I am writing this in coordination with Bob Wold (Pinkfloyd) and with his consent.
I am not a user, nor am I a (outspoken) supporter of busting, I have stated in numerous
occasions on this board I can not use “alternative” ways for practical reasons as well as ethical ones.

BUT

The facts above do not stop me from searching, trying to learn, trying to improve the knowledge data base,
and most important, to learn from you all, form the ones that took the step and use “alternative” ways,
whether I use the method or just listen.

As the Talmud teaches me (us) ““Who is wise? he, who learns from all,”

Ergo „The end result of wisdom is... good deeds.”    (good for our self)

This thread is for every one!

This thread is for those of us that have, or have had the experience with busting CH, using LSD and or
other “alternative” means and ways and are ready to share with us the required information.

I would like to ask all of you to try and stay within the “area” of LSD, Psilocybin, and similar, such as
LSA seeds.

Not remedies such as Taurin, Kudzu and /or other such alternative means.

I would like  you to give us, not how you feel about it (that is an obvious, you do use it),
only what is your experience, and result,
In essence, the practical experience.  The “Emotional”, and subjective opinion left out.

if you find the need, after the practical description, you can (and should) share subjective experiences,
with an honest evaluation of the positive as well as negative experience.

This is not a thread of homage to CB, it is (I hope) “only” to share information!

I (as I believe some of you wrongly think) am not an opponent / disputant of the CB way,
in the contrary, I think, and hope it is a way, and (probably) a chance to have in the future
a comprehensive solution to our malady.
But at the same time, and with the same importance and urgency we need to try and find / push
for a combination / treatments that will give some or all of us a good and safe way to deal with CH.

As some of you are aware I am very dedicated to “O2” and its positive, cost-effective, and
non lethal effect on the user, and the high rate of effectiveness, as an abortive.
And to “my injection” an existing “substance”  (Betametason) used by me to treat my CH as a preventive.

We do need the discussion and exchange of knowledge, for it is the only way we will, for the moment,
find hints, and possible new ways to fight our battles.

More important, for the new comers, a good chance to find out about the possibilities, risks, advantages,
the pros an cons, giving them a good “tool” to make the correct decision for themselves, based on
an honest objective evaluation!

For “newbie’s” such as myself, it is a chance to share. Sceptics, and disputant, please use the chance
to ask, in a friendly and respectful manner, without prejudice.

I would like to ask, to listen, to the advantages / disadvantages (if you know them) of CB over the “school Medicine”
All that, not from your subjective point of view, try and support the points you bring with facts (pls try and avoid
generic links on the net, fact supported with, if you can, direct link to the data)

I am a strong believer in facts and numbers,  subjective reports are nice, but can not be used as an objective
platform for any pragmatic discussion, not in my books.

This is very Important to me, and I believe to my Co author Bob Wold (Pinkfloyd), its not about the
“movement” CB,
It is about honest, objective, polite, respectful open discussion about a plausible treatment method,
with a big emotional “black powder” effect

I understand some people have a few questions, and a some people have many questions. It would help the flow of the thread, and the time constraints of those that will answer them, if questions are kept to one or two per post. A post with a list of 20 questions will not only become difficult to keep organized but some questions may also take many hours of research. (I do work full time Job,
and in order for us - Bob and my self, mostly Bob, to have answers we, (he) needs to do research!)
The FAQ (Frequently Asked Questions) on the clusterbuster website answers many of the more basic questions and has taken many people, thousands of hours of research and composition, and years of compilation. I will not direct people to that in this thread, only to keep the questions and answers in one place so people can more easily follow along. (in this thread only )


I will end this post with an old Chinese quote and Carl Rogers:

„Tell me and I'll forget; show me and I may remember; involve me and I'll understand.”

“The only person who is educated is the one who has learned how to learn - and change”

Michael

Best information  I have is this:
They work.(for me) I wished they worked for all. No reason to suffer all that pain if something will alleviate it. Legal or not.
Looking forward to the stimulating conversation to follow.
all the best
thebb

Its this simple, the social stigmas attached to psylocybin as well as it's erroneous FDA classification is impeding research and development as a cluster headache treatment. This (pardon me) pisses me off immensely.
It is robbing me of my right to the pursuit of happiness,  not to mention life and liberty.
Mr DEA.....I have a right to treat my medical problems period. Bite my -butt.   
as always
all the best
thebb

57 y/o male
episodic clusters for 37 years

6 years ago, grew my own shrooms, blended with oranje juice and drank.  Got chills, tremors in my arms, huge feeling of apprehension, some strobing in my vision.  All in all, a very unpleasant experience (and this from a big doper during the late 60's early 70's).

Result - didn't make any difference in my clusters.

A few weeks later, started chewing a small dose of shrooms daily for about a week.  No change.  Gave up on it becasue I ran out of shrooms (I gave away most of my crop to other clusterheads at the Atlanta convention).

I currently have some RC that I will try if my clusters ever come back (I think I am finally too old for these things).

"It is about honest, objective, polite, respectful open discussion about a plausible treatment method,
with a big emotional “black powder” effect"

LSD as an item has had such an overwhelming amount of bad press and sometimes rightfully so.
People predisposed to mental issues should not use these drugs.

Questions I think anyone new to the idea of clusterbusting would want to know to start with.

What is the difference between LSD, Psylocibin and LSA???

Are these drugs proven to be any more or less dangerous than drugs many clusterheads use from the pharmacy??

Hallucinogen sounds scary do we have to hallucinate??

I don't know if this is where I should as about this, but I am wondering about other sufferers' success with marijuana, medicinally.

My husband is in a cycle right now after an 8 year remission.  Paired with ice water and popsicles, it is an effective abortive, but not preventative.

Any other thoughts or experiences?

kikilorilee wrote on Jun 18^th, 2008 at 10:30am:


Seems to only make things worse for me.

I can say that I have "busted" a cycle last yr and have been dosing every three months without any ch....even missed my spring cycle YAY... but for me at least I will have to see if they continue to work...as dopamax was silver bullet for 6yrs and then it stopped working...back to the drawing board...     PFDAN.....Chris

About the weed question. it does nothing to stop or prevent my CH. And god only knows i have tried it plenty of times. but im glad it is working for you. coach bill

I'm episodic, female & 25 years old. My first cycle was at the age of 17, and they came every 2 years in the beggining, now have them once or twice a year. I used to have them in the fall, but the last one was in the spring, now summer...
I tried Prednisone, Imitrex tablets & injections, O2 & now Verapamil on this last cycle, as well as mushrooms.... And it worked wonders. The first time I took them was the same day I started Verapamil, and was PF for 4 days (I had taken an Imitrex shot 2 days prior, not knowing I had to detox). The second time I tried was a week later, but still on Verapamil (as I've read somewhere it doesn't stop the effects of shrooms), and I'm still PF (over 1 week now). Both times I dosed with less than a gram. I felt a little weird, had the giggles for a couple of minutes, and then slept it off... So no high for me, which is good!
I will do it again next time, because it's what works best for me.

pain killers come in all forms... some prescribed ...some found in the next doors yard,, some even find relief  in ya local bottlo...but as lovely as it may be.... a toothache...  even with good drugs doent go away until you  treat the problem itself.


of course ...if ya have been dealt a card that says your leg is three inches shorter than the other ,, doesnt mean ya cant find a good platform shoe that will make you walk normally

demon_tone wrote on Jul 22^nd, 2008 at 11:18am:


    And sometimes ya find an odd nut in a can of Planters.

          Potter