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Topic: Who is who here to the newcommers (Read 24363 times) |
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marty
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Re: Who is who here to the newcommers
« Reply #25 on: Jun 22nd, 2005, 8:24pm » |
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To damn old. Born and raised in Sweden. Moved to San Diego in 1986.
Had CH for approximately 15 years, episodic - moved to Texas and that did not help (still episodic).
Divorced with 18 year-old son (living with his mom) who just graduated high school.
Marty
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aprilbee
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Ain't I a stinkah!!
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Re: Who is who here to the newcommers
« Reply #26 on: Jun 23rd, 2005, 4:36pm » |
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Sorry, no pics
I'm April Bee a/k/a aprilbee...not much of a stretch huh?
I'm 31 episodic, started when I was 8-9 diagnosed when I was 12
I'm married to Brett, the bestest husband in the whole world, he's that bad boy no girl could tame, then I got a hold of him.. he he he...he's a hockey player and, oh yeah totally hot!!...we have one girl, Dallis she's 12 she looks just like her dad...
my life changed when I found this place, I feel sane and blesed.... 
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Jonny
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Re: Who is who here to the newcommers
« Reply #27 on: Jun 23rd, 2005, 4:41pm » |
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Well, seeing that Svenn has beatin me over the head to do this...I will 
Jonny
30 years chronic (Not sure im still chronic)...
Have posted here everyday since 10/5/99...
The most important thing you must remember is that I am King of this joint, any disputes will be brought before me and I will make my judgement
You hear me?....I hear me!! 
Now get back to rowing....this ship of pain aint doing jack unless we row!! 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Kirk
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VINIMUS, VIDIMUS, DOLAVIMUS
    
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Re: Who is who here to the newcommers
« Reply #28 on: Jun 24th, 2005, 1:26am » |
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Hi:
I've been having these gruesome things since May 69. Which explains why I'm nearly half as crazy as Chuck.
This picture is of Carrie and I in front of one of her murals. She's been dating me for over 40 years. Which qualifies her for saint hood.
All I do, is a little fishing once in awhile.
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TomM
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Re: Who is who here to the newcommers
« Reply #29 on: Jun 24th, 2005, 12:13pm » |
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I'm TomM. Been here since Feb 1998. I'm 42 and been married 19 years. I was diagnosed in 1994 and am eposodic. I Live in Bowie, MD.
TomM 
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"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
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ExplodingEyeBall
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Re: Who is who here to the newcommers
« Reply #30 on: Jun 24th, 2005, 12:26pm » |
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I guess I'll post this in the right thread now.
For the newcomers....
My name is Pat. The cute one in the picture is my daughter Mackenzie (who can do no wrong). The guitars' name is Becky. I named it after my wife since I spent so much time restoring it.
I'm 42. I have 3 step kids and my daughter who is in the picture with me.
I live in N/W Indiana beneath the pollution and stench of Chicago and Gary. Please, get me out of here.
I work as a Microcomputer Specialist (Fancy word for computer technician) for the Lake County Library.
My hair used to be longer than jonny's till I made the mistake of telling my wife she could cut it when I turned 30. (A long time ago)
I have been an episodic Cluster sufferer for so long that I couldn't tell you when they started. The "eyeball" headaches have always been a part of my life.
I just recently (in the last year) got an actual diagnosis from a neuro. This web site has helped me more than anyone here will ever know.
I am a computer freak and a guitar collector/nut. I love to spoil my wife and my daughter as much as possible. There is no food in exsitance that is to spicey for me. Not that I've found yet.
Contrary to what people here think, I am not halfway insane.
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Just poke out my eye and get it over with!!!
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Barry_T_Coles
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Re: Who is who here to the newcommers
« Reply #31 on: Jun 28th, 2005, 12:41am » |
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Hi
I'm Barry from the Pilbara region in the north west of Australia.
Cant post a picture but then again these people are in enough pain without having to look at me.
Married for 34 years to a wonderfull woman who feels the pain with me.
2 children, daughter 32 and son 30.
Only been an episodic sufferer for the last 5 years and found this site through my doctor who came across it while looking for migrane related sites as her children suffer from them.
