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help (Read 2795 times)
sparkles
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help
Aug 4th, 2008 at 7:20am
 
Hi everyone,
I was diagnosed with cluster headaches in February this year and every lucky not have another attack till last weekend,( still suffering sightly)
Just wanted to hello and hopefully make some friends who understand what I'm going through.
love & hugs
sparkles Smiley
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Life is not measured by the number of breathes we take, but by the number of moments that take our breath away.
 
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DennisM1045
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One wave at a time!


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Re: help
Reply #1 - Aug 4th, 2008 at 8:12am
 
Hi Sparkles!  Welcome to the nut house  Smiley 

As you already know this place is loaded with experience, knowledge and compassion.  Read everything and ask any questions that come up.

-Dennis-
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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.
dennism1045 dennism1045 524417261 DennisM1045 DennisM1045  
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sparkles
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Re: help
Reply #2 - Aug 4th, 2008 at 8:26am
 
Thanks Dennis,
Thanks for the reply.
I have just coming through the denial process of thinking it would just be one off and it would not happen again, feeling very silly now, and still not really wanting to deal with future with cluster headaches.
Sparkles
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« Last Edit: Aug 4th, 2008 at 8:27am by sparkles »  

Life is not measured by the number of breathes we take, but by the number of moments that take our breath away.
 
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AussieBrian
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CH - It's all in your
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Cairns, Qld, Australia
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Re: help
Reply #3 - Aug 4th, 2008 at 8:38am
 
What's wrong with denial?  I swear by it.

G'day Sparkles.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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sparkles
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Re: help
Reply #4 - Aug 4th, 2008 at 8:47am
 
G'day Aussiebrian
Freezin cold and raining here Adelaide, you helped me heaps back in February (patch) but just coming to terms with every thing now.



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Life is not measured by the number of breathes we take, but by the number of moments that take our breath away.
 
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barry_sword
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Bracebridge, Canada
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Re: help
Reply #5 - Aug 4th, 2008 at 8:57am
 
Hi Sparkles and welcome to your new family. Sorry you have to be here but you are not alone with this anymore.

Can you tell us what your doc is doing for you as far as meds and such? o2 is a number one defense for most of us here.
100% o2 at 15 lpm with a NON-REBREATHER MASK at the very first sign of a on-coming hit. This is my abortive that works so good for me and I take Verapamil as a prevent. Talk to your doc about what might work for you.

Others will be along soon to say hi and hang in there and deal with these CH's one day at a time. Read all there is to your left and print off some info about meds and the o2 for your doc if he or she does not respond to what you need.

Nice to meet you.

    Barry Smiley
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QUIT SMOKING SEPT. 03 2005
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AussieBrian
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Cairns, Qld, Australia
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Re: help
Reply #6 - Aug 4th, 2008 at 8:59am
 
Pleasure's mine, darlin'.  That's what we're here for (though I must mention that the beer never arrived).

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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sparkles
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Re: help
Reply #7 - Aug 4th, 2008 at 9:18am
 
Hello
Barry  big thanks for the welcome.
I'm  going to try to get some info ready for Doctor's appt  on Friday.

I'm studying to be Optician while holding down full time job and mum of 2, does any one know can stress trigger an attack?

luv
Sparkles

ps Brian maybe the postie drank the beer lol Grin




l
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Life is not measured by the number of breathes we take, but by the number of moments that take our breath away.
 
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Jeannie
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Re: help
Reply #8 - Aug 4th, 2008 at 9:59am
 
Hi Sparkles!

A warm welcome to you!  Wishing you a very short cycle and many  PFDs.

Take care,

Jeannie
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"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
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tuck
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Re: help
Reply #9 - Aug 4th, 2008 at 10:28am
 
welcome sparkles, you asked about stress,,, wel, countless times "triggers" have been the topic of discussion around here, and the only thing that is constant about CH is, NOTHING IS CONSTANT. just arm yourself with knowledge and be prepared for a hit with whatever abortives work best for you.  Good luck.    Tuck
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cancer shmancer,, i get cluster headaches!
 
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Guiseppi
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Re: help
Reply #10 - Aug 4th, 2008 at 10:31am
 
Stress is a funny one. For some, like me, extended stress can bring on an attack. For others, coming down from stress is what triggers the attack. Hoping your cycle is a short one!

Guiseppi
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Brew
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Re: help
Reply #11 - Aug 4th, 2008 at 2:03pm
 
Denial doesn't exist.
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Ernie Moss aka Wishbone
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Re: help
Reply #12 - Aug 4th, 2008 at 6:51pm
 
Hi Sparkles sorry you're here but here's wishing you days of pain are limited and PF days are soon to come.  As Tuck and Gusisppi said on stress I think I am more prone to get hit coming off that during high stress as I am under high stress most of the time.  Currently I am in high cycle 6 to 10 hits a day, but my stress level is really not very high.  Take care and hit the O2 quick.  Don't wait until you know for sure if it is the monster err on the side of being wrong.  Wishbone.
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It don't cost a nickel to be nice and by being so you might just make someone's day.&&Ernie Moss
 
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sparkles
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Re: help
Reply #13 - Aug 5th, 2008 at 6:09am
 
Thank you  very much for all your support everyone  gave me yesterday, it was amazing.
I'm trying to read up as much as i can, but the computer kills my head  Sad
At least the feeling of having a knitting needle poking in my left eye over and over again has gone today  Smiley
thanks again f
Sparkles

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Life is not measured by the number of breathes we take, but by the number of moments that take our breath away.
 
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