Author |
Topic: Anybody get twitches ? (Read 2688 times) |
|
Mack
New Board Newbie
Gender: 
Posts: 24
|
 |
Anybody get twitches ?
« on: Feb 20th, 2008, 1:13am » |
 Quote  Modify
|
Hello All,
It's been awhile since I've logged on...almost five years!! Mostly PF since I quit smoking 4 1/2 years ago. But this cycle is kicking my butt!! Been going 6 weeks now. I think (read: hope)the worst is over as attacks have been fewer and somewhat less intense, probably from medrol taper.
Anyway, this cycle has a new 'feature'. Just before an attack, I get what feels like muscle contractions on the right side of my head and twitches under my right eye(pain side), on the bridge of my nose, and upper lip. I mentioned this to my neuro and will probably get an mri soon.
Just wondering, does anybody else has any kind of similar tics or twitches?
Mack
|
|
 IP Logged |
|
|
|
outofcommission
CH.com Alumnus
New Board Veteran
damn......no place to park
Gender:
Posts: 179
|
|
Re: Anybody get twitches ?
« Reply #1 on: Feb 20th, 2008, 1:21am » |
Quote Modify
|
i have had twitches in my right cheek and my right foot. usually from a peek until the end of the ride. glad to hear you are smoke free. i usually have about 4 to 5 years between cycles too.
|
|
IP Logged |
that which does not kill you will only make you crazy, obsessive, and sleep deprived
|
|
|
thomas
CH.com Alumnus
New Board Hall of Famer
"Hit like a phillips head into my brain."
Gender:
Posts: 3281
|
|
Re: Anybody get twitches ?
« Reply #2 on: Feb 20th, 2008, 8:53am » |
Quote Modify
|
Yep, get the old eye twitch quite a bit before, during and after a cycle.
|
|
IP Logged |
Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
|
|
|
midwestbeth
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 834
|
|
Re: Anybody get twitches ?
« Reply #3 on: Feb 20th, 2008, 9:28am » |
Quote Modify
|
I have eye twitches all the time. Mostly on right (non-cluster side), the left eye gets twitchy too, just not as bad as the right.
Beth
|
|
IP Logged |
Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
~ John Rhodes
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: Anybody get twitches ?
« Reply #4 on: Feb 20th, 2008, 10:08am » |
Quote Modify
|
Blepherospasm--a nice fat Latinism to sling about.
I find that unlike "tic" or "twitch", "blepherospasm" elicits a simulacrum of tender concern in the listener. It's a nice word to use if you'd like a bit of uncomprehending solicitude and social grooming.
Yeah, I get eye-twitches too, particularly in cycle.
Best,
George
|
| « Last Edit: Feb 20th, 2008, 10:25am by George_J » |
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
sogna
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 9
|
|
Re: Anybody get twitches ?
« Reply #5 on: Feb 20th, 2008, 12:35pm » |
Quote Modify
|
Yep, I get the twitches also. I never correlated them with CH though. Should've known better..... 
~Sonia
|
|
IP Logged |
|
|
|
Sean_C
Guest
|
|
Re: Anybody get twitches ?
« Reply #6 on: Feb 20th, 2008, 7:17pm » |
Quote Modify
 Remove
|
I'm a twitcher. I've brought it up at the nuero, he said its nothing to worry about.
Sean...........................
|
|
IP Logged |
|
|
|
thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
Gender:
Posts: 2181
|
|
Re: Anybody get twitches ?
« Reply #7 on: Feb 20th, 2008, 9:46pm » |
Quote Modify
|
Eye twitcher.
thebb
|
|
IP Logged |
It wasn't me I didn't do it
|
|
|
Ob1kanobee
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 101
|
|
Re: Anybody get twitches ?
« Reply #8 on: Feb 21st, 2008, 12:09am » |
Quote Modify
|
I get eye twitches and arm twitches but NOT when I'm in cycle. Have found no corallation between it an CH
|
|
IP Logged |
|
|
|
Mack
New Board Newbie
Gender:
Posts: 24
|
|
Re: Anybody get twitches ?
« Reply #9 on: Feb 21st, 2008, 2:29am » |
Quote Modify
|
Thanks everyone.. I thought maybe it could be related to CH. I guess it might be interesting to know what percentage of CH'ers have the same twitches vs. non-CH.
Still would change the fact that its annoying as hell  My wife says I looking like I am trying to give myself a vulcan mind meld when I'm trying to calm the twitches. 
Mack
|
| « Last Edit: Feb 21st, 2008, 2:30am by Mack » |
IP Logged |
|
|
|
DragonSlayer
New Board Veteran
That pain is only 1/2 as bad as you think it is!!!
Gender:
Posts: 132
|
|
Re: Anybody get twitches ?
« Reply #10 on: Feb 21st, 2008, 2:56am » |
Quote Modify
|
on Feb 21st, 2008, 2:29am, Mack wrote:Thanks everyone.. I thought maybe it could be related to CH. I guess it might be interesting to know what percentage of CH'ers have the same twitches vs. non-CH.
Still would change the fact that its annoying as hell My wife says I looking like I am trying to give myself a vulcan mind meld when I'm trying to calm the twitches.
Mack |
|
LOL  That's a pretty standard position for this clusterhead during and shortly after a hit.
I was doing this during attacks - messaging several pressure points at the same time with one hand - when I saw it on Star Trek. I couldn't believe it!!! From that time on I connected with the Mr. Spock character. He looked like he understood a CH hit. Wrenching pain, sometimes screaming, followed by near exhaustion when it was over.
Chit maybe these CH's are caused because of the Vulcan blood in my system. 
