allows us to avoid the pain via some kind of discipline or technique. |
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Well, if she was to ever get diarrhea, just tell her to use mental control. Juuuuuuust takes discipline and technique and she should avoid any messes. 
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| « Last Edit: Jan 15th, 2006, 7:15pm by Kevin_M » |
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CrazyDog
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Re: Mental Control
« Reply #7 on: Jan 15th, 2006, 8:02pm » |
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LOL!
You all had me rolling out of my chair with your responses and if you want to talk about mental control.
Maybe she could try holding an oxygen mask on her face with one hand, while toting an oxygen bottling behind her with other hand and run down the street at 2:30am in the morning with eyes mostly closed with what feels like someone jabbing a red hot poker in your eye without hitting any cars or falling down for 20 minutes, its not easy, especially making corners without tipping oxygen bottle.
Hehe!
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| « Last Edit: Jan 15th, 2006, 8:04pm by CrazyDog » |
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WaltD
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burnt-toast
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Re: Mental Control
« Reply #8 on: Jan 15th, 2006, 8:17pm » |
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Tell the wife that I've used mental control to deal with a broken arm and even a broken leg, but CH is way out of the range of mental control.
Once CH takes over the best you can hope to do is survive the pain and not beat your own brains out attempting to make it go away.
Sorry, but Mrs. Chonas obviously doesn't comprehend the repetitive, intense/unearthly pain associated with CH.
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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Chonas
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Re: Mental Control
« Reply #9 on: Jan 15th, 2006, 9:01pm » |
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Dear fellows, I've asked my wife to read all these msgs, she recognizes (I'm not so sure about this...) that she has a big mouth and from now on she'll stop bothering her clusterhead husband.
Now she also wants to know if Tarot would be of any help... 
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BarbaraD
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Re: Mental Control
« Reply #10 on: Jan 16th, 2006, 7:25am » |
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Maybe you hit her too hard with the frying pan....
Hugs BD
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Beastfodder
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Re: Mental Control
« Reply #11 on: Jan 16th, 2006, 7:49am » |
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on Jan 15th, 2006, 9:01pm, Chonas wrote:Dear fellows, I've asked my wife to read all these msgs, she recognizes (I'm not so sure about this...) that she has a big mouth and from now on she'll stop bothering her clusterhead husband.
Now she also wants to know if Tarot would be of any help... |
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Depends on the accuracy of the Tarot reading - 'I see a large frying pan travelling towards your forehead' could be a popular reading.
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O2 and clusterbusters - naturally
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Chonas
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Re: Mental Control
« Reply #12 on: Jan 16th, 2006, 8:24am » |
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People find very difficult to understand or imagine, how much pain we have to experience, as well as its intensity or the amount of time of each cycle, if we add to this that a chronic condition is also out there, then it becomes almost impossible to explain.
I've tried to explain it a couple of times, but people looked at me as if I had risen from the grave.
This place, this webpage, this forum, YOU PEOPLE are the only family that can understand what we're talking about and you're always ready to help.
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chewy
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Tarot wont help. A Ouji Board might though. Depends on how hard you smack her with it.
Ouji Board Tip: When smacking your wife in the kisser, keep the board folded in two.
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Bob_Johnson
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Re: Mental Control
« Reply #14 on: Jan 16th, 2006, 9:15am » |
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I have not seen any mental health literature which suggests that these approaches could alter the mechanisms causing cluster.
It is possible--a well research approach is available--to reduce the emotional distress which many folks develop in response to cluste. While we cannot reduce the pain it is possible to reduce the suffering (this being the emotional response to the physical pain).
The material I have is too long to post here but, if you are interested, send me you e-mail address and I'll send it to you.
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Bob Johnson
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floridian
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Tarot Cards?
Ask her if she goes to a psychic when she gets a toothache, or a dentist. If she broke her arm, would she go to a surgeon to x-ray it a make a cast, or would she ask Madam Ruby to swing a pendulum over it.
The mind can have some influence on some clusters - I found that since changing jobs and having a more regular sleep schedule, the CH cycles are less severe. I also developed my mental strength to avoid getting hot in the summer, which means less triggering. Visualize Air Conditioning in your concious and subconcious mind... and Make it So!
