Mrs. Buster
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For the last 5 years, my husband has suffered daily from debilitating CH. He lost his job, is permanently disabled and miserable most of the time. At one time he had a brilliant career in the computer industry, at the top his field. Now he feels his life has no purpose and is clinically depressed. I finally got him to see a therapist once a week. His CH cycle several times a day lasting weeks at a time. His Nero has him on Methadone (titrating off), Ketamine and Butabitol to control (mask) the pain. Nothing really seems to help.
I do my best to keep him in a quiet environment, which is difficult at best with a Bipolar dtr. At one time they were inseparable, going everywhere together. Now he spends 70% of his time in bed medicated, his head covered with a pillow. She resents this tremendously. I try to keep up with the house, child and small business I started 6 years ago, which is difficult at best.
It's always obvious when an attack occurs. He covers his left eye hoping to reduce the pain, or goes up stairs to roll on the floor trying not wake me up in the middle of the night. This pain is far worse than his regular migraines, which he has had his whole life. I often fail in trying to keep everything under control, and admit I can get frustrated and resentful by his condition. Everything lands on my shoulders, leaving me exhausted, and unfortunately less compassionate. Although I suffer from extreme migraines myself, I cannot imagine his pain.
I wish there was something more I could do. I ask if there is anything I can get him, I rub his head and shoulders. I can't be sure, but his pain could be linked to two distinct head traumas from his youth. He has seen 5 neuros. His current Neurologist of 3 years has tried everything he knows to help with minimal success. The Med-tronic occipital implant only made matters worse. His attitude is often angry, resentful, short and has little patience for our daughter. The intimacy of our relationship is almost nonexistent. It's difficult for a person to want intimacy with another who is so dependent and in pain most of the time. Having failed "Mind reading 101" I never know when the time is right. When it is possible I don't have the energy or desire.
I truly love my husband. I want to share our golden years together traveling and enjoying our marriage. I remain optimistic whether he can or not. Is there any positive prognosis for this condition? Will he/we have to live the rest of our life this way? I can only pray and remain committed to finding a solution to his CH. Hopefully through the success of my business, we will have the means to fully investigate other options to this illness.
Mr Buster 46 Mrs. Buster 47 Daughter Buster 14
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