Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Does this never end! (Read 2151 times)
shaktima
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 8
x0|Phoenix|USA||0|0|AZ,Arizona
Does this never end!
Jun 10th, 2008 at 3:13am
 
I am into another "episodic cluster," last being change of seasons last summer.  This one started 2 weeks after the death of my father (don't know how I held together thru that) but now, the beast is coming to get me.  Every night, at 2:00 - 2:30 am, robbing me of precious sleep, making my life miserable.  I am doing the "Red Bull" thing, seems I am maybe building a tolerance to it, as the "banger's seem to be getting stronger and stronger.  I have my trusty ice pack.  I am down to my last 2 Imitrex and want to save them for the really bad ones that I am sure are to come.  I am taking taurine every day, but still the beast seems to come during my most regenerative part of sleep.  Thus, am not ever able to feel fully rested.....I use this board to come on and read during my attacks...somehow, I don't know why, it gives me  bit of hope and strength to get thru to the next one.  Guess it is just truly bad karma....how pain this bad can be a part of life....no sleep......I am just destroyed.....
Cathy
Back to top
  
 
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: Does this never end!
Reply #1 - Jun 10th, 2008 at 3:58am
 
Ouch, you're in a bad place. Have you seen a neuro? Or at least an understanding doc? You need a more effective preventative medication, something like verapamil, topomax, lithium, something you take regularly to reduce the frequency and intensity of your hits. I'd go broke using only trex!

Then you need oxygen. I can abort an attack in less then 10 minutes using only oxygen. Read the link on the left, print out the info and demand it from your doc. The key points are, pure oxygen, at a high flow rate, at least 15 LPM, started at the first sign of an attack, using a Non Re Breather Mask. Re Breather Masks and nasal canulas are worthless for our condition.

For now, have you tried melatonin yet? It's an over the counter available at health food stores, people take it to avoid jet lag. Many find they can get relief from the nite time hits by taking 9-12 mg of mealatonin half an hour beofe bedtime, might be worth a shot for you.

Yes it ends, and now that you're here you're not alone anymore. We'll do all we can to help you.

Guiseppi

Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
icedragon
Ex Member



Re: Does this never end!
Reply #2 - Jun 10th, 2008 at 1:03pm
 
I agree, OUCH! 

We all know how this can effect sleep.  It seems the less you get the more the beast smiles.  I don't know about everyone else, but I try to stay away from energy drinks during the sleeping hours.  Then again, I have O2 to help me abort the night time hits and can easily fall back to sleep.  O2 has really changed my life for the better when I am in a cycle.  I hope it works for you too.

Many PF wishes
Thomas

Back to top
  
 
IP Logged
 
thebbz
Ex Member



Re: Does this never end!
Reply #3 - Jun 13th, 2008 at 3:20pm
 
Chin up!!!
Yes it ends. Dont give up.....ever.
Like the sarge said, you need a treatment plan. You can get control.
Hope your doing better.
thebb
Back to top
  
 
IP Logged
 
-johnny-
CH.com Sponsor
***
Offline


theres no smoking on the
dock


Posts: 1642
fayette county ohio
Gender: male
Re: Does this never end!
Reply #4 - Jun 14th, 2008 at 12:41pm
 
when i was in high cycle and not getting any sleep i would obsessively get on this board and learn all i could about my enemy. going weeks without sleep will test you, and you will never get used to it but your determination will get stronger and we are here to help you through this Wink.
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
 
IP Logged
 
Sophia
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 139
Re: Does this never end!
Reply #5 - Jun 14th, 2008 at 1:48pm
 
I agree that these cluster headaches are no fun whatsoever. I am in my first cluster episode that has been diagnosed and it has been going on for about 3 weeks. I am wondering if it ever ends myself. You are not alone. Please dont feel that way. If we were alone in misery then this website would not exsist. I feel for you and wish there was a magic pill to take away the pain. Dont let the demon get you down. He is mean and will struggle to keep you there.
Hugs Sophia
Back to top
  
 
IP Logged
 
BarbaraD
CH.com Alumnus
***
Offline


Hugs to ya


Posts: 8333
Douglasville, TX
Gender: female
Re: Does this never end!
Reply #6 - Jun 16th, 2008 at 8:56am
 
have you tried taking Melatonin (12-15mg) at bedtime. This has helped a lot of us get thru the night hits. I've been on it for several years and very seldom get hit at night.

Hugs BD
Back to top
  

What don't kill ya, Makes ya stronger!
 
IP Logged
 
coach_bill
CH.com Hall of Famer
*****
Offline


"Dont expect me to lay
down for this"


Posts: 680
x0|euclid|USA||0|0|OH,Ohio
Gender: male
Re: Does this never end!
Reply #7 - Jun 16th, 2008 at 10:04pm
 
Hang in there, I know this sounds crazy but you need to get on a strict sleep pattern,  melatonin at night can sometimes keep the beast at bay ( or at least slow him down a bit ) but talk to your doctor 1st.  Just try to make sure you get to sleep everynight at the same time, its just me but we all know the beast keeps a very, very tight schedule and he mostly starts when the change in your schedule starts, like summer hours and you going to bed later, so if he can run a tight schedule than so can you. Fight fire with fire. So get to bed everynight the same time no matter what untill you beat this shit right back into remission. I hope you feel better soon. Coach Bill
Back to top
  

boy i cant wait till it's my turn to give him a headache. paybacks a bitch
WWW  
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!