DV8
CH.com Newbie
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Posts: 11
Amsterdam, The Netherlands
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Hello, everyone, I'm new to the website, but not new to clusterheadaches. I first got diagnosed 8 years ago, but there are serious indications that I've been suffering from them for a bit longer than that. I'm now 30 years old, and I've just entered the second cluster since diagnosis, after almost 7,5 years of remission. I realise from reading some of the stories on this board that I am one of the lucky ones, with long remission times and a relatively short episode. My first episode since diagnosis was roughly 8 weeks long, with about two attacks per week of about 45 minutes per attack. Each attack was about an 8 or 9 Kip attack, and I found a small measure of relief from the subcutaneous injections of Imitrex I got.
Last saturday another cluster started, but the attack was exceptionally short, about twenty minutes. Since saturday I've had two more attacks, and have since gotten the Imagren nasal spray, but that stuff just doesn't work fast enough and isn't giving me any relief. The attacks are again in the 8/9 Kip range.
One of the irregularities of my attacks seems to be the lack of tearing of my eye (though they do tear due to crying) and the lack of a running nose. Also, I sometimes vomit from pain, and on occassion, usually when in a public place or when it's otherwise inconvenient, I get panic attacks that lead me to blacking out from the pain. When I panic I can't seem to keep myself under control, and I can't calm myself down enough to keep from blacking out.
I know that a lot of you might read this and know several dozens of examples much worse than mine, and perhaps think that I should praise myself lucky to have such long remission times, such short attacks, and such short episodes, but as can be expected, it doesn't quite feel that way, even though I have intellectually come to the same conclusions.
I don't have many of the social problems that accompany this affliction; everyone is very understanding and willing to help out. Today I had an attack at work for the first time and my colleagues were all very respectful, helpful and understanding, even though it freaked them out to hear my cry out the way I did. In the end, even when they say they understand, I can see they don't truly understand, which frustrates me sometimes. My girlfriend, my family, my friends, they all just don't quite get it. I think that this lack of understanding is what forced me to sign up and say hello, at least most of you will understand.
In the meantime, I try to lead a normal life and battle my way through this episode. If the previous episode is anything to go by, I think it might take about six weeks, give or take a week, in which my mantra seems to be; "Pain is temporary. Pain is temporary. Pain is temporary." Although I realise that for some of you it isn't, forgive me, it's the way I deal with it in order to keep my sanity.
The relationships I have had with the two doctors that examined me, first 8 years ago, and now several days back, has been very pleasant. They were both knowledgable on the subject and while the first took a while to diagnose me as a clusterhead, manage to get there within a week or two, after the mandatory MRI, etc. It didn't help that I had been in his office before and since then quite a bit for shock-trauma due to the contact sports I do (MMA, mostly). He initially figured it must've been a result of whiplash from a punch, kick or slam, but finally, after having collated all the information, settled on CH's.
So yeah...eh...hi! How are you guys and gals doing?
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