Click this link to read a post I like on the clusterheadaches.com message board...

Jul 5^th, 2025 at 7:55pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Daily Chat › General Posts › Philly Clusterhead Lunch Today!!

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

Philly Clusterhead Lunch Today!! (Read 982 times)

Lizzie2

CH.com Sponsor

Offline

"L'Chaim"~Hebrew Toast~"To
Life"

Posts: 4824
Boothwyn, PA
Gender: female

Philly Clusterhead Lunch Today!!
Aug 7^th, 2008 at 8:12pm

Well, Charlotte (Cash5542) has the official pictures from today's luncheon, but I just wanted to say what a blast I had with Lisa (swimchica), Charlotte (Lisa's mom - Cash5542), Matt (I'm sorry Matt - I don't know your CH.com screenname!), and Matt's mom, Janice.

Lisa (and Charlotte) was up for an appointment at the Headache Center, Matt and his mom were there for some testing, and I drove down to meet them and take care of some paperwork.

I don't want to give away anyone's personal medical conversations without their consent, but all I can say was that it was a great experience and great to connect once again with others who understand what it is like to have CH! OK well I'll have to give away one thing and say it was also great to meet one of the 3 (including me) people that my neurosurgeon has implanted this particular combination of leads in for a stimulator. We all had a lot to talk about!

I'm hoping that Lisa, Charlotte, Matt, and Janice all had safe travels home!! Charlotte, I'm counting on you to post or email the pics, because I definitely want copies!!

In the end, all I can say is that there is never enough time, and, as usual, there is nothing like meeting another clusterhead!!

Love and hugz,
Carrie/Lizzie2

~~"Don't know much about your life. Don't know much about your world, but Don't wanna be alone tonight on this planet they call Earth."~~

IP Logged

Click Here to visit the CH.com Facebook page!

Jonny Ex Member	Re: Philly Clusterhead Lunch Today!! Reply #1 - Aug 7^th, 2008 at 8:23pm .....SWEET!
Back to top	IP Logged

ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Philly Clusterhead Lunch Today!! Reply #2 - Aug 7^th, 2008 at 11:07pm I am *HURT!!!* I wasn't invited!!! (not that I would have made it, but that is irrelevant ...) <Sniff sniff> Chuck
Back to top	CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

Lizzie2

CH.com Sponsor

Offline

"L'Chaim"~Hebrew Toast~"To
Life"

Posts: 4824
Boothwyn, PA
Gender: female

Re: Philly Clusterhead Lunch Today!!
Reply #3 - Aug 7^th, 2008 at 11:12pm

Awww Chuck! Now I feel bad! Actually there are lots of people even in the immediate area, but we never really arranged this much ahead of time!

I knew Lisa and Charlotte were coming up for Lisa's appointment, and so I had offered to drive in and meet them for lunch. I actually didn't know that Matt and his mom would be there until Charlotte called me as I was parking my car and said, "Guess who we ran into?" or something like that! Somehow they found out each other was down at Jefferson, so we all got together!

It was a bit impromptu!

You would have definitely added to the life of the party, however! Although us CH yunguns do know how to have a good time together...! Wink

:-P

Hugz,
Carrie

~~"Don't know much about your life. Don't know much about your world, but Don't wanna be alone tonight on this planet they call Earth."~~

IP Logged

sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: Philly Clusterhead Lunch Today!! Reply #4 - Aug 8^th, 2008 at 7:51am Carrie, great that you guys got to meet! Fantastic! Can't wait to see the pics... Sanna
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

kevmd CH.com Hall of Famer Offline Who needs a hypothalamus anyway? Posts: 524 x0\|philadelphia\|USA\|\|0\|0\|PA,Pennsylvania Gender:	Re: Philly Clusterhead Lunch Today!! Reply #5 - Aug 8^th, 2008 at 8:41am I could have been there in 10 minutes! I'll have to start giving out my phone number
Back to top	PHILADELPHIA PHILLIES 2008 WORLD CHAMPS IP Logged

swimchica623

CH.com Old Timer

Offline

Get hit. Hit back harder.
That's life.

Posts: 284
Ocean Pines, MD, USA
Gender: female

Re: Philly Clusterhead Lunch....Pictures!
Reply #6 - Aug 8^th, 2008 at 1:22pm

okay here are some pictures...we will have to do this again with better planning!

Carrie, Matt, and me in the downstairs lobby at Jefferson Hospital (we did meet after dr appts after all!) Matt was the first CHer I met when we were placed in neighboring rooms, and then I got to meet Carrie when she visited me in the hospital last year. I thought it was really neat to walk out of those doors together. Matt thought it would be neat to stop the automatic doors from moving.
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Carrie, Matt, and me at lunch.
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Carrie explaining the workings of the stimulator...
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

« Last Edit: Aug 8^th, 2008 at 1:23pm by swimchica623 »

IP Logged

Lizzie2

CH.com Sponsor

Offline

"L'Chaim"~Hebrew Toast~"To
Life"

Posts: 4824
Boothwyn, PA
Gender: female

Re: Philly Clusterhead Lunch Today!!
Reply #7 - Aug 8^th, 2008 at 10:58pm

Thanks for posting the pics, Lisa! It sure was great to see you guys!!!

Kev - next time we will try to be a little more organized!

It's a 25 minute drive for me into Center City, but I do it almost every single day for one reason or another so it seems like 2nd nature. It'll be a bit farther once I move to PA/DE line next month!

We have so many CH'ers in this general area, we really must all get together soon!

Hugz,
Carrie

~~"Don't know much about your life. Don't know much about your world, but Don't wanna be alone tonight on this planet they call Earth."~~

IP Logged

kevmd CH.com Hall of Famer Offline Who needs a hypothalamus anyway? Posts: 524 x0\|philadelphia\|USA\|\|0\|0\|PA,Pennsylvania Gender:	Re: Philly Clusterhead Lunch Today!! Reply #8 - Aug 8^th, 2008 at 11:27pm I agree carrie. Lets get everyone we can. THe only other CHer I have met is a friend from work. Looking forward to it. Where are the rest of ya Philly peeps? Still crying from Pittsburg beating us in baseball and football tonight
Back to top	PHILADELPHIA PHILLIES 2008 WORLD CHAMPS IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!