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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Helpful Hints - MUST READ!!

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Helpful Hints - MUST READ!! (Read 28979 times)

Guiseppi

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San Diego to Florida 05-16-2011

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Re: Helpful Hints - MUST READ!!
Reply #75 - Jul 11^th, 2012 at 3:57pm

Welcome to the board. Are you working with a decent headache doc yet? A short course of prednisone will often times provide complete relief, but is best used while starting on a decent prevent med like Verapamil, Topomax or Lithium. While pred will generally stop the attacks for me, when i go off of it without a prevent in my system, it kicks my ass making up for lost time! Pred is not something you cna take long term but on a short term basis is great to get you back on your feet. Do you have eny med you're currently using as prevents or abortives?

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Linda4912

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I Love CH.com!

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Re: Helpful Hints - MUST READ!!
Reply #76 - Mar 22^nd, 2013 at 7:44pm

I am a 61 year old female with, what I believe to have is cluster headaches.I have been to many Dr.s with no success other than to blow it off as sinus or allergys. I started having them about 8 years ago.I have done a lot of research on my own. One Dr told me she believes I have ch's but did nothing to help me.The pain is the worse pain I have ever felt or imagine could ever happen to a human being and still live through it. I dread night because I know they will wake me up in horrible pain again. I went to a new Dr today and told him about them(headaches) He said that he has heard of them and heard they were very painful and wants to try me on a low dose (25 mg) of Toprol. We will see I guess. It is the first meds that I have ever been put on for cluster headaches.I'm wondering if anyone knows if Toprol can possible help me? Cry

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Mike NZ

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Oxygen rocks!

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Re: Helpful Hints - MUST READ!!
Reply #77 - Mar 22^nd, 2013 at 11:04pm

Hi Linda and welcome

There are some journal articles linking toprol and cluster headache (Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

) however it isn't one of the commonly used treatments.

You really do need to work with a headache specialist to get a definitive diagnosis as most doctors, even most neurologists have little training in the area of headaches.

If you read up here you'll learn a lot more about CHs, but you really do need that diagnosis.

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