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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Good to know I'm not alone

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Good to know I'm not alone (Read 2326 times)

Sean

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Good to know I'm not alone
Jun 25^th, 2008 at 3:48am

Hello all!

I now know I've been suffering from episodic ch for a frustrating 5-7 years now. Like most, it was misdiagnosed to other headaches, like Migraines or Sinus issues, until one doctor said she believed it could be Cluster Headaches, something I had never heard of. Nevertheless, I've been dealing with these headaches now for several years by doing just that... dealing. I would attempt to not let it inhibit my life anymore than it already did, so I'd do little to research the problem. To me, the pain is indeed excrutiating. But until now and as a result of my lack of research, I felt either that I was weak to pain, or unable to properly explain the pain to others. After researching this site and matching my symptoms precisely to this disorder, I am relieved to at least confidently self-diagnose this affliction. It's nice to know that others know the pain I feel too, so I can at least have some validation.

So hello to my new-found friends! I'm so happy I've found such a breadth of knowledge on what's afflicted my life for this long time, and I'm sure I'll be able to improve the quality of my life as a result.

-Sean

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Guiseppi

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Re: Good to know I'm not alone
Reply #1 - Jun 25^th, 2008 at 4:10am

and I'm sure I'll be able to improve the quality of my life as a result

And that's the key to beating this damned thing, until they come up with an honest to goodness 'cure!"

When you get a chance tell us what you've used that has and hasn't worked for you. Maybe we'll learn something new from you maybe we can point you in some new directions. It's what makes the board work so well.

So NO, you're not imagining it, YES it hurts like hell left untreated and NO you're no longer alone, welcome home. Wink

Guiseppi

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Jennifer

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Re: Good to know I'm not alone
Reply #2 - Jun 25^th, 2008 at 9:55am

Hi Sean and welcome

You'll find a wealth of information here and great people who can give you tips and strategies to help you not only "deal" with ch, but fight back.

We've all worn the same pair of shoes you now wear, and have walked a well-trodden path. We're all here to help you along the way.

pfdan and welcome to the nuthouse!

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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Good to know I'm not alone Reply #3 - Jun 25^th, 2008 at 10:54am Hi Sean! I just wanted to welcome you! PF Wishes! Jeannie
Back to top	"It's all a grand illusion when you think you're in control." ~ Kenny Chesney IP Logged

thebbz Ex Member	Re: Good to know I'm not alone Reply #4 - Jun 25^th, 2008 at 12:07pm Pain indeed. Welcome and check these out Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or all the best thebb
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Barry_T_Coles CH.com Alumnus Offline Posts: 2073 Karratha\|,West_Australia Gender:	Re: Good to know I'm not alone Reply #5 - Jun 25^th, 2008 at 6:40pm Hi Sean Welcome aboard. Cheers Barry
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Of all the things i've lost in life the thing i miss most is my mind. IP Logged

Superdave CH.com Veteran Offline Posts: 134 x0\|Conroe\|USA\|\|0\|0\|TX,Texas Gender:	Re: Good to know I'm not alone Reply #6 - Jun 25^th, 2008 at 8:07pm Hi Sean, Glad you found your way here it took me 5 years as well Its a great to be in a bad time Superdave
Back to top	Wow! you mean it's just in my head? IP Logged

coach_bill

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Re: Good to know I'm not alone
Reply #7 - Jun 25^th, 2008 at 9:00pm

welcome, yep there are others just like you, and im one of them. Been getting clusters since in my early 20s and just like you i "dealt" with them for 10 years then i found the help, and then i found this site. I thought i was the only person out there but im glad to know im not dealing with this alone. And neither are you anymore, hang in there. coach bill

boy i cant wait till it's my turn to give him a headache. paybacks a bitch

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