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What do Shadows feel like? (Read 2146 times)
carolinagirl4ever69
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What do Shadows feel like?
Oct 17th, 2008 at 7:17pm
 
I have heard alot about shadows before a cycle actually starts.Can someone describe them?Also can the ch move from one side to the other from one cycle to the next? thanks alot
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Izzy
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Re: What do Shadows feel like?
Reply #1 - Oct 17th, 2008 at 7:42pm
 
I asked my husband what they feel like & he says it's like brain pinches. I don't know if that helps or not...he says his head starts to feel caged & he's fighting off the start of an episode; like having one but not. That's the best explanation he had. His don't switch sides but some people's do. Try reading on this link; it states that some people experience the switching.

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Just Plain Carl
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Re: What do Shadows feel like?
Reply #2 - Oct 17th, 2008 at 8:34pm
 
I get alot of pressure in my head.  Not so much pain.

along with that I will also get some shooting pains.

Sometimes it feels like normal headache that won't go away

never had anything switch sides
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Izzy
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Re: What do Shadows feel like?
Reply #3 - Oct 17th, 2008 at 8:40pm
 
Just Plain Carl wrote on Oct 17th, 2008 at 8:34pm:
I get alot of pressure in my head.  Not so much pain.

along with that I will also get some shooting pains.


I read this Jon & he said that is was effectively what he was trying to explain as a "brain pinch." Hope it's clearer now...
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George
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Re: What do Shadows feel like?
Reply #4 - Oct 17th, 2008 at 10:18pm
 
"Brain pinches" is good. 

Best,

George
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Jonny
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Re: What do Shadows feel like?
Reply #5 - Oct 17th, 2008 at 10:27pm
 
Just Plain Carl wrote on Oct 17th, 2008 at 8:34pm:
I get alot of pressure in my head.  Not so much pain.


On the side of the pain?

Thats a shadow. Its the feeling that its coming, but never does.
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« Last Edit: Oct 17th, 2008 at 10:28pm by N/A »  
 
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Kodiak
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Re: What do Shadows feel like?
Reply #6 - Oct 17th, 2008 at 11:04pm
 
Shadows are obviously the precursors of the headache.  I feel a dull "thud" of a pain.  It's there, