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Topic: Not getting my hopes up (Read 907 times) |
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ScottEinDC
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Not getting my hopes up
« on: Jan 18th, 2006, 2:58pm » |
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This morning a shadow started creeping in. Since my insurance time frame for my prescription is running low I thought I would try something else. I took a "Goody's Extra Strength Headache Powder" with a giant glass of water. No less than five minutes later...and still five hours later, nothing! Coincidence? I hope not...but I'm also not counting my chickens.
Anyone else try this?
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Karla
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Re: Not getting my hopes up
« Reply #1 on: Jan 18th, 2006, 4:29pm » |
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I have heard of one other person having luck with that for the lower level ch. (shadows)
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Karla
suffer chronic ch
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Proud Mom of Chris USMC Semper Fi
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upnover
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Re: Not getting my hopes up
« Reply #2 on: Jan 18th, 2006, 5:17pm » |
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about 10 yrs ago i did'nt have ins. so I'd try all kinds of stuff.. My favorite fo shadows were a dr. Pepper and a snickers bar I look back now i have to laugh. But I also had luck w/ BC powder and Dr.Pepper
Good Luck
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Tom
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ScottEinDC
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Re: Not getting my hopes up
« Reply #3 on: Jan 18th, 2006, 7:37pm » |
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upnover: A YUMMY prescription if I've ever heard of one.
OK, had another shadow this evening, tried it again...same results...within five minutes, gone....will keep updating this as I try it.
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marlinsfan
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Re: Not getting my hopes up
« Reply #4 on: Jan 18th, 2006, 9:47pm » |
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I kill shadows with coffee. Works most of the time.
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BarbaraD
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Re: Not getting my hopes up
« Reply #5 on: Jan 19th, 2006, 5:15am » |
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The powders (I use Excedrin ES) will kill a shadow, but be CAREFUL - they will also cause rebounds if you use them too frequently. Coffee will work most of the time for me. And of course O2.
Hugs BD
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What don't kill ya, Makes ya stonger!
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ScottEinDC
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Re: Not getting my hopes up
« Reply #6 on: Jan 19th, 2006, 8:18am » |
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Yesterday was very interesting.
I had the shadow come on three times.
90% of the time my shadows become full CH hits. Not yesterday. The first was in the morning (10a) and I knocked it out with the headache powders. The second was in the evening (7p), knocked that one out with the powders. The third came around 9pm and I felt that it wasn't smart to try a third powder, so at that point, I used my Maxalt as prescribed and that worked. So, essentially a pain free day....minus the shadows.
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upnover
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Re: Not getting my hopes up
« Reply #7 on: Jan 19th, 2006, 10:36am » |
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Is this a new cycle? ..If so I have found that when I have not had a cHA for a few months and then out of the blue my shadows start thats when i'm starting a new cycle.I hope thats not your case.
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Tom
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zwibbs/Scott
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Stay Strong !!!
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Re: Not getting my hopes up
« Reply #8 on: Jan 19th, 2006, 10:44am » |
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Hey Scott---If it works for you-GREAT !!! Keep updating on how this whole thing progresses.
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There's always light at the end of the Tunnel.
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ScottEinDC
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Re: Not getting my hopes up
« Reply #9 on: Jan 19th, 2006, 11:23am » |
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upnover: this is one cycle for the past three months now! Ahhhhhhh.
Zwibbs/Scott: I have a feeling I might need to agree with Barbara's statement earlier...careful for the rebounds. I've already been hit three times today and it isn't even noon!! A new record....Maybe I've pissed our friend off by not letting him do his business yesterday that he's going to totally eff my day up!
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upnover
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Re: Not getting my hopes up
« Reply #10 on: Jan 19th, 2006, 11:45am » |
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I could'nt imagine a 3 mth cycle i'm sorry to hear it for you
good luck in your quest
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Tom
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E-Double
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Re: Not getting my hopes up
« Reply #11 on: Jan 19th, 2006, 12:01pm » |
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on Jan 19th, 2006, 11:45am, upnover wrote:I could'nt imagine a 3 mth cycle i'm sorry to hear it for you
good luck in your quest |
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Then you couldn't imagine some here who have been 20+ yrs chronic.
It sucks to have just one attack imagine decades worth non stop
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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MJ
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Re: Not getting my hopes up
« Reply #12 on: Jan 19th, 2006, 12:02pm » |
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Scott, glad you got a wee bit of a break anyways.
on Jan 19th, 2006, 11:45am, upnover wrote:I could'nt imagine a 3 mth cycle i'm sorry to hear it for you
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upnover - many here cant remember way back when they only had them for 3 months. Some began many, many years ago.
welcome by the way.
MJ
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MJ
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RichardN
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Re: Not getting my hopes up
« Reply #13 on: Jan 19th, 2006, 12:16pm » |
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When my wife found this site 2/02, had done the MRI, CTs, doc first prescribed Vioxx, then Atenelol in increasing doses . . . didn't help. I was at that time having 6-8 attacks a day and was taking 8-10 Goodies powders a day, logic being that in powder form it would get into my system faster, so, when I felt another coming, down the Goddies and start the dance til the "whoosh" and gone . .. . usually within 20 minutes. Then of course I found you guys and learned that most CH attacks are in the 20 min range and will go on their own . . . . . mostly I was just eating up my stomach.
If it works for you . . . . go for it. Since oxygen entered my life, I haven't taken a powder.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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sandie99
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Re: Not getting my hopes up
« Reply #15 on: Jan 19th, 2006, 1:13pm » |
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Scott,
I hope it keeps on working! 
I once killed ch hit with ice cream... too bad it worked only once, but it sure was yummy.  Good luck!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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