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| « Last Edit: Jan 16th, 2006, 9:22am by floridian » |
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seasonalboomer
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Re: Mental Control
« Reply #16 on: Jan 16th, 2006, 9:17am » |
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Your wife needn't feel too bad about the advice. For those outside of our own heads it seems as though it should be something that can be controlled. Spending the time to educate her about the physiological components involved with these things can yield great results. My wife, after I shared much of the information gleaned from this site, had a greatly enhanced respect for not only what we go through but also is far more appreciative of the times when I am a "trooper" and make efforts to minimize the impact that CH has on our lives. And far more appreciative of efforts made to try new things to combat the beast.
My wife used to think their was mental component to it, that if I talked about them, or got around my Dad (also a sufferer) that if I got a cycle around anything like that she would attribute it to some kind of psychosomatic thing. SHE DOESN'T DO THAT ANYMORE. All without the aid of any cast iron skillets.
Good luck.
Scott
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imnotbub
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Re: Mental Control
« Reply #17 on: Jan 16th, 2006, 10:36am » |
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My wife still thinks I'm exagerating. She gets the occasional migraine and thinks I don't know what pain is. If only SHE knew.
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Life may not be good, but I think it beats the alternative, and if it doesn't, we'll find out soon enough
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Guiseppi
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Re: Mental Control
« Reply #18 on: Jan 16th, 2006, 11:31am » |
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My wife is a great supporter, but it took a lot of education. (I will be printing out all of these responses and will insist she reads them. She used to be quite liberal with her advice to me!)
She was actully the one who found this site for me as she is far more computer literate then I! After working through the board she has become the queen of CH supporters. Wives ar like our doctors and our co-workers, it'a always a matter of educating.
Guiseppi
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Margi
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Re: Mental Control
« Reply #19 on: Jan 16th, 2006, 12:02pm » |
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Thanks, Guiseppi and Scott, for some positive words about supporters. This thread just makes me sad. Unbelievable that, after all these years, it's still an "us against them" 'tude around here. 
Chonas, maybe your wife is just trying to HELP you... maybe she's talking about trying to calm down during attacks. My hubby says it's the hardest work he's ever done is to teach himself to stay calm and just breathe through his attacks. But it has helped him immensely. Maybe that's what your wife is talking about?
We KNOW we can't feel your pain, sufferers. Do you ever stop to think how hard that is for US? And how hard it is for us that we can't stop your pain? Don't you think we WOULD take your pain if we could?
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| « Last Edit: Jan 16th, 2006, 12:42pm by Margi » |
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chewy
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Quote:| This thread just makes me sad. |
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I knew that.
Know how I knew?
Ouiji Board.
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Chonas
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Re: Mental Control
« Reply #21 on: Jan 16th, 2006, 12:13pm » |
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Hi Margi, I'm absolutely sure that my wife is trying to help me, I never said she wasn't trying to help me or thought so, I've only asked a couple of things here that she suggested me, and about which I had no idea, now I have a better knowledge how these things may apply.
She's also read most of these msgs and she now has a better understanding.
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seasonalboomer
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Re: Mental Control
« Reply #22 on: Jan 16th, 2006, 12:37pm » |
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on Jan 16th, 2006, 12:02pm, Margi wrote:Thanks, Guiseppi and Scott, for some semi-positive words about supporters. This thread just makes me sad. Unbelievable that, after all these years, it's still an "us against them" 'tude around here.
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Well, then here's your semi-"your welcome" for the semi-"thank you" Margi.....
scott
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| « Last Edit: Jan 16th, 2006, 12:40pm by seasonalboomer » |
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Margi
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Re: Mental Control
« Reply #23 on: Jan 16th, 2006, 12:41pm » |
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I'm sorry, Scott, your post WAS really nice about your wife. I retract the word 'semi'.
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kathy copelin, ch.com 8/8/06
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nani
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Re: Mental Control
« Reply #24 on: Jan 16th, 2006, 12:55pm » |
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That was nice, Scott. WTG
This thread was troubling, it sounded like a cheer squad for spousal abuse for a bit. Now, that said:
I would make a crappy supporter. I have little patience for drama queens and wimps. (and frankly, unless you've had a CH, the whole "routine" looks a bit dramatic from the outside) If my poor hubby was the one with CH, well, I'm pretty sure he'd be saying some not nice about me to you. He's an amazing supporter, I'm very lucky. We're not all as good as he and some of the amazing supporters who post on this board. I'm not, anyway. So, you work with what you have, and move forward...
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