These people may sound like looney's some times but they sure give you some comfort in the knowledge they have and the ready and valuable advice.
My wacks last for about three months but this time I seem to have lasting shadows which is a whole lot better than full blown.
If you are new it's sad you are here but you are definately in good company.
Reading the posts that are put here leads me to think that the person who devised the LOONEY TUNES was a CH sufferer, you need to be that crazy to be able to do something like that.
PFD&N to all
Kind regards
Barry
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
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KMT
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Re: Who is who here to the newcommers
« Reply #32 on: Jun 28th, 2005, 12:08pm » |
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http://pg.photos.yahoo.com/ph/kimchipower66502/album?.dir=/mail
I suck at posting pictures so the very last picture in this album is me and my husband Danny.... Of 7 wonderful years...
I am 28
Had CH for less then a year.
First attack April 04 ended Aug 04
2nd attack End of Nov 04-present
CH episodic possibly going Chronic
Going on 8 mo. With minimal pain to kip 6/7 no really bad attacks in awhile (knock on wood)
Sensitivities: Cheep hairspray, strong airfresheners, Cologne, cigarett smoke, some alcohol thus far... Send me into an attack
Preventives: Take multivit. as well as fish oil and CQ10
Abortives: O2 and Imitrex injection
I am currently in KS but am from MT will probably end up in TX because my husbands parents live there and they are older then my parents.
Attending RN school starting 18 Jul 05 been an LPN for a year.
KimY
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aka...................................................... KimY
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E-Double
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Re: Who is who here to the newcommers
« Reply #33 on: Jun 28th, 2005, 1:45pm » |
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on Jun 28th, 2005, 12:08pm, Kim Y. wrote:
I am 28
Had CH for less then a year.
First attack April 04 ended Aug 04
2nd attack End of Nov 04-present
CH episodic possibly going Chronic
Going on 8 mo. With minimal pain to kip 6/7 no really bad attacks in awhile (knock on wood)
Sensitivities: Cheep hairspray, strong airfresheners, Cologne, cigarett smoke, some alcohol thus far... Send me into an attack
Preventives: Take multivit. as well as fish oil and CQ10
Abortives: O2 and Imitrex injection
I am currently in KS but am from MT will probably end up in TX because my husbands parents live there and they are older then my parents.
Attending RN school starting 18 Jul 05 been an LPN for a year.
KimY |
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There ya go
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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marlinsfan
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Re: Who is who here to the newcommers
« Reply #34 on: Jun 28th, 2005, 4:41pm » |
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I'm a newbie! I joined this group on May 30th, and you all saved my sanity. My first CH I remember I was a sophomore in high school (1982 I think, so about 23 yrs ago), and it came in the middle of my soccer practice. One hit, I don't know how long it lasted, but I ended up in the ER. The winter before that hit, I had two skiing accidents (I was bent over buckling my boot on the side of a trail, when someone out of control put his knee to my temple, same side I get HAs now, then a couple of months later I hit a tree), and the cycles started after that. Probably just coincidence. I'm pretty sure I've cycled every year but I'm not 100% certain. Always over the christmas holidays, until...... 3 years ago my cycle ended and I didn't cycle again until this April. I skipped 2 years, and the current cycle started about 3 months after my usual ending month. My friends and family thought of me as a grinch cause I hate december (you all understand why, but they don't!).
I was mis-diagnosed with migraines in 1996, right before I got married. My wife to be woke up while I was under attack and found me in the living room with my gun in my hand. She took me to the neuro. Brave soul, decided to marry me anyway! The neuro at the time attributed my "migraines" to stress caused by the upcoming marriage. I no longer own a gun.....
I am a finance director in a major credit card company. The company has been going through some restructurings, and I've been having back problems, which resulted in surgery right before my current cycle. My wife thought that my "migraines" were caused by the stress at work and the back. I almost started to believe it when I stumbled on this site. When my cycle started, I made a neuro appt to get my trex prescription renewed, so before my appt I went on Web-MD to see if there was anything new on migraines (it had been 3 years since my last one!). The term cluster headache came up somewhere in Web-MD and I yahoo'd the term and here I am. My new neuro confirmed the CH, gave me a prednisone taper, wrote me up for O2 and refilled my trex. I also take 9 mg of melatonin every night now.
