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   Author  Topic: New here... and a question  (Read 497 times)
gizmo
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267340390 267340390   gizmo68  


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New here... and a question
« on: Jan 17th, 2008, 5:03am »
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Hi all!
My name is Oliver and I'm form Germany and I'm really, really glad I've found this site.
 
My Doc just told me that I'm most likely suffering from CH and sent me to the neurologist (I'll meet him on Tuesday next week).
I'm currently not sure when all this started, but it could be easily 15 years ago.
 
Question: Since the Doc didn't prescribe me anything I wonder what I can do until next week.
I already know from a long trial and error period that the usual analgesic don't help.
Melatonin is not an option since it isn't freely available in Germany.
Any ideas / hints?
 
Thanks and please excuse my bad English,
Oliver
« Last Edit: Jan 17th, 2008, 5:31am by gizmo » IP Logged
Redbull_Junkie
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Taurine Rocks

   


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Re: New here... and a question
« Reply #1 on: Jan 17th, 2008, 6:58am »
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Howdy oliver
down a can of Redbull as soon as you feel the head commin on
its worked for me for 90%of my hits
painfree wishes
Kev
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gizmo
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267340390 267340390   gizmo68  


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Re: New here... and a question
« Reply #2 on: Jan 17th, 2008, 7:09am »
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Thanks for the suggestion.
I really hate the taste but I'll sure give it a try.
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chewy
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Re: New here... and a question
« Reply #3 on: Jan 17th, 2008, 7:47am »
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http://www.ouch-us.org/chgeneral/nonmed.htm
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hotprestwich
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Re: New here... and a question
« Reply #4 on: Jan 17th, 2008, 11:25am »
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Get some 02-it works
you can order mellatonin online
have that coffe pot on all the time, its great,
workks for me but the redbulls dont,
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imfareware
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Hello  Everyone!!

   
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Re: New here... and a question
« Reply #5 on: Jan 17th, 2008, 5:31pm »
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Wie getz?  
 
My O2 is helping me alot with my current cycle of CH's, mellitonine has helped at night, red bull and ice on the head.  Good luck, I hope your pain free soon!
 
In the US Army I spent 3 years outside Stuttgart, and 3 years in Buedingen.
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Pain is temporary, Love is Permanent
gizmo
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267340390 267340390   gizmo68  


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Re: New here... and a question
« Reply #6 on: Jan 18th, 2008, 2:22am »
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> Wie getz?  
Very well!
 
I've tried Red Bull last night and it helped me a lot - thanks Kev!
This was the first night for the last seven days with a few hours of sleep.
HURRAY!
« Last Edit: Jan 18th, 2008, 2:40am by gizmo » IP Logged
GrandPotentate
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Re: New here... and a question
« Reply #7 on: Jan 18th, 2008, 8:56pm »
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I found brisk walks helpful prior to finding out what these were and later getting hooked up with oxygen.  It does not do much for the duration of the hit, but seems to knock it down a notch.  Or maybe it jut gives me something to do besides suffering.  Like oxygen, start as soon as you feel the first twinge of pain.
 
Your English is far far better than my Deutsch.  perhaps you can fill us in on any news from the doctors over there.  Two sites are:
http://ck-wissen.de/
http://www.clusterheads.de/
 
Please keep in touch!
 
Jon
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Jon
gizmo
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267340390 267340390   gizmo68  


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Re: New here... and a question
« Reply #8 on: Jan 19th, 2008, 6:05am »
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Thanks for the tip - I'll sure give it a try.
 
> perhaps you can fill us in on any news from the doctors over there.  
> Two sites are:
> http://ck-wissen.de/
> http://www.clusterheads.de/
 
One thing I found is already mentioned in the "O2 question" thread (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1200579702).
 
Anyway, I'll have a look at them again and see if I can find some more useful information and post them here.
 
> Please keep in touch!  
 
I will!
 
Oliver
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Jonny
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Re: New here... and a question
« Reply #9 on: Jan 20th, 2008, 12:55am »
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Do you know Ete?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

- Guiseppi


gizmo
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267340390 267340390   gizmo68  


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Re: New here... and a question
« Reply #10 on: Jan 20th, 2008, 6:24am »
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No
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gizmo
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267340390 267340390   gizmo68  


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Re: New here... and a question
« Reply #11 on: Jan 22nd, 2008, 2:31pm »
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Today the neuro confirmed the diagnose.
He prescribed me prednosine and ascotop (zomig), despite the fact that I demanded O2 Angry
 
To me the prednisone dose seams a bit high.
7 days with 50mg, 7 days with 40mg, 7 days with 30mg and so on.
 
For now I'll wait and see how good the ascotop works as an abortive.
 
Any further suggestions?
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Stinger
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Re: New here... and a question
« Reply #12 on: Jan 22nd, 2008, 6:32pm »
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I've always had to take the prednisone in high doses.  I hate it.  It makes me nervous and eat a lot.  It only kicked the cycle out once in all my cycles.
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