Click this link to read a post I like on the clusterheadaches.com message board...

May 2^nd, 2024 at 1:43pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Another question about Verapamil....

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

Another question about Verapamil.... (Read 3182 times)

Jeannie

CH.com Sponsor

Offline

Live, Laugh, Love....

Posts: 2333
St Louis, Missouri
Gender: female

Another question about Verapamil....
Jun 3^rd, 2008 at 4:41pm

As you all know I have had great luck with the verap. Only shadows. I have tried weaning myself off a couple of times. Actually just tried in the past couple of days but the shadows are back again. I thought it might be ok as my cycle is usually over in June and well, it's June. I was just curios what you all thought about the fact that I can't get off the med. Will I need to take it forever? Maybe trying to get off right now is impossible due to stress from the other health issue I'm having?

I know you all are going to ask why I want to go off of it if I am tolerating it well. My reasons are 1, I still don't have a new neuro and the I am almost out of it (yes I know that I need to get on the ball and get a new one). 2, call me vain but I swear that the Verap is making me fat..er. I'm going to the beach in July!

As always, thanks for your input!

Jeannie

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney

IP Logged

Brew Ex Member	Re: Another question about Verapamil.... Reply #1 - Jun 3^rd, 2008 at 4:47pm A general rule of thumb, I've heard, is to start slowly tapering off once you've gone 2 weeks pain free.
Back to top	IP Logged

Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Another question about Verapamil.... Reply #2 - Jun 3^rd, 2008 at 4:58pm I have been totally p/f for more than two weeks at a time. As soon as I start to taper off I get eye twitching and shadows. I can't figure it out! Jeannie
Back to top	"It's all a grand illusion when you think you're in control." ~ Kenny Chesney IP Logged

Brew Ex Member	Re: Another question about Verapamil.... Reply #3 - Jun 3^rd, 2008 at 5:07pm Can you deal with the shadows some other way? For many, like myself, ibuprofen will kill the shadows. I think this is your body's way of telling you that the cycle's not quite over. But if you'd like to get off the verapamil, maybe there's another way to deal with the tail end of your cycle.
Back to top	IP Logged

Jeannie

CH.com Sponsor

Offline

Live, Laugh, Love....

Posts: 2333
St Louis, Missouri
Gender: female

Re: Another question about Verapamil....
Reply #4 - Jun 3^rd, 2008 at 5:22pm

That's a thought. I guess that I am just afraid that they will develop into more than just shadows with no Verapamil in my system at all. I have never had a cycle last longer than June but, I have never had a cycle where I never actually got hit either. It has been an unusual spring. (better than most but unusual) You're probably right that it just isn't quite over yet.

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney

IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Another question about Verapamil.... Reply #5 - Jun 3^rd, 2008 at 11:07pm Hi Jean, I'm beginning my taper off of Verapamil too. Take it slow. 40-80mg steps. Take weeks to get off totally. But taking it slowly should help. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

mezza

CH.com Alumnus

Offline

I love YaBB 1G - SP1!

Posts: 415
north carolina
Gender: female

Re: Another question about Verapamil....
Reply #6 - Jun 4^th, 2008 at 8:46pm

hey jean-
i just finished completely tapering off my verap on sunday. I tapered very slowly for about 3 weeks. I was scared too of the shadows. here is what i did.

i was taking 660 mg ( 240 in am, 240 at 5 and 180 at night) I stopped the 180 for a week- everything was great- no shadows. then started working on getting down to just 240- so for 2 weeks took 240 in the middle of the day- a couple of times i got some shadows that concerned me so two times i added back a 240. Then last week went 240 every other day. small shadows - never amounted to anything - and the shadows happenned around 4 or 5 in the afternoon ( not my normal hit time anyway)

Then starting sunday - no verap. No hits, no shadows. I am very tired though- taking long naps.But memory is improving immensely- And i have gained weight this cycle with the preds at the beginning and verap

I'd give it a shot- the shadows are scary but if it results in something significant you'll know you aren't quite done-

Good luck and hang in there-

kelly

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!