I was born in Venezuela 37 years ago, I've lived in Italy (my first 5 yrs, dad is Italian), the US (Boston, Denver, Ft Lauderdale) for 19 years, the other 13 I lived in Venezuela. I proudly became a US citizen last year, and I now live in Hollywood, Florida. My wife of 9 years was born in Portugal and is a chef who owns her own catering company. We don't have kids, but are talking about having them.....
I asked E-Double to upload a pic for me cause I don't know how! The picture is me & my wife in Beaver Creek, Colorado this past February.
I'm also a fan of baseball. Currently a Marlins fan, have had season tickets since 1998, got to go to 2 world series games in 2003.
So that's me. Thank you thank you thank you for all your help, support, advice, encouragement. I've been on the site every day since May 30th. I've learned a ton, and I'm helping when I can.
Jose
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E-Double
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Re: Who is who here to the newcommers
« Reply #35 on: Jun 28th, 2005, 5:20pm » |
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on Jun 28th, 2005, 4:41pm, marlinsfan wrote:I'm a newbie! I joined this group on May 30th, and you all saved my sanity. My first CH I remember I was a sophomore in high school (1982 I think, so about 23 yrs ago), and it came in the middle of my soccer practice. One hit, I don't know how long it lasted, but I ended up in the ER. The winter before that hit, I had two skiing accidents (I was bent over buckling my boot on the side of a trail, when someone out of control put his knee to my temple, same side I get HAs now, then a couple of months later I hit a tree), and the cycles started after that. Probably just coincidence. I'm pretty sure I've cycled every year but I'm not 100% certain. Always over the christmas holidays, until...... 3 years ago my cycle ended and I didn't cycle again until this April. I skipped 2 years, and the current cycle started about 3 months after my usual ending month. My friends and family thought of me as a grinch cause I hate december (you all understand why, but they don't!).
I was mis-diagnosed with migraines in 1996, right before I got married. My wife to be woke up while I was under attack and found me in the living room with my gun in my hand. She took me to the neuro. Brave soul, decided to marry me anyway! The neuro at the time attributed my "migraines" to stress caused by the upcoming marriage. I no longer own a gun.....
I am a finance director in a major credit card company. The company has been going through some restructurings, and I've been having back problems, which resulted in surgery right before my current cycle. My wife thought that my "migraines" were caused by the stress at work and the back. I almost started to believe it when I stumbled on this site. When my cycle started, I made a neuro appt to get my trex prescription renewed, so before my appt I went on Web-MD to see if there was anything new on migraines (it had been 3 years since my last one!). The term cluster headache came up somewhere in Web-MD and I yahoo'd the term and here I am. My new neuro confirmed the CH, gave me a prednisone taper, wrote me up for O2 and refilled my trex. I also take 9 mg of melatonin every night now.
I was born in Venezuela 37 years ago, I've lived in Italy (my first 5 yrs, dad is Italian), the US (Boston, Denver, Ft Lauderdale) for 19 years, the other 13 I lived in Venezuela. I proudly became a US citizen last year, and I now live in Hollywood, Florida. My wife of 9 years was born in Portugal and is a chef who owns her own catering company. We don't have kids, but are talking about having them.....
I asked E-Double to upload a pic for me cause I don't know how! The picture is me & my wife in Beaver Creek, Colorado this past February.
I'm also a fan of baseball. Currently a Marlins fan, have had season tickets since 1998, got to go to 2 world series games in 2003.
So that's me. Thank you thank you thank you for all your help, support, advice, encouragement. I've been on the site every day since May 30th. I've learned a ton, and I'm helping when I can.
