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coach_bill
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Famous people with CH
« on: Apr 13th, 2008, 8:39am »
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is there anyone who may be famous, or a sports star or someone very known to have CH, i have heard of nobody like that. i have heard of sports stars getting migraines, like Jason Kidd and Terrell Davis, my reason for asking is just to see if there is someone famous to get the word out to media about this and use there pull to help with research. thanks. coach bill
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
debOUCH
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Re: Famous people with CH
« Reply #1 on: Apr 13th, 2008, 6:51pm »
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funny coach, i was thinking of this the other day.i take acting classes and i was wondering if any actors had...for i could not imagine how they would deal with.well, in live productions @ least.then i thought of sports figures also.............i did some brief"googling" on the computer, but i didnt find anything as of yet.....................i am glad u started this and will continue to do some research!
thanks
deb
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E-Double
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Re: Famous people with CH
« Reply #2 on: Apr 13th, 2008, 8:06pm »
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I don't know of any really famous people though it is possible that they too have been misdiagnosed as many of us have been.
 
we have a guy here who frequents the board ( I can't recall his screename) that is a relatively famous character actor. He appears on tons of sitcoms.
 
I wish I could remember.
 
And then there is me Cool
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Re: Famous people with CH
« Reply #3 on: Apr 13th, 2008, 9:02pm »
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The opera singer, Denyce Graves.
 
http://www.andante.com/article/article.cfm?id=26112
 
"I ran into some real vocal problems, serious ones. I had a problem with headaches, terrible headaches that they diagnosed as cluster headaches ... I was losing my voice. I was losing everything."
 
Best,
 
George
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Re: Famous people with CH
« Reply #4 on: Apr 13th, 2008, 10:27pm »
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on Apr 13th, 2008, 8:06pm, E-Double wrote:
I don't know of any really famous people though it is possible that they too have been misdiagnosed as many of us have been.
 
we have a guy here who frequents the board ( I can't recall his screename) that is a relatively famous character actor. He appears on tons of sitcoms.
 
I wish I could remember.
 
And then there is me Cool

 
His handle is Buckeyescooter.
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BarbaraD
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Re: Famous people with CH
« Reply #5 on: Apr 14th, 2008, 7:02am »
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There was a football player who had to be pulled out of a game (on TV) and given O2 because of CH a year or so back. He gave a press conference about it. (I think it was back in 2004). We sent him a T-shirt and a letter from OUCH, but never heard back from him.  
 
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Re: Famous people with CH
« Reply #6 on: Apr 14th, 2008, 9:58am »
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i found a thread on here from nov 26th of 2005 on this........did not have time to read  tho!
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Re: Famous people with CH
« Reply #7 on: Apr 14th, 2008, 2:04pm »
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I have four persons from Polish site about CH. I don't know where did they find those information maybe even on this site so you prolly know about these people but maybe not all of you Smiley
 
They are not "current stars", though. Still famous (especially two of them, dead).
 
1. Thomas Jefferson
Quote:
"I was under attack of periodical headache. This is the tenth day.It has been very moderate and yesterday did not last more than three hours."

2. Franz Kafka
 
3. Oddvar Nordli - former Norwegian prime minister, had to resign due to his cluster
 
4. Frank Capra - movie director
Quote:
"Suddenly a huge phantom bird sank three talons of its angry claws deeply into my head and face and tried to lift me. No warnings, no preliminary signs. Just wham! A massive, killing pain came over my right eye. I clutched my head, stumbled out to the broad lawns and over the hedges to the deserted tennis courts and then, there in the dark, I moaned, I panted. Ballooned my cheeks, blew out short bursts of air, licked my hot lips, wiped tears that poured out of my right eye, and clawed at my head trying to uproot the fiendish talons from their iron grip. One racking hour later the talons let go. The paroxysm eased as suddenly as it had convulsed. Euphoria set in. It's gone! Whopping headache, but it's gone!..."
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Re: Famous people with CH
« Reply #8 on: Apr 14th, 2008, 4:20pm »
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I know Davis had to sit out of during the Broncos vs. Packers Super Bowl a while back.  
 
Huge Broncos fan here!!!!
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Re: Famous people with CH
« Reply #9 on: Apr 16th, 2008, 5:55am »
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F.W. De Klerk, the president of South Africa who released Nelson Mandela and began the lifting of apartheid might have suffered from clusters. Researched this a little but would have had to get off my lazy butt and buy some books to confirm it.  
 
Also, director Frank Capra, who made "It's a Wonderful Life," "Mr. Smith Goes to Washington" and many other films.
 
-tommyD
 
Oh, and the world-renowned tommyD.
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Re: Famous people with CH
« Reply #10 on: Apr 16th, 2008, 12:27pm »
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on Apr 16th, 2008, 5:55am, tommyD wrote:

and the world-renowned tommyD.

 
Thats what I was going to say as well.  Smiley
 
MJ
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Re: Famous people with CH
« Reply #11 on: Apr 16th, 2008, 11:55pm »
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ok,  when i become famous  i will make sure the world knows about cluster headaches.....
 
i will form a world wide foundation and raise millions of dollars and give grants to find a cause and a cure.
 
i will ask brad and angelina to donate...
 
i'm not making fun,  i'm serious.  
 
i hope and plan to be rich and famous some day,  and it IS in my astrological chart,   and i Pledge to you all that i will bring world wide medical attention to this cause.
 
i love my CH sufferer and i will do whatever it takes to help him get better,  even if have to get rich and famous.
 
now yall better pray for me and send good vibes my way so i can get this done! Kiss
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Re: Famous people with CH
« Reply #12 on: Apr 17th, 2008, 1:03pm »
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I wouldn't wish a CH my worst enemy but imagine that one day someone really famous, with big influence becomes a sufferer (even for very short period of time) D: It would help us a lot :l
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Re: Famous people with CH
« Reply #13 on: Apr 17th, 2008, 1:39pm »
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on Apr 14th, 2008, 4:20pm, Lebowski wrote:
Huge Broncos fan here!!!!

