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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New Member - happy to find this site

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New Member - happy to find this site (Read 1122 times)

NickW

CH.com Newbie

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I Love CH.com!

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New Member - happy to find this site
Oct 15^th, 2008 at 11:47am

Hi all,

Im very pleased to have found this site, I have been hoping to find something like this since I was told I was suffering from CH's.

Im 40, office manager with a finance company living in London. I have been suffering for the last 12 weeks with CH's. This (I think) is my 3rd bout of attacks in the last 4 years. I've been quite lucky in that my GP thought it might be CH and sent me to a Neurologist immediately - in London that means 3 months!!.

At the start of this period I was having attacks 3/4 times a day and usually 1 at night that would wake me up. I dont think I need to tell anyone here the pain.

I think Im on the last legs of this bout - the pain is only coming every few days now and not quite as acute.

My GP has been keeping me dosed up on Tramadol - 4 times a day - it works but its ruined my sleep / eating and I wander around work in a bite of a haze. Im lucky that my company are fully supportive of me.

My Neurologist is changing my medication - Im not really sure what it is yet - but I will let you all know !

Good luck to you all

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AussieBrian

CH.com Hall of Famer

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CH - It's all in your
head!

Posts: 3851
Cairns, Qld, Australia
Gender: male

Re: New Member - happy to find this site
Reply #1 - Oct 15^th, 2008 at 12:02pm

NickW wrote on Oct 15^th, 2008 at 11:47am:

I have been hoping to find something like this since I was told I was suffering from CH's.

You poor deluded fool. Run away now while you have the chance! Delay at your peril!!!

Well, obviously you haven't taken my advice so welcome home. You're right about not having to tell anyone here about the pain because we know only too well what you mean. From the inside. So there's also no need to explain.

There's a wealth of knowlege here at ch.com and we're only too happy to share. Ask all the questions you wish and we'll help all we can, even though you're English.

Cluster headache can be a rough ride but there's ways to smooth the waters.

Welcome aboard,

Brian down under.

My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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darknight

CH.com Veteran

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Ever danced with the devil
by the pale moonlight?

Posts: 188
x0|Manchester|Great_Britain||0|0|
Gender: male

Re: New Member - happy to find this site
Reply #2 - Oct 15^th, 2008 at 12:38pm

Welcome NickW,

Have a look around on this site the more you information you collate the better you will be at keeping the beast at bay.

I am a preacher for Oxygen, I love Oxygen. The minute an attack begins im straight on it for 15-20 mins and the beast relents, it is my silver bullet and hope you find yours. Try it and see if it works for you!!

PFD TO ALL!!!!

Si

This is My Gift My Curse!!

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maalstroom CH.com Old Timer Offline ''Dance to my tune''.... the hell I will! Posts: 491 the Netherlands Gender:	Re: New Member - happy to find this site Reply #3 - Oct 15^th, 2008 at 12:50pm Hello Nick, Wanna wish you a heartely welcome from the Netherlands. As Brian stated, ask anything and there will always be someone at your call. Can't even begin to tell you how much support there is, and it DOES help to have an ear that listens. Painfree days to you. Pascal.
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thebbz Ex Member	Re: New Member - happy to find this site Reply #4 - Oct 15^th, 2008 at 1:23pm Hi Nick, Get rid of the trammy's. They can be a trigger. Welcome and good luck with the neuro. thebb
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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: New Member - happy to find this site Reply #5 - Oct 15^th, 2008 at 1:37pm Welcome to the group Nick. Lots of info and support here JPC
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