Jose
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Ree
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Re: Who is who here to the newcommers
« Reply #36 on: Jul 5th, 2005, 1:48pm » |
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Hi this is my family and thats me on the far right.... Dave is in the back.... He is the cluster sufferer.... Im just the sucker that loves him... My kids are the best.... keep me busy.... Im from Massachusetts (the land of jonny donny and seanny c) let's just say Boston rocks....
wishing you pain free cozy nights and days!!!!!! Ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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blood_Redd_son
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ph33r w17h gr347 ph34r!
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Re: Who is who here to the newcommers
« Reply #37 on: Jul 11th, 2005, 11:08am » |
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Hi!
My names Dylan. I'm 15 years old, use the Tarot, and have been a supporter for my mom since the beast got her again. My mom's a chronic, my dad's a episodic, and i don't know where i'll be if the demon hits me. this gets me and my mom worried sometimes, but it just might not happen. I'm also a newbie here. Just don't fight jonny for cheese....
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Cooked Brain
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Re: Who is who here to the newcommers
« Reply #38 on: Jul 15th, 2005, 9:00pm » |
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Cooked Brain, 27 teacher from Rotterdam Netherlands
left-side sufferer for over 10 years, treated the last 2. Found this place when I was on the edge, got help from these fantastic people and have been living better ever since...
To all the newbies: don't give up, stay strong, it WILL get better!
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Jeepgun
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Re: Who is who here to the newcommers
« Reply #39 on: Jul 30th, 2005, 11:10am » |
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Hi! I'm Frank, and this is my wife, Mari (rhymes with "starry" ) and our 7-year old daughter, Julia. Mari and I have been happily married for nearly 14 years, and it just gets better and better. 
On a grimmer note: I first began having CH about eight years ago, and thought I was dying... I didn't get properly diagnosed until two years ago. This site literally saved my life. By the time I got diagnosed, I had already planned out to the last detail, how I was going to commit suicide. 
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| « Last Edit: Jul 30th, 2005, 11:34am by Jeepgun » |
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Sandy_C
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Re: Who is who here to the newcommers
« Reply #40 on: Jul 30th, 2005, 12:43pm » |
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I have given up on trying to post a picture here. Have tried for three days and get nothing but a blank space. Hey, maybe that IS my picture .
Anyway, I'm Sandy, married to hubby Tarey for almost 36 years. We have two gorgeous grown daughters, one dog, one cat, three granddogs, two grandcats (can you tell I'm hoping to add something a little different to this "grand" list?). I design and sell parking lot lighiting for shopping centers, car dealerships, etc. (You never thought about that somebody actually did that did you? If you shop in a dark parking lot, it's not my stuff. Hey, somebody's gotta do it, why not me?)
My very first CH cycle started in summer of 1999 when I was heavily involved in planning daughter's wedding. Put the whole thing down to "stress" because the HA went away right after the wedding. Lo and behold, they came back about two years later, and have been coming and going ever since. Now that I know what I've got, I'm learning to live with it because of the people and information that I've found on this board.
Thanks you guys! Love and PFDAN to all of you.
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Lean on me when you're not strong
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I'll help you carry on
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Somebody to lean on
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jcmquix
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Re: Who is who here to the newcommers
« Reply #41 on: Jul 31st, 2005, 7:51pm » |
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HI all this is my Family:
jcmquix (Charlie - left)
whiteboy69 (Matt - Our Son - middle)
sassy_lady (Jolene - my Wife - right)
Eveyone has been posting here, jus thought it would be nice to put some faces to the names.
PFDAN's to ALL !!!
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space. (burnt-toast)
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Melissa
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Re: Who is who here to the newcommers
« Reply #42 on: Aug 6th, 2005, 8:03pm » |
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Hi, I'm Melissa, but pretty much everyone on here calls me Mel. I've been a ch sufferer for the past 15 years (since 1990) and a member of ch.com and OUCH since Sept. 2000. I am episodic with my cycles coming every other year lasting for about 6-7 weeks. I'm blessed to have a wonderful husband (Jesse), a daughter (Lily) and a son (Elijah).
To anyone new here: Welcome to the family, I am very sorry you have clusters, but you have found the right place. Oh, and please remember to read the links!
