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barry_sword

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Mountain Biking Keeps
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Remission Is Over For Me.(Update)
Aug 30^th, 2008 at 7:38am

Look's like my PF time has come to an end. I was hoping they were rogue hits and the o2 was taking care of them but they started coming more often and more intense. The past few nights reminded me all to well why I am here.

I held off on the Verapamil as we are just starting our fall biking season and was hoping they were fluke hits but last night the beast made it clear he is back. So I am on my Verapamil as of this morning and my o2 is full and ready to do battle.PFDAN wishes to each and everyone of you, may he leave you be.

Barry

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« Last Edit: Sep 8^th, 2008 at 7:11am by barry_sword »

QUIT SMOKING SEPT. 03 2005
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Don

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Re: Remission Is Over For Me...
Reply #1 - Aug 30^th, 2008 at 9:05am

I'm joining you again. It's been 19 months for me and it felt like a world record and then the devil came a knockin again. A slight tinge of aura and foreshadowing yesterday as I completed some tasks and then came midnight, I awoke to the devil. He came in the door like he owned the place, made himself comfortable in the right side of my brain and decided to stay.
After a mad scramble for an old imitrex scrip, I settled into the Living room so not to wake up the wife and kids with daddy's moaning and groaning. It all comes back the pacing, the head banging and that feeling of being Charleton Heston in beneath the planet of the apes..."GET OUT OF MY HEAD!" Hoping this is a short cycle and wishing you all PFD's to come.

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aloneuk CH.com Alumnus Offline Posts: 801 x1\|hertfordshire\|United_Kingdom\|europe\|184\|232\| Gender:	Re: Remission Is Over For Me... Reply #2 - Aug 30^th, 2008 at 9:05am Barry im really sorry your cycle is starting again, Here's hoping it's the fastest cycle ever!! Hang in there im rooting for ya Ike
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aloneuk CH.com Alumnus Offline Posts: 801 x1\|hertfordshire\|United_Kingdom\|europe\|184\|232\| Gender:	Re: Remission Is Over For Me... Reply #3 - Aug 30^th, 2008 at 9:09am Sorry don i missed your post there, You hang in there too, It will pass Good Luck and feel free to rant here when ever you need to we know what your going thru
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Remission Is Over For Me... Reply #4 - Aug 30^th, 2008 at 9:12am Thanks Ike Don, sorry the beast is back, but hang in there, and do not be a stranger or fight this on your own. We are all here for you. Barry
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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: Remission Is Over For Me... Reply #5 - Aug 30^th, 2008 at 10:19am Sorry you guys are in pain again lets hope it is a short cycle with long remission afterwards Regards Brian
Back to top	PF Wishes to all.&&We all live with this crap But it is not who we are dont let it control you!!!. IP Logged

sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: Remission Is Over For Me... Reply #6 - Aug 30^th, 2008 at 12:55pm Barry, I'm so sorry that the remission is over - for now. I hope that you will soon be PF again. Don, I'm sorry that you're in pain as well. I hope that you'll be soon in remission. PF days to us all, Sanna
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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Remission Is Over For Me... Reply #7 - Aug 30^th, 2008 at 2:21pm
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itotka CH.com Old Timer Offline Oxygen Posts: 465 Budapest\|Solar System Gender:	Re: Remission Is Over For Me... Reply #8 - Aug 30^th, 2008 at 2:48pm Wish you guys short and successful battle and PF days, Steve
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Guiseppi

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Re: Remission Is Over For Me...
Reply #9 - Aug 30^th, 2008 at 4:31pm

Barry I got nothing to say to you...you already know everything! Wink

Don.......hoping you have more then just the imitrex to fight these things with. Do you have a good preventative medication like verapamil, lithium etc? Do you have oxygen for the headaches when they start? Imitrex is good but with my lithium and oxygen I RARELY have to get poked anymore. Give us a run down of what you use and let's see if we can give you some more tools for the battle.

Wishing both of you short cycles and record long remissions!

Guiseppi

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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Remission Is Over For Me... Reply #10 - Aug 30^th, 2008 at 7:40pm Well, that's rotten. Barry, hoping this one is short, mild, and soon over...you're a pro, and I know that whatever comes, you'll handle it with grace. Don--all good wishes to you. If there's anything at all we can help with, please let us know. Best, George
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pubgirl

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Re: Remission Is Over For Me...
Reply #11 - Aug 30^th, 2008 at 7:50pm

Barry and Don

I empathise! I was two years clear and it came back with no warning.

