Ungweliante
CH.com Veteran
 
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Happiness comes from personal choice \o/
Posts: 169
Helsinki, Finland
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Have you tried going completely caffeine / med free?
A lot of people with clusters have good results from completely detoxing from all kinds of meds / caffeine / etc.
In the book "Heal Your Headache - The 1 2 3 Program", Workman Publishing, 2002, David Buchhold, M.D. advocates detoxing as well. The book is more about migraine than clusters, but I think it has a lot of good stuff. Some excerpts:
"When you have a headache, you just want to get rid of it. If you're like most people, you rely on painkillers. If you use painkillers only infrequently, and they work, that's fine. But by taking certain quick fixes too frequently, you make your headache problem worse and more difficult to control."
"Treating headaches with painkillers is appropriate only if the need arises infrequently, and only if the treatment is safe and effective. This means taking a safe and effective medication at most two days per month for severe headaches and at most two days per week for mild-to-moderate headaches."
"For infrequent severe headaches, triptans are the best acute treatment, but these drugs must be used no more than two days per month or they'll lead to rebound."
"Insidous and cumulative, rebound is the single biggest problem with quick fixes and greatest potential impediment to headache control. Here's how it works. You take a quick fix to relieve a headache. The quick fix helps temporarily. As the quick fix wears off, your headache tendency increases. You bask in the glow of short-term headache relief, but rebound is a dark cloud on the horizon. Thanks to rebound, your headaches keep going - and growing."
"How do quick fixes cause rebound? Most work by constricting the blood vessels around your head that become swollen due to migraine. You can imagine what happens when the formerly swollen blood vessels escape from the temporary, artificial constriction brought on by the drug. They swell with a vengeance in a process known as rebound vasodilation."
"Caffeine - one of the most potent dietary triggers - has a paradoxical effect that makes it appear helpful for headaches in the short run even though it increases headaches in the long run. This is true of caffeine-containing beverages including coffee, tea and certain sodas such as colas, Mountain Dew and Dr Pepper. The reason is that caffeine constricts blood vessels. If blood vessels around your head are painfully swollen because of migraine, and therefore you have a headache, caffeine may provide temporary relief by constricting the vessels. This is why many headache sufferers, recognizing that a strong cup of coffee or a Coke may ward off an impending headache, gravitate toward dietary caffeine....The problem is that as caffeine and its constricting influence wear off, rebound vasodilation - increased blood vessel swelling - occurs. The occurrence of rebound vasodilation when the constricting influence of caffeine wears off is the reason caffeine contributes to headaches long-term. But because you may initially feel relief, you fail to realize that caffeine ultimately worsens your headaches and therefore must be eliminated."
Wishing you pain-free time, Rosa
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