Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 28th, 2020, 5:08pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board What I'm trying now


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   What I'm trying now
« Previous topic | Next topic »
Pages: 1 2 3  ...  10 Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: What I'm trying now  (Read 13344 times)
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
What I'm trying now
« on: Jul 22nd, 2005, 11:21pm »
Quote Quote Modify Modify

After my disastrous fall from the kudzu vine, I decided to try the "other" alternative.  Wink  
After a short kudzu detox, I dosed on Wed morning. I took a very small dose and had no effect other than colors looking brighter. As I expected, (but damn...I still wasn't ready!) I got hit pretty hard twice on Wednesday before 8 PM. My normal increase in activity time has started at about 9 PM lately, and at 9 PM Wed, I noticed that my head felt "clear" or "empty" if you will. (Please refrain from posting specifically to that remark.)  Wink  No pain or activity for the rest of the night.
Thursday I shadowed quite a bit during the day, but I noted that the "clear" feeling was back at 8 PM. No hits.
Today the shadows ended at 4 PM.   Smiley
At the moment, I'm feeling pretty optimistic. Cheesy  I am prepared to dose again on Monday, if needed.  
 
I'm not ashamed to say that I was a little nervous about this. But, having had a visit to PF land, I want an extended vacation there. Many thanks to Pinkfloyd and  the rest of you who coached me through this. You know who you are...   Kiss
 
I want to keep you posted because I'm a hard to treat chronic. Eventually all meds quit working for me, and my abortive choices are now limited to O2, ice and Red Bull. I'll let you know.  PF wishes, nani
 
IP Logged

Others may come and go, but MY power is MINE.
E-Double
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Are we ourselves?

  Edoubleitk   Edoubleitk1
Email

Gender: male
Posts: 6458
Re: What I'm trying now
« Reply #1 on: Jul 22nd, 2005, 11:46pm »
Quote Quote Modify Modify

Good luck my love!!!
 
Stay strong as ever and you will rejoin those PF ranks again.
 
Hugs to ya,
 
E
IP Logged

I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
burnt-toast
New Board Hall of Famer
USA 
*****





   


Gender: male
Posts: 1686
Re: What I'm trying now
« Reply #2 on: Jul 23rd, 2005, 12:19am »
Quote Quote Modify Modify

Good luck - Let us know how it goes.
 
Tom
IP Logged

Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
unsolved1
Guest

Email

Re: What I'm trying now
« Reply #3 on: Jul 23rd, 2005, 12:23am »
Quote Quote Modify Modify Remove Remove

Good Luck Nani !!
 
Best Wishes
 
Unsolved
IP Logged
Kevin_M
CH.com Alumnus
New Board Hall of Famer
USA 
*****



withered branches grow green again.

   


Gender: male
Posts: 6184
Re: What I'm trying now
« Reply #4 on: Jul 23rd, 2005, 12:28am »
Quote Quote Modify Modify

on Jul 22nd, 2005, 11:21pm, nani wrote:
At the moment, I'm feeling pretty optimistic. Cheesy

 
    Smiley
 
 
 
Kevin M
IP Logged
Topical
New Board Old Timer
USA 
****





   


Posts: 256
Re: What I'm trying now
« Reply #5 on: Jul 23rd, 2005, 8:50am »
Quote Quote Modify Modify

All our fingers are crossed for you Nani. Tame the beast!
IP Logged
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #6 on: Jul 23rd, 2005, 10:57am »
Quote Quote Modify Modify

Thanks all. Well, I've been up for about 3 hours now...
no shadows... heeheehee
IP Logged

Others may come and go, but MY power is MINE.
pattik
CH.com Alumnus
New Board Hall of Famer
USA 
*****






  northcolor4  
WWW

Gender: female
Posts: 2404
Re: What I'm trying now
« Reply #7 on: Jul 23rd, 2005, 11:07am »
Quote Quote Modify Modify

You are giving us much inspiration, Nani...my thoughts are with you.  Hope this time will be the exception to the rule regarding treatments failing eventully. hug
IP Logged

The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
cjc68
New Board Newbie
USA 
*




The beast always looses in the end!

  christopherjc68  


Gender: male
Posts: 46
Re: What I'm trying now
« Reply #8 on: Jul 23rd, 2005, 3:34pm »
Quote Quote Modify Modify

Good luck Sweetie! My best wishes and prayers are with you!
 
ps. I know of a place in Ruidoso (Ruidoso Downs) where that alternative grows wild and there is plenty there free for the taking.....
IP Logged
sandie99
New Board Hall of Famer
Finland 
*****




Wish it, dream it, do it - inspite the pain!

