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Any one from the UK? (Read 26069 times)
mrs mac
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Re: Any one from the UK?
Reply #25 - Feb 17th, 2009 at 9:13am
 
Andy and i will be in London on the 2nd March, if anyone fancies meeting for a drink and a chat let me know!!


Sandra xx
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LeLimey
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Re: Any one from the UK?
Reply #26 - Feb 17th, 2009 at 9:55am
 
me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me me   .... can I come?! LOL  Wink
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LeLimey
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Re: Any one from the UK?
Reply #27 - Feb 17th, 2009 at 9:55am
 
I promise I'll behave (just not well!)
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mrs mac
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Re: Any one from the UK?
Reply #28 - Feb 17th, 2009 at 1:25pm
 
hmm don't know if we can let you  Shocked Grin..............................................................................
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... oh ok then!!!!!!! Cheesy Cheesy Grin Grin
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mrs mac
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Re: Any one from the UK?
Reply #29 - Feb 17th, 2009 at 2:37pm
 
so!!! anyone else interested?? or is it just going to be me and helen????? oh and andy lol


xxx
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mrs mac
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Re: Any one from the UK?
Reply #30 - Feb 19th, 2009 at 7:54am
 
so it looks like it's just going to be Andy myself and Helen???















please someone else come too, don't leave us alone with Helen, she's mad???? Cheesy Undecided Wink Tongue Tongue
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mrs mac
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Re: Any one from the UK?
Reply #31 - Feb 23rd, 2009 at 6:30am
 
bump!!!
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darknight
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Re: Any one from the UK?
Reply #32 - Mar 2nd, 2009 at 8:37am
 
sorry up North and unable to take time off to come see you hope you have a good time catching up!!!
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RaceAce
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Re: Any one from the UK?
Reply #33 - Mar 3rd, 2009 at 12:48pm
 
Hi All
I am in preston, lancashire.
Been a ch for 10yrs now, diagnosed about 3yrs ago. Have been in a cycle for approx 8 weeks now ! Having to dance with the demon about twice every 24hrs usually keep tabs on the daytime visit but the 1.30am  tango is a killer ! Sad

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Steambug
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Re: Any one from the UK?
Reply #34 - Mar 14th, 2009 at 4:56am
 
well I was in London on 2nd March - but sadly was in the neuro ward of a big hospital!

would love to meet any fellow CH'ers in the UK, I'm currently living in the midlands (used to live in london so have friends and family there).
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mookster
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Re: Any one from the UK?
Reply #35 - Jun 2nd, 2009 at 4:37am
 
hey there uk people! hey pete, i'm pete too, in london.sw2... erm, you're not me are you?? lol i've never met another clusterhead.. are there any meetings out there? anybody want to organise one? shall i organise one? lol... am i asking too many questions?
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OllyJay
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Re: Any one from the UK?
Reply #36 - Jun 12th, 2009 at 10:21am
 
Hey there, just found this site yesterday. What a find. So nice to read about the pain of fellow sufferers (you know what i mean!)

I also want to meet a fellow sufferer/s, would be great to talk with others that truly understands my (our) pain, and to hear how they cope. Suffered 8 years diagnosed last september, so still learning all the terminoligy but i get seasonal attacks spring/autumn.

I live in London too NW10

Would be great to meet for a drink or something even if it is just water. lol.

OllyJay
ollyrocket@hotmail.co.uk
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Nigel Noone
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Re: Any one from the UK?
Reply #37 - Jun 19th, 2009 at 4:36am
 
I live in Market Harborough, Leicestershire so would love to meet up with some locals too.

Cheers

Nige.
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davedmk
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Re: Any one from the UK?
Reply #38 - Sep 8th, 2009 at 6:21pm
 
hi to all ,i live in devon 12 years of chronic headaches ,imigran injections,indomethacin,verapamil,and oxygen,three to four major headaches everyweek and a constant headache 24/7,,,,,,,,,oh the joy!!!!!!!!!!!!11
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QnHeartMM
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Re: Any one from the UK?
Reply #39 - Sep 9th, 2009 at 12:07am
 
Darn we were just there in August! We did get to meet up with Andrewjw though!
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darknight
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Re: Any one from the UK?
Reply #40 - Sep 15th, 2009 at 5:33am
 
Hi Peeps,

Sorry not been on for a while hope ur all ok and have met up with those that wanted.

