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Topic: This is me (Read 1113 times) |
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #25 on: Feb 19th, 2008, 7:03am » |
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Cheers superDave, i think (lol)
to let u all know i have been to my docs today and have 02 on the way and imigran in my hand!!
Bring it on!!!!
 
Oh what a difference i hope it makes!!!!
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| « Last Edit: Feb 19th, 2008, 7:08am by darknight » |
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
 
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Re: This is me
« Reply #26 on: Feb 19th, 2008, 9:02am » |
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Simon did your doc give you the contact details for the O2 company? You are in an Air Products region so if he faxed the HOOF today you should be on the system by tomorrow. Ring them in the morning and arrange to have a delivery asap. Did the doc tick the box for ambulatory O2 as well as at home? If you need any help shout, I'll do all I can to help you get it asap
Helen
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #27 on: Feb 19th, 2008, 9:32am » |
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Hey Helen,
I did go to the docs and he sorted me out no thanks to
The lazy Neurologist who informed me he would pass on all info to my doc by last Friday, still hasnt passed on the information!!
My GP is a good man and sorted me with both home and portable oxygen and prescribed imigran injectables and all i had were leaflets from ouch ( for imigran) and a letter on oxygen for cluster heads (Interim BASH Guidelines for Oxygen in Cluster Headache @ http://www.bash.org.uk/)!!
Thanks for your concern and i dont have the contact details but i trust my GP he said id get a call within 48hrs and he confirmed all my details to me to make sure all is current.
Although i think my cycle is running down and may not get to use them for a while (shame)
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| « Last Edit: Feb 19th, 2008, 9:42am by darknight » |
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hotprestwich
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Fuck the devil
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Re: This is me
« Reply #28 on: Feb 19th, 2008, 11:19am » |
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wuhay so happy that you found this place an all, as you can see lots of peeps help here, sounds like your hooked up with 02 finally, hope your cycle is ending, and that you get many pain free days and nights, and now you know who hotprestwich is,
facebook groups dont really give the support we need,
all you need is this site
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In heaven there is no beer so why not drink it while we´re here
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #29 on: Feb 19th, 2008, 11:27am » |
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funny you said that Sieffy i thanked them sarcasticly and left both groups!!!
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Yorky
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learn to meditate (or just sit & do nowt)
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Re: This is me
« Reply #30 on: Feb 19th, 2008, 1:13pm » |
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please tell me that you two.......dont support man u 
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today is a gift.....thats why it is called the
present.
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LeLimey
CH.com Alumnus
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Re: This is me
« Reply #31 on: Feb 19th, 2008, 1:18pm » |
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Don't be silly Yorks - they're Accrington Stanley through and through!
Could be worse though - could be Leeds fans eh?! 
How the devil are you and wherethe bloody hell have you been? I'm gonnahave to slap you if you keep disappearing on me y'know!
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mummymac
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Kissed Donny Osmond and proud of it
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Re: This is me
« Reply #32 on: Feb 19th, 2008, 3:24pm » |
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on Feb 18th, 2008, 7:47am, LeLimey wrote:
That being said, Zomig nasal sprays are a very good option too as they half a much longer half life than Imi. Imigran lasts for up to 2 hours whereas Zomig lasts for up to 8 and you can use up to 3 nasal sprays per day. If you are having more than two hits a day this might be a better way to go for you. They take slightly longer to kick in but it's worth that for the extended relief from further hits.
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Welcome Tr1n1ty
I hope your meds are working for you and you are getting some relief.
I have been reading this board for a couple of months now and did not realise that Zomig could have reduced my hits and kept me pf for longer
Next cycle around I will try this one, there is something to be learned everyday
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Tanya
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #33 on: Feb 20th, 2008, 4:23am » |
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Yorky im afraid so Red through and through i was even at the FA cup game against Arsenal (love FA cup ties more atmosphere) sat near the away fans, but also a soft spot for City (my parents and sisters team) and Bury local club (should say pub team lol)
As far as i remember about hotprestwich he was never into football just basketball!!!
Helen i can tell the longer im on here the more fun i will have with you!!!
Thank you Mummy mac, i learn somthing new each day on this site, thank you for your help!
PFD to all!!!
PS only mild attacks tyhe past 2 nights lasting about 40 mins and does not peak so im hoping i was right that my cycle is at an end i didnt even try my meds yet!!! Wahoo!!
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LeLimey
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Re: This is me
« Reply #34 on: Feb 20th, 2008, 4:29am » |
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Oh come on - Arsenal isn't a football team It's a euphemism for a bunch of bumholes
Now where's that flippin' Ting Tong since he is a true fan of the Arse's?!