   


Gender: female
Posts: 10429
Re: What I'm trying now
« Reply #9 on: Jul 23rd, 2005, 3:37pm »
Quote Quote Modify Modify

My thumbs are up for you... Smiley
 
PF wishes,
Sanna Smiley
IP Logged

CH happends, Live anyway! PF days to us all!

"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)

"No matter how far out your dreams are, it's possible" (Marketa Irglova)


nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #10 on: Jul 23rd, 2005, 3:41pm »
Quote Quote Modify Modify

on Jul 23rd, 2005, 3:34pm, cjc68 wrote:

ps. I know of a place in Ruidoso (Ruidoso Downs) where that alternative grows wild and there is plenty there free for the taking.....

 
Kewl! It's a great place to spend a weekend, too. They've just re-opened the Inn of The Mountain Gods and I hear it's gorgeous. Thanks for the tip.  Wink
IP Logged

Others may come and go, but MY power is MINE.
godsjoy777
New Board Veteran
USA 
***



HIS name is above clusters

  godsjoy777  
Email

Gender: female
Posts: 122
Re: What I'm trying now
« Reply #11 on: Jul 23rd, 2005, 3:57pm »
Quote Quote Modify Modify

Yeah.....yipppppeeeeee!!!!! Hey Na....na......na...na.....the Pain free's back!!!!!
(sung to the tune "My Boyfriend's Back"Wink.   Soooo happy for you and please keep us.....ahem....POSTED... laugh to the continued success......I will be trying this treatment the next cycle I believe if it seems to be the workeble solution....
 
You rock, Nani...Sooooooo glad to get to know you at the Dallas Convention....I had told my husband I have to meet Nani if I don't meet anybody else.....I just knew you were great!
 
Pain free Days and nights!!!!
 
Blessings,
Karen
IP Logged
stomper
New Board Newbie
USA 
*





    yumpnyimbo


Gender: male
Posts: 28
Re: What I'm trying now
« Reply #12 on: Jul 23rd, 2005, 4:08pm »
Quote Quote Modify Modify

   yyyyyyooooooouuuuuu            gggggggggooooooooo               gggggggiiiiiirrrrrllllllssssss                 love readin up on the nanster!!   allthebest2you!!   jimm
IP Logged
lionsound
CH.com Alumnus
New Board Hall of Famer
USA 
*****




breathe

   


Gender: female
Posts: 2021
Re: What I'm trying now
« Reply #13 on: Jul 23rd, 2005, 8:50pm »
Quote Quote Modify Modify

Good luck , nani! hug
 
pf's for you!
« Last Edit: Jul 23rd, 2005, 8:51pm by lionsound » IP Logged
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #14 on: Jul 24th, 2005, 12:07am »
Quote Quote Modify Modify

Thanks so much everyone. I love you all!!
I only shadowed between noon and 2:30 today.   Grin
IP Logged

Others may come and go, but MY power is MINE.
cjc68
New Board Newbie
USA 
*




The beast always looses in the end!

  christopherjc68  


Gender: male
Posts: 46
Re: What I'm trying now
« Reply #15 on: Jul 24th, 2005, 12:29am »
Quote Quote Modify Modify

I think we will both have a good night sweetie! I am happy you had a good day!
ps. I added a new entry on my post. (the zu and pred)
IP Logged
eddie
New Board Hall of Famer
USA 
*****




PFDAN TO ALL

   
WWW

Gender: male
Posts: 881
Re: What I'm trying now
« Reply #16 on: Jul 24th, 2005, 11:57am »
Quote Quote Modify Modify

good luck nani
i really was tired of taking a lunchbox full of meds
to work and not food. im not totally pain free but alot
better. i wish you all the luck
eddie
« Last Edit: Jul 24th, 2005, 1:22pm by eddie » IP Logged



PFDAN TO ALL>><< http://www.putfile.com/ededearl>>><music> http://www.myspace.com/pamneddie
Chillrmn1
Guest

Email

Re: What I'm trying now
« Reply #17 on: Jul 24th, 2005, 1:09pm »
Quote Quote Modify Modify Remove Remove

Hi Nani,
 
So glad you're seeing some pain free relief and hope it continues for you!  Please don't be discouraged at first, may take a few times for the healing to take foot. In my case, HBWR seemed to get me my remission after the the first alternative tries. As long as you're seeing progress or relief seems it's heading in the right direction for you. Glad to see you're giving it a try......................was the best choice for ME since all these 28 years of the beast, torment, and misery..............only wish I'd have made the desicion to try this route sooner. Sincerely wishing you the same results as I experienced.
 
Wishing you pain free time and success..............of all people, you deserve it! You're a special person, always helpful, supportive, and wise to all.
 
Sincerely,
Bob
IP Logged
Lobster
CH.com Alumnus
New Board Hall of Famer
USA 
*****






   


Gender: male
Posts: 2016
Re: What I'm trying now
« Reply #18 on: Jul 24th, 2005, 1:24pm »
Quote Quote Modify Modify

Nice to hear that it seems to be working, Nani.  Keeping my digits crossed.
IP Logged

Rock beats Scissors.
Kris_in_SJ
New Board Hall of Famer
USA 
*****




There's no place like home.

   
Email

Gender: female
Posts: 1539
Re: What I'm trying now
« Reply #19 on: Jul 24th, 2005, 8:40pm »
Quote Quote Modify Modify

Go Nani!
 
PinkFloyd may well be the best friend of many around here.  As I await my next, inevitable cycle, I'm reading, reading, reading about alternatives.
 
My best to you, sweetie.  Keep us informed.
 
Kris
IP Logged

I'm a small woman in small town being chased by a VERY BIG BEAST!
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #20 on: Jul 24th, 2005, 10:45pm »
Quote Quote Modify Modify

15 minutes (total) in shadows today.  Grin
IP Logged

Others may come and go, but MY power is MINE.
slacker032
New Board Junior

**






   
Email

Posts: 53
Re: What I'm trying now
« Reply #21 on: Jul 24th, 2005, 11:24pm »
Quote Quote Modify Modify

For how long did you detox off of the Kudzu?  Did you taper or stop completely?
IP Logged

One good thing about music, when it hits you, you feel no pain. - Bob Marley
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #22 on: Jul 25th, 2005, 10:05am »
Quote Quote Modify Modify

I tapered off the 'zu, because I'm a wimp. I was down to 1 a day for 2 days and dosed 24 hrs after my last 'zu. I knew that I was cutting it close and risked having this treatment fail, but it worked out pretty well after all.  Smiley
IP Logged

Others may come and go, but MY power is MINE.
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
USA 
*****



If I think hard enough maybe it'll go away.....

   


Gender: male
Posts: 2248
Re: What I'm trying now
« Reply #23 on: Jul 25th, 2005, 10:16am »
Quote Quote Modify Modify

you go girl. hope that things continue to keep you in the drivers seat.
 
scott
 
(using Zu again for for my new cycle - -- let you know it goes.)
IP Logged

-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: What I'm trying now
« Reply #24 on: Jul 25th, 2005, 10:20am »
Quote Quote Modify Modify

on Jul 25th, 2005, 10:16am, seasonalboomer wrote:

(using Zu again for for my new cycle - -- let you know it goes.)

 
Thanks, scott...Be assured I'm still watching kudzu very closely. I intend to hold on the my position as cheerleader emeritus for the;
Gimme a K! Gimme a U! Gimme a D! ....
well, you know. Smiley
 
Edited to add: Things are going very well, and I've decided not to dose again today. I'll wait until I "need" to again. I don't want to be a thread hog, so I'll only update when things change. Please PM me for any updates, if you'd like.
 
Hugs and PF wishes to all, nani   Kiss
« Last Edit: Jul 25th, 2005, 10:43am by nani » IP Logged

Others may come and go, but MY power is MINE.
Pages: 1 2 3  ...  10 Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB 2000-2003. All Rights Reserved.


1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss