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   Author  Topic: A Reminder to Supporters  (Read 779 times)
Margi
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A Reminder to Supporters
« on: Dec 14th, 2002, 2:32pm »
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For those of you out there that are trying to run interference for your clusterheads, during the busy holiday season....just a reminder.
 
Don't forget to make some time for yourselves.  We get so frazzled this time of year - not only with trying to get everything ready for Christmas, but also in trying to keep that bubble of safety and serenity around our clusterheads.  It's not an easy task, that's for dang sure.  
 
I'm living proof that even a 30 minute soak in the bathtub with the door shut locked and candles glowing can be enough to re-centre yourself and emerge with a fresh attitude.  Between attacks is a great time to do this, guilt free.
 
Attitude is really everything in the battle with the beast - our sufferers watch us for signs of wear and tear and they feel so guilty when they see us crashing.  If you're feeling stressed beyond belief - take yourself out for a walk, go to the gym, go punch the hell out of a pillow - whatever it takes to blow off some steam.  But DO it.  Being a supporter is like being inside a pressure cooker sometimes and chances are, somethin's gotta explode at some point, right?  Don't let yourselves get to that point.
 
As to the sleep deprivation?  He/she will get through just ONE night without you, trust me.  Take sleep aids if you have too (although I doubt we need that at the peak of the cycle, huh?), but make sure you don't have a deficit in the sleep department.  Your clusterhead relies on your strength, especially this time of year.  
 
And, if the walls really start closing in - don't forget the Family Services Team.  We're at clusterbuds@hotmail.com and there's always someone around to talk to who's walked miles in your shoes.
 
Merry Christmas, Supporters - stay strong.
 
 
p.s. Jackie - I'm talking to you.  You too, Ree, Monique, Tina, Pam, Georgia, Dennis, Rain, and all other supporters out there right now.  Make and take time for YOU.  Shocked  (there isn't an icon with a raised eyebrow, so that one will have to do.)
 
 
 
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Re: A Reminder to Supporters
« Reply #1 on: Dec 14th, 2002, 2:34pm »
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you said it all again Margi
 
Really MARRY CHRISTMAS TO ALL
 
Svenn
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Re: A Reminder to Supporters
« Reply #2 on: Dec 14th, 2002, 2:41pm »
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 Roll Eyes
I will DEFINATELY take your advice..... Wink
 
Have a great christmas and hope it is PF for you all.
Cathy
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Re: A Reminder to Supporters
« Reply #3 on: Dec 15th, 2002, 9:37pm »
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so sweet MarGi girl... you are so right... just reading that sounded so sooooooooothing... love ya and merry ho ho... reebananaorangebodonabreak
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Re: A Reminder to Supporters
« Reply #4 on: Dec 15th, 2002, 11:58pm »
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Thanx Margi!
Needed that! Good advice and I'll try to take it!
Mopar is to have both wrists operated on for carpal tunnel(CT) release this Friday. This means I'll have to be his arms for six weeks or so. He will be unable to do anything at all. On Saturday a mate and I will have to demolish a boiler without him - no prob really, but the clients look a bit suspicious when the chikki brikki arrives - with jackhammer and minus her husband!! They'll have to get used to it I guess! Keep us in your thoughts.
At least after this operation Mopar will have only his head to worry about. The CT interrupts sleep every hour and I wonder if this has anything to do with his CH. He has suffered from CT longer than he's had CH. All brikkis get it eventually - his turn for repairs this summer, mine next!
 He's missed doing the work he's so good at and doesn't enjoy being a supervisor who does not work, so at least this is a step in the direction of getting him a little happier.
Thank you all for your support, and kind words  
Love to you all
firebrix
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Re: A Reminder to Supporters
« Reply #5 on: Dec 16th, 2002, 4:16am »
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Happy Holidays to everyone  Smiley Wishing you all a  wonderful time with your loved ones.
 
Margi, thank you for that post ...guess it was just what I needed...and I just today received some candles as a gift ..I work with such nice people. So I think I'll take your advice and seek refuge in a bath....*sigh
 
 
Ohhh firebrix..I might have TS (tarsal tunnel) !! Great huh !! My feet hurt so much and yup guess Rich will have to take care and be my feet for about 6 weeks. Although, the L&I refused my claim...said it wasn't work related...well let them come down to the rest. and work on there feet all night !! be a different story then ! at least Rich has been PF for 2-3 weeks now. I am grateful for that !
OK sorry I'm rambling...Life is crazy sometimes and this has been a hard year for my little family.(my daughter has kidney problems)
Glad to have found you guys. You all understand so much.
 
Peace...Rain
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Re: A Reminder to Supporters
« Reply #6 on: Dec 16th, 2002, 5:43pm »
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O GOSH! ;D ;D ;D
 
The hospital just phoned - the op's TOMORROW now! Shocked
Wish us luck?
firebrix
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Margi
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Re: A Reminder to Supporters
« Reply #7 on: Dec 16th, 2002, 7:20pm »
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Best of luck to you both.  He'll be fine.  Wink
 
Be strong, girl - like we all know you can.
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Re: A Reminder to Supporters
« Reply #8 on: Dec 17th, 2002, 9:24am »
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good luck firebrix,
Take care of YOUR hands...or none of ya will have hands!!  Smiley
Mast
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Re: A Reminder to Supporters
« Reply #9 on: Dec 17th, 2002, 12:47pm »
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Yes, dear Margi......I hear ya loud and clear... Smiley
I promise to take care of myself.....when I have a little more time... ;D
 
That's our Margi....always tending to her flock... Smiley  Thank you!!!!!
 
Sounds like several of you have "full plates" right now.....bless your hearts.  Keep the faith.  All will be well Smiley
 
Jacks Cool
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Margi
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Re: A Reminder to Supporters
« Reply #10 on: Dec 17th, 2002, 1:28pm »
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Riddle:  what's more stubborn than a clusterhead?
Answer:  their supporter.
 
Man, oh man, Jackie - what AM I going to do with you?   Roll Eyes
 
 
Did all y'all just see this?  Jackie just called me Lil Bo Peep.  I'm tellin DJ's mom.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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Jackie
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Re: A Reminder to Supporters
« Reply #11 on: Dec 17th, 2002, 1:39pm »
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LMAO Margi.....I'd never call you Lil Bo Peep.  I've heard to many of Dice-Man-Clay's rhymes..... ;D
 
Jacks Cool
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Re: A Reminder to Supporters
« Reply #12 on: Dec 17th, 2002, 5:45pm »
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Yeh  
Right!
I can HANDle this ok Mast!
love to y'all
firebrix
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Re: A Reminder to Supporters
« Reply #13 on: Dec 17th, 2002, 9:09pm »
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I go ta Wallyworld for a break...imagine that..whatz the world comein to....I live out in the country so a trip ta the city and all the rush and crowds 'n traffic really takes me away....like Calgon....ina busy differen't sorta way. I "THINK" to much when it's quiet and by myself.....so the hectic few hours away does me good. Lookin forward to a PF holiday....wasn't sure when the cycle started in Aug....it was hell 3 years back when it was durein the holidays...we got thru blindly but didn't collect to many good memories that year !! Good luck with the op firebrix.....Pam
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