Maybe there are other vulcans out there LOL!!
See below.
|
| « Last Edit: Feb 21st, 2008, 3:16am by DragonSlayer » |
IP Logged |
Mr. Spock tried Vulcan mind meld during one of my K10 hits. You saw how he reacted on TV... then the movie "he's dead Jim"... But he came back....
|
|
|
superhawk2300
New Board Old Timer
Gender:
Posts: 440
|
|
Re: Anybody get twitches ?
« Reply #11 on: Feb 22nd, 2008, 10:59am » |
Quote Modify
|
aye - on the eye twitches, just one side though
|
|
IP Logged |
|
|
|
Kirk
CH.com Alumnus
New Board Hall of Famer
VINIMUS, VIDIMUS, DOLAVIMUS
    
Gender:
Posts: 1914
|
|
Re: Anybody get twitches ?
« Reply #12 on: Feb 25th, 2008, 7:21pm » |
Quote Modify
|
on Feb 20th, 2008, 1:21am, outofcommission wrote:| I have in my right foot. usually from the begining until the end of the trip. |
|
There I fixed it for ya brother. Hammer down 
|
|
IP Logged |
|
|
|
Redd
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 6661
|
|
Re: Anybody get twitches ?
« Reply #13 on: Feb 25th, 2008, 10:37pm » |
Quote Modify
|
(raises hand)
I'm an eye twitcher too.
|
|
IP Logged |
I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
|
|
|
Ungweliante
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 19
|
|
Re: Anybody get twitches ?
« Reply #14 on: Mar 30th, 2008, 4:40am » |
Quote Modify
|
Oh definitely.
Often it seems that during an attack, and sometimes more so when it's more severe, the muscles are contracting all over my body. Kinda like the somatic nervous system thinks that "Rosa is preoccupied with something else! Let's have a party, shall we?"
|
|
IP Logged |
|
|
|
LivingBarometer
New Board Newbie
adding a new dimension to"The time of the Season"
Gender:
Posts: 15
|
|
Re: Anybody get twitches ?
« Reply #15 on: Mar 30th, 2008, 10:09am » |
Quote Modify
|
Now that you've mentioned it I've got twitches too(left eye lid).
I can have these twitches anytime also when I'm not In a cluster episode(I'm episodic).
But I do also think it has something to do with stress.
For me CH and stress go hand in hand.
|
|
IP Logged |
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: Anybody get twitches ?
« Reply #16 on: Mar 30th, 2008, 11:21am » |
Quote Modify
|
Add my name to the list. Just under the left eye, same side as my CH
Kris
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
precipitate
New Board Newbie
Gender:
Posts: 14
|
|
Re: Anybody get twitches ?
« Reply #17 on: Mar 30th, 2008, 12:35pm » |
Quote Modify
|
Yup, absolutely. In fact, I was just about to come on here and start a topic about eyelid twitches during an attack and then saw this thread.
Mine specifically is my lower right eyelid on the same side of an attack.
-steven
|
|
IP Logged |
|
|
|
Braindead
New Board Newbie
No clue No cure
Gender:
Posts: 32
|
|
Re: Anybody get twitches ?
« Reply #18 on: Mar 30th, 2008, 2:25pm » |
Quote Modify
|
Twitches, Red HOT ears, buzz in my skull. I call this one thing I get a Star Cluster, feels like a million stars on my scalp all red hot (during the day).
Then theres the Cluster at night. The fore mentioned is all daytime stuff.
Some one said- somewhere I read and it fits perfect.
It's a "Dirty Headache"
Which to me- cuz I am into electronics is like a Dirty Electrical Signal. These things are weird and do lots of weird stuff to different folks.
|
|
IP Logged |
|
|
|
Kitty1973
New Board Newbie
I love YaBB 1G - SP1!
Posts: 37
|
|
Re: Anybody get twitches ?
« Reply #19 on: Mar 30th, 2008, 7:58pm » |
Quote Modify
|
I also get the eye twitches, right eyelid, same side as CH. I also noticed sounds in my head, kinda like little explosions, and then the pain really hits.
Kitty
|
|
IP Logged |
|
|
|
Sean_C
Guest
|
|
Re: Anybody get twitches ?
« Reply #20 on: Mar 30th, 2008, 8:08pm » |
Quote Modify
Remove
|
on Mar 30th, 2008, 7:58pm, Kitty1973 wrote:I also noticed sounds in my head, kinda like little explosions, and then the pain really hits.
Kitty |
|
Kitty how soon before your pain really hits hard??
|
|
IP Logged |
|
|
|
Kitty1973
New Board Newbie
I love YaBB 1G - SP1!
Posts: 37
|
|
Re: Anybody get twitches ?
« Reply #21 on: Mar 30th, 2008, 8:10pm » |
Quote Modify
|
The pain hits about 3 or 4 minutes after.
|
|
IP Logged |
|
|
|
Kitty1973
New Board Newbie
I love YaBB 1G - SP1!
Posts: 37
|
|
Re: Anybody get twitches ?
« Reply #23 on: Mar 30th, 2008, 8:19pm » |
Quote Modify
|
No he didn't Sean. What are they?
|
|
IP Logged |
|
|
|
Kitty1973
New Board Newbie
I love YaBB 1G - SP1!
Posts: 37
|
|
Re: Anybody get twitches ?
« Reply #24 on: Mar 30th, 2008, 8:20pm » |
Quote Modify
|
Sean,
I just checked out the link you gave. I don't think that is it, cause I had a CT scan done that came out normal about 2 weeks ago. No bleeding, no tumors.
Kitty
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss