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Topic: Failed medication research (Read 1657 times) |
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Alchiba
New Board Newbie
Vagrant by day, writer by night
Posts: 8
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Re: Failed medication research
« Reply #25 on: Feb 19th, 2008, 3:45pm » |
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I've gotten some PM responses that correspond with the sentiment of some of you here- that i'm unwelcome.
That's fine. I really appreciate the help i've been given, but I think it's time for a mod or something to lock this thread.
My intention was never to upset people, and I really did get a lot of information. I think i'll handle the rest on my own. Thank you so much to everyone who has sent me positive pm's, and information on CH.
Keep fighting the good fight.
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LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
 
 
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Posts: 11720
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Re: Failed medication research
« Reply #26 on: Feb 19th, 2008, 3:49pm » |
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Alchiba - don't let doubters put you off. I like the idea, a lot of us will help if you like and if others don't want to - well they don't have to do they?!
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
 
Gender: 
Posts: 6458
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Re: Failed medication research
« Reply #27 on: Feb 19th, 2008, 4:25pm » |
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on Feb 19th, 2008, 3:49pm, LeLimey wrote:Alchiba - don't let doubters put you off. I like the idea, a lot of us will help if you like and if others don't want to - well they don't have to do they?!
Helen |
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bingo 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
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Posts: 4458
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Re: Failed medication research
« Reply #28 on: Feb 19th, 2008, 4:58pm » |
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on Feb 19th, 2008, 3:49pm, LeLimey wrote:Alchiba - don't let doubters put you off. I like the idea, a lot of us will help if you like and if others don't want to - well they don't have to do they?!
Helen |
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Agreed! Keep up with it! My cousins have cystic fibrosis, and when I was younger, I wrote story after story about fictional characters living with CF. I shared these stories with people I was in school with in an attempt to get the word out about CF. I wasn't suffering from it, but I still was touched by it and my writing about it was very important to me. I think I taught a lot of people about cystic fibrosis by my writing those stories, even though they were never published.
Have you ever read any young adult fictional books by Lurlene McDaniel? She writes books about teens with major illnesses, and I used to eat those books up when I was younger. While you won't find a single one of them about headaches (at least I don't think you will), they are still good at portraying suffering of the characters and some degree or coming to of understanding of characters as well.
Best of luck in your writing. I have been suffering from chronic migraine for over 7 years now and chronic cluster headache for the last 4+ years. I have been hospitalized about 8 times for headaches and various treatments, as well as have tried over 100 different medications to prevent and abort my headaches. Whilst I have learned to cope fairly well these days, I still have times where it leaves me feeling quite depressed. I'm 27 years old and currently have a boyfriend who is very understanding of what I've been going through, but I spent years alone with nobody but my parents really supporting me - and if it weren't for the people on this website, I can't imagine where I'd be without them.
I would say that some of the major things people try include verapamil (a calcium channel blocking blood pressure medication), lithium (a mood stabilizing medication), steroids like prednisone, topamax (an antiseizure med), depakote (another antiseizure) and a variety of other treatments. Many people use injectible imitrex as an effective abortive, and many use oxygen through a mask with a bag (called a nonrebreather mask). Many of us have received nerve block injections to try to treat the attacks, as well.
Good luck in your writing!
Take care,
Carrie 
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