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #35 on: Feb 20th, 2008, 4:50am » |
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Helen i didnt think i could like you much more but suddenly i do lol!!!!
I was happy to go last Sunday as i hadnt been for a while great way to blow some cobwebs off and remember i do have a life and activities outside the cluster house lol!!!
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RichardN
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Re: This is me
« Reply #36 on: Feb 20th, 2008, 12:06pm » |
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Hi Simon & Welcome to Clusterville
Very glad you found us. I was a basket-case when I came here 2/02 . . . . this place gave me my life back.
Hope the 02 works as well for you as it does for most (70%) of us. I can't use triptans (like Imagran) due to some artery blockage and high cholesterol . . . so 02 is my only abortive (besides coffee) . . . can usually kill him in minutes if used early-on in the attack. MINUTES MATTER with CH . . . don't wait until you're "dancing" to use.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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LeLimey
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Re: This is me
« Reply #37 on: Feb 20th, 2008, 12:22pm » |
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Richard have you ever considered/looked into Zyprexa (Olanzapine)?
Just a thought, it might be a possibility for you
Helen
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #38 on: Feb 20th, 2008, 12:29pm » |
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Thanks for the welcome Richard i hope it works although i may have to wait a short while as i think my cycle is on the way out (episodic sufferer i think)
Ill let all know what happens when i start to use till then
PFDAN to all!!
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #39 on: Feb 21st, 2008, 6:46am » |
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Helen i have my 02!!!!
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LeLimey
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Re: This is me
« Reply #40 on: Feb 21st, 2008, 7:46am » |
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Fan flippin tastic Simon!
What size cylinders did you get? Did they bring masks for you?
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darknight
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Ever danced with the devil by the pale moonlight?
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Re: This is me
« Reply #41 on: Feb 21st, 2008, 8:53am » |
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I received 2 big cylinders( dont klnow exact sizes) and 2 ickle ones to take out with me 4 masks in total spare tubing and the carry pack for the ickle ones!! Really nice guy delivered it went through all the functions and he was interested in the condition as im the only one he has to deliver to that suffers CH (usually coffin dodgers)!! Left information pack with all contact numbers he couldnt of been more helpful!!
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LeLimey
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Re: This is me
« Reply #42 on: Feb 21st, 2008, 9:39am » |
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Sounds bloody brilliant!! There'll be no stopping you now LOL
Well - not until you get to the end of the chain keeping you next to the kitchen sink anyway
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Guiseppi
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Re: This is me
« Reply #43 on: Feb 21st, 2008, 10:07am » |
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Well I refuse to talk funny like Helen does but that is "Bloody Brilliant!" Hope the oxygen proves as effective for you as it has been for me. It's been stressed before but jump on the 02 as soon as you get the tingle. the faster you start it the faster it works!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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LeLimey
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Re: This is me
« Reply #44 on: Feb 21st, 2008, 10:13am » |
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on Feb 21st, 2008, 10:07am, Guiseppi wrote:| Well I refuse to talk funny like Helen does but that is "Bloody Brilliant!" ;; |
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If you think I tawk funny you wanna here this reject from Coronation Street!
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George_J
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Re: This is me
« Reply #45 on: Feb 21st, 2008, 11:02am » |
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Nothing to add here, except that I really like "coffin dodgers".
Glad to hear that you have your 02 situation sorted.
All the best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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darknight
New Board Veteran
Ever danced with the devil by the pale moonlight?
Gender:
Posts: 105
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Re: This is me
« Reply #46 on: Feb 21st, 2008, 11:55am » |
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Thanks George, its a good phrase that always tickles me!!
Guiseppi, Helen cant help it, its the years of repressing her cockney rhyming slang in the country!!!
Eastenders ending for ya HELEN after that revelation lol
duh duh duh duhdadada!!!! lol
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: This is me
« Reply #47 on: Feb 21st, 2008, 2:14pm » |
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Im no cockney you well wanging cloth capped steamin' great wassock Now get back down t' mill and make me a Hovis
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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darknight
New Board Veteran
Ever danced with the devil by the pale moonlight?
Gender:
Posts: 105
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Re: This is me
« Reply #48 on: Feb 22nd, 2008, 4:44am » |
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mmmmmmmm HOVIS!! 
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: This is me
« Reply #49 on: Feb 22nd, 2008, 4:46am » |
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Yeah well the crusts are mine - you can have all the crap in between them!
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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