We'll try not to hold that against you.
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Re: Famous people with CH
« Reply #14 on: Apr 17th, 2008, 6:29pm »
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on Apr 17th, 2008, 1:39pm, brewcrew wrote:

We'll try not to hold that against you.

 
 crackup
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Re: Famous people with CH
« Reply #15 on: Apr 17th, 2008, 11:01pm »
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I'm famous. My real name is actually Angelina. Cheesy  Seriously though... I cannot imagine with all the famous actors, singers, sports figures, writers, movie producers etc. that there aren't at least a few who suffer from ch. I would suspect that either they have been misdiagnosed or perhaps don't realize there are other sufferers like themselves.
 
In any case, I don't have a burning desire to be famous, except to become a published author someday. If that happens and I make a lot of money, I will most certainly use the profits to fund ch research. Hey, maybe I should write a book about ch... hmmm... thumb
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Re: Famous people with CH
« Reply #16 on: Apr 18th, 2008, 12:06pm »
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on Apr 17th, 2008, 11:01pm, KatzPurr wrote:
In any case, I don't have a burning desire to be famous, except to become a published author someday.  thumb

That's a dream you and I share. Smiley
 
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Re: Famous people with CH
« Reply #17 on: Apr 18th, 2008, 1:20pm »
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Certainly in these days of whoring out the juiciest of details in the world of celebrity that if someone did have CH, it would be known.
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Re: Famous people with CH
« Reply #18 on: Apr 18th, 2008, 2:09pm »
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on Apr 16th, 2008, 11:55pm, MinxKittten wrote:
ok,  when i become famous  i will make sure the world knows about cluster headaches.....
 
i will form a world wide foundation and raise millions of dollars and give grants to find a cause and a cure.
 
i will ask brad and angelina to donate...
 
i'm not making fun,  i'm serious.  
 
i hope and plan to be rich and famous some day,  and it IS in my astrological chart,   and i Pledge to you all that i will bring world wide medical attention to this cause.
 
i love my CH sufferer and i will do whatever it takes to help him get better,  even if have to get rich and famous.
 
now yall better pray for me and send good vibes my way so i can get this done! Kiss

 
Minx,
 
YOU GO BABE!  GET ER DONE!
 
You've got my vibes.  Just remember, when you are rich and famous, throw a bunch of money to DJ so he can keep this site up and running.
 
Sandy
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Re: Famous people with CH
« Reply #19 on: Apr 19th, 2008, 7:56pm »
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wow, great anwsers!! im still in research over this. i just cant beleive there are no really big stars or movie actors that would come out of their closets, and admit to their predgnazone addiction.!! geez, maybe their agents tell them no for the PR reasons, but rest easy every CH suffers leaves a paper trail, and coach bill is on it.!!
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debOUCH
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Re: Famous people with CH
« Reply #20 on: Apr 19th, 2008, 10:01pm »
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coach...........(BTW, or like, really a Coach?,,,,,haha).......ck out the old thread i mentioned peviously, i think from 2005.............something about Lisa Kudrow's father...........(the girl from Friends).havent had a chance to look thru entire thread.......... cool2.ps coach.my daughter is on the CWPost Lacrosse Team and they are #1 in the country!!!(she is a freshman goalie, not c in too much time, but....next yr!!...).they are going to Texas for the semifinals in May, and hopefully finals!!! they were the National Champs last yr!!!)
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Re: Famous people with CH
« Reply #21 on: Apr 19th, 2008, 10:28pm »
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on Apr 18th, 2008, 12:06pm, sandie99 wrote:

That's a dream you and I share. Smiley
 
Sanna

 
me too!  me too!!
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Re: Famous people with CH
« Reply #22 on: Apr 20th, 2008, 12:14am »
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Recently my wonderful wife ask that I post a message on here about writting to Dr. Oz at the Oprah show.  I realize your specifically asking for Famous People who suffer on this thread but none the less, if we all write to Oprah/Dr. Oz asking for Public Awareness and knowledge, if anybody can get the word out, OPRAH can....if she were to tell the world the sky is purple, people would then believe the sky is! She has that way about her and that Dr. is pretty darn knowledgeable! Just a thought....
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Re: Famous people with CH
« Reply #23 on: Apr 20th, 2008, 8:11am »
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Hey Braindead,
I was looking on Oprah's website and I dont see anywhere where you can write to her about suggestions for the show. Do have any idea on how to do it. I think it's a great idea, especially if we all did it. I think it's just as important as any other illness out there. Especially since it can be debilitating for some of us at times.
Thanks,
 
Pat
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Re: Famous people with CH
« Reply #24 on: Apr 20th, 2008, 6:38pm »
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on Apr 20th, 2008, 8:11am, syrs842 wrote:
Hey Braindead,
I was looking on Oprah's website and I dont see anywhere where you can write to her about suggestions for the show. Do have any idea on how to do it. I think it's a great idea, especially if we all did it. I think it's just as important as any other illness out there. Especially since it can be debilitating for some of us at times.
Thanks,
 
Pat

 
Maybe here?
 
If you (whole CH commnity) want to do something like that, I think that someone of the board admins should make a new topic and stick it on the forums (to be read by everyone).
 
In my opinion there are two ways to pay their attention:
1. everyone send a mail/request on his own, writing short story about her/himself and about our problems (which are not only about the pain, are they?)
2. we write a petition and collect as many signatures of CH suferers as possible (there are many good online petition systems I guess)
 
I think that one of this thing (or both :>Wink would work Tongue
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