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21yrs
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neurantin?
« on: Dec 11th, 2004, 10:34am » |
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went to see nero on fri. told me to try neurantin as
a prevent. wondering if anyone has tried.
start at 1 300mg for a week go to 2 the next then
3. also got o2 to abort and some imetrex inj
on the side. asked her about shrooms. told me i
was on my own. i have a bad feeling i might be
changing from eposodic to chronic. they have
never hung around this long. clockwork for 21yrs
july-aug-sept only. cant get rid of shadow. ha 1-2
a day 4-5kp started mid november.
might be rockin with the BUSTERS soon.
any help 
thanks
21
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nani
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Re: neurantin?
« Reply #1 on: Dec 11th, 2004, 10:38am » |
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I use 1800mgs of Neurontin a day. I am also on verapamil and lithium as prevents. I like it as opposed to Topamax which has many side effects. It's a combo that keeps my hits on lower kips, but I still get hit everyday. (I'm chronic). I don't think Neurontin alone will do much. Good luck and pain free wishes to you.
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| « Last Edit: Dec 11th, 2004, 10:38am by nani » |
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BobG
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Re: neurantin?
« Reply #2 on: Dec 11th, 2004, 11:26am » |
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neurantin? neurontin? SP?
I haven't Goggled it but isn't there some lawsuits going on about that stuff?
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nani
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Re: neurantin?
« Reply #3 on: Dec 11th, 2004, 11:33am » |
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Yes there is a lawsuit. It's about it being pushed for off label uses. Like pain management. Most of the stuff we take for CH are. Lithium-bipolar illness. Topamax and Neurontin-seizure disorders. Verapamil-hypertension. My feeling is as long as it's working...who cares. The problem was drug reps pushing docs to try it for all kinds of stuff, including depression. The manufacturer probably wanted to renew the patent. It's now available as the generic gabapentin.
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BobG
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Re: neurantin?
« Reply #4 on: Dec 11th, 2004, 12:26pm » |
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on Dec 11th, 2004, 11:33am, nani wrote:| My feeling is as long as it's working...who cares. . |
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Good point. Thanks.
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21yrs
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Re: neurantin?
« Reply #5 on: Dec 11th, 2004, 12:40pm » |
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thanks nani
the nero was pretty cool. asked me what i wanted.
i have lived off the inj of trex since it came out.
with me only dealing with the beast 2-3 months
out of the year i really never looked any further.
is this drug going to break the cycle asap?
you still get hits everyday so does it work?
i know the pred took care of the hits for me
in mid sept. i told her i didnt want that because
i put on 20 pounds before i was done with
the taper. getting the script today, let you
know how it works.
pf days for everyone
thanks again
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nani
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Re: neurantin?
« Reply #6 on: Dec 11th, 2004, 1:54pm » |
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I took the neurontin for 4 years by itself and it didn't really work that well. Since I've added the lith and verap it keeps my hit lower on the kip scale. I generally get hit with kip 4-6's. I have "episodes" with much higher kips now and then, too. I'm a chronic, so I don't really know if this is a whole lot better than using nothing. I really think that you have to add at least verap to help break the cycle. I've never tried pred-I'm afraid of the steroids. I can't take Imitrex or any other triptans because of high BP and heart issues. This is probably the best I can expect.  I am presently trying Indomethacin to rule out CPH for the dozens of k2-4 "shadows" I get everyday. I've just learned that most chronics don't get hit as often as I do. It's all just a big experiment...finding out what works for each of us.
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JDH
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Re: neurantin?
« Reply #7 on: Dec 11th, 2004, 5:29pm » |
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on Dec 11th, 2004, 11:26am, BobG wrote:neurantin? neurontin? SP?
I haven't Goggled it but isn't there some lawsuits going on about that stuff?
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I took Neurontin (not for CH's) for about 9 months and I started reading some pretty nasty things about it so I got off of it. IMO there are better/safer ways to deal with the beast.
Here's some info on the lawsuit Bob was talking about.
http://www.adrugrecall.com/neurontin/lawsuit.html
Jim
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21yrs
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Posts: 13
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Re: neurantin?
« Reply #8 on: Dec 11th, 2004, 7:30pm » |
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jdh thanks for the link.
a lot of good info especially the part on side effects
"suicidal tendencies"
i think my nero needs to look a little closer to the
drugs she prescribes.
nani you be careful with that stuff!!!
if it don't work get off it!!!
when them 10kip'ers come i don,t need a little push.
i think i am going to leave that script at the store.
going to try the BUSTER route
thanks again
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JDH
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Re: neurantin?
« Reply #9 on: Dec 11th, 2004, 9:25pm » |
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on Dec 11th, 2004, 7:30pm, 21yrs wrote:
going to try the BUSTER route
thanks again
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Jim
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9-11-01, to remember is to honor.
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ECH established 1985
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nani
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Re: neurantin?
« Reply #10 on: Dec 12th, 2004, 2:18am » |
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Quote:nani you be careful with that stuff!!!
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Thanks sweetie, but I happen to be a fan. It is far more benign than many other CH drugs. I first used it after brain surgery...it's safe for me.
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