PFD to ALL
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davedmk
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Re: Any one from the UK?
Reply #41 - Oct 18th, 2009 at 9:55am
 
hi guys anyone around devon?
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boybath
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Re: Any one from the UK?
Reply #42 - Nov 8th, 2009 at 2:41pm
 
There's a talk soon in start of Dec at the RUH in Bath any other peeps want to join then please contact Le Limey
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Judicotswolds
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Re: Any one from the UK?
Reply #43 - Dec 13th, 2009 at 6:20pm
 
Hello
I'm Judi from Stroud.  Just realised it started 40 years ago.  2 Years ago had incredible attack taken into AAU diagnosed with transient ischaemic attack (mini stroke) kept in hospital for days.  few months later same symptoms taken nto aau again this time sent for Neuro and asked if it could be CH - light bulb went on and he said YES THAT IS WHAT IT IS - now thinks I didn't have TIA (good) but no further treatment. On Monday this week bam wanted to die by Wednesday saw ~GP Thursday amd asked for O2 after finding this site.  He told me they couldn't prescribe it on l hospitals could?  Did ring my neuro and rang to tell e I could have (I think its called Matax on here) It definitely helps no major wham but still constant shadows. Now believe GP wrong and can prescribe 02.  seeing him Thursday so insisting on going back to neuro at Glos Royal armed with the brilliant info from this wonderful site.  I would like to meet with others but as I am 62 rund a small contemporary gallery on my own maybe no time or too old for all you other Brit sufferers face to face.

Happy painfree Christmas to you all.

Judi
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Carolyn
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Re: Any one from the UK?
Reply #44 - Jul 2nd, 2010 at 5:18pm
 
Hi I'm Carolyn in County Durham been a chronic sufferer for 3 and a half years now.... why is everyone down south  Undecided
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darknight
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Ever danced with the devil
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Re: Any one from the UK?
Reply #45 - Aug 16th, 2010 at 12:45pm
 
Hi Carolyn,

there not all from down South lol, im from Manc and not been on for a long time, hope your well!!!

PFD to all

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Mike NZ
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Re: Any one from the UK?
Reply #46 - Aug 16th, 2010 at 7:46pm
 
Carolyn wrote on Jul 2nd, 2010 at 5:18pm:
why is everyone down south Undecided


I'm originally from Yorkshire, but I now live even further south.
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paula banyard
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Re: Any one from the UK?
Reply #47 - Aug 26th, 2010 at 6:46am
 
hi there, i've been a ch sufferer for the last 20yrs, currently in staffordshire but originally from kent. only diagnosed a few yrs ago after reading a small paragraph in a migraine book at the local supermarket!!!!! use imigram injections and a steroid taper, which seems to stop the cycle, but they seem to be coming more frequently, had a cycle 2/3 mths ago, but it seems the beast is beast is back agen with 2 visits this morning. docs are pretty good, i just ring, tel them the beast is back and the prescription is ready in the hour. fotunately its reared its head today as im off to visit the parents tomorrow lol, so i can go fully armed for war

thats me then, nice to see some more uk ch'ers here

wishing u all pfd's

paula
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Dale Caffrey
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Re: Any one from the UK?
Reply #48 - Aug 28th, 2010 at 6:50pm
 
Hi people. I'm in Milton Keynes & have been an episodic CH sufferer for the last four years. With an extreme stroke of luck got diagnosed during my first cycle (@ 25YO) & have had them every year since around the end of summer. Had my worst ever attack three nights ago & have been scared of my bed ever since.

Nice to know I'm not alone.

Dale.
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Re: Any one from the UK?
Reply #49 - Sep 6th, 2010 at 1:12pm
 
hi im in the uk berkshire im new to this but have been having headaches for years was told by my doc this morning its ch thank god but not really lol have been given pills and told to wait 6 wks
nice to see other ppl in the uk  Grin
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