Take care,
mel
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| « Last Edit: Apr 21st, 2006, 10:44am by Melissa » |
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Jasmyn
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Re: Who is who here to the newcommers
« Reply #43 on: Aug 8th, 2005, 3:29pm » |
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Hi, I'm Jas. Living in Mozambique at the Southern end of Africa.
Pic with one of my oil paintings behind me.
I am 39 going on 40 and been a clusterhead for 14 years.
Have three wonderfull kids, Roxanne, Dominique and Arielle. Roxanne turned 18 today!
This site and these people were a lifesaver and still is.
(Thanks to Don, eventually this pc illiterate person can post a pic after all these years!)
Modified sorry lost my pic
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| « Last Edit: Nov 8th, 2005, 2:09pm by Jasmyn » |
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Jazz
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TxBasslady
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Re: Who is who here to the newcommers
« Reply #44 on: Aug 9th, 2005, 12:36am » |
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Hi,
My name is Jean...I am married, with 3 great sons, and 8 grandchildren.
I am currently retired. My career was spent in Law Enforcement/Sheriff's Dept.
I am a native Texan, born and raised in Houston. I am an avid bass fisherman, and spend most of my time at our lakehouse in Louisiana, on Toledo Bend Lake.
I found this site in January, 2001. I am an episodic sufferer, self diagnosed in January 2001 (thanks to DJ and this site), and professionally diagnosed in September, 2003. I currently take Kudzu for my CH, which has worked really well for me.
Welcome...to our world of CH. The love and friendship on this site will help you cope with your pain. Until there's a cure.....this is the best thing going.
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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sdlauri
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HA free this second
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Re: Who is who here to the newcommers
« Reply #45 on: Aug 18th, 2005, 10:19pm » |
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Hi Everyone,
I am so happy to find a place where someone can understand the knife in my brain. I just got diagnosed on Tuesday - after a couple of CTs, a couple of PCP appts and a trip to Urgent care. I am on Verapamil, Imitrex and if I get one at work I suck on some O2. I am glad I found you all.
Lauri
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Thank God for Statdose
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vig
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Re: Who is who here to the newcommers
« Reply #46 on: Aug 22nd, 2005, 2:59pm » |
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the pic is a good 10 years old.
that's former Chicago Bear Walter Payton....
ON THE LEFT!!!
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never, Never, NEVER quit. -Winston Churchill
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E-Double
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Re: Who is who here to the newcommers
« Reply #47 on: Aug 22nd, 2005, 6:16pm » |
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on Aug 22nd, 2005, 2:59pm, vig wrote:
the pic is a good 10 years old.
that's former Chicago Bear Walter Payton....
ON THE LEFT!!! |
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Sweetness Nice!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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kimmiedawn81
CH.com Alumnus
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Stuck in the middle with you!
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Re: Who is who here to the newcommers
« Reply #48 on: Aug 29th, 2005, 2:53pm » |
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Hi everyone! I'm Kim, I live in Edwardsville, IL, which is about 20 minutes away from St. Louis.....the home of the best baseball team in MLB.
I'm 24, I have a degree in Social Work and I'm working on finishing up my Massage Therapy degree.
I'm episodic, I have been having clusters for about 7-8 years and I got diagnosed about 5 years ago. I'm pretty lucky compared to others that suffered for much longer without a diagnosis.
I have a wonderful boyfriend and wonderful parents and I will be an Aunt for the first time in January. I'm having a little neice....YEA!
That's my life!
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seasonalboomer
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If I think hard enough maybe it'll go away.....
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Re: Who is who here to the newcommers
« Reply #49 on: Aug 30th, 2005, 8:07am » |
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I'm Scott or "seasonalboomer". Been a clusterhead since my mid-to-late twenties. Episodic with a couple cycles a year, usually lasting from 3-6 weeks in total. Clusterheadaches.com has changed my life inasmuch as it has helped and encouraged me to fight my Cluster Headaches instead of just taking them and waiting them out. Because of CH.com and these boards I now have my Kudzu, O2 and Imitrex. The triumvarate of weapons that feels like a big soft comforter to me now.
(Thanks BobP for putting my pic up)
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seasonal boomer
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