Mad scramble to stock up on 02, mend masks, order triptans (I am afraid I used out of date tabs and jabs but they still worked Thank God!)

No bloody clue why I started again though vague theory that our terrible summer and low light levels made my hypo think it was Autumn but will never know

Hang in there- it will go away again

Love

W the B

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Drew37 CH.com Junior Offline Posts: 26 x0\|Bracebridge\|Canada\|\|0\|0\|ON,Ontario Gender:	Re: Remission Is Over For Me... Reply #12 - Aug 30^th, 2008 at 10:32pm Don & Barry Sorry to hear that the beast has reared it's ugly head once again, hoping that this bout is short lived, best wishes for pain free days & nights... Drew
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mezza CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 415 north carolina Gender:	Re: Remission Is Over For Me... Reply #13 - Aug 30^th, 2008 at 11:06pm Thanks sucks guys! hang in there and hoping he leaves early for you! Kelly
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Remission Is Over For Me... Reply #14 - Aug 31^st, 2008 at 7:18am Wishing you all some PF vibes, a short cycle and a LONG remission ahead... Hugs BD
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Remission Is Over For Me... Reply #15 - Aug 31^st, 2008 at 7:27am Thanks for the support you guys. Don, how are you making out? Check in and keep us up to speed. Do you have o2? Barry
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: Remission Is Over For Me... Reply #16 - Aug 31^st, 2008 at 1:05pm Stay diligent guys, hoping preventive measures are soon to kick in. Quote: He came in the door like he owned the place, made himself comfortable... Doesn't bother to knock but don't let him be a bell ringer, keep what you need handy, we're nearby.
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Remission Is Over For Me... Reply #17 - Sep 1^st, 2008 at 2:05am I am sorry to hear that Barry. But you know the drill around here. Stock up for the fight to come. If you need anything from me, PM me o.k.? I'm betting on a short cycle for you. Linda
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Remission Is Over For Me... Reply #18 - Sep 1^st, 2008 at 8:44am Sorry he's found you again Barry. I sure hope it's a short one. Now go kick his ass! -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

DArcy

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Re: Remission Is Over For Me...
Reply #19 - Sep 3^rd, 2008 at 5:09pm

Hey Barry, sorry to hear. You've offered me some help and I'd like to do the same, although I don't know how. The offer is there though. I've been PF for a couple of months now. I tend to really not think about them when they are not in cycle, that's the reason I haven't been on the board lately. I don't mean to use you folks, but man, I just love to enjoy life when it's not happening. I don't know how many folks between you and I have this, but I'd sure love to talk to someone in person that deals with the same thing someday.

Cheers, and hope this cycle doesn't last long for ya.

D'Arcy

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DArcy CH.com Newbie Offline I Love CH.com! Posts: 16 Sudbury Gender:	Re: Remission Is Over For Me... Reply #20 - Sep 3^rd, 2008 at 5:15pm Don, I just read my own post, didn't mean to be rude to you. We haven't met but I wish a short and mild cycle for you as well! Cheers, D'Arcy
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Remission Is Over For Me... Reply #21 - Sep 3^rd, 2008 at 5:17pm Sending short cycle/long remission vibes your way! Jeannie
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thebbz Ex Member	Re: Remission Is Over For Me... Reply #22 - Sep 3^rd, 2008 at 5:41pm You know the drill Barry. Give'em hell. Demon killer vibes to you and yours thebb
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kimh CH.com Hall of Famer Offline What don't kill ya makes ya stronger Posts: 778 x0\|Shirley\|USA\|\|0\|0\|NY,New_York Gender:	Re: Remission Is Over For Me... Reply #23 - Sep 3^rd, 2008 at 7:15pm Me too - it's been 3 years. Weather here in NY turned and this year it tripped the light fantastic I got my teletubby towel on deck and ice packs in fridge. Purchasing ChockFullaNuts by the truckload. Gonna stay med free as long as i can hold out. Best to you and hope it's a short walk this time***
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Remission Is Over For Me... Reply #24 - Sep 3^rd, 2008 at 7:43pm Sorry Don! I missed your post too. I'm sending a mega dose of beast kicking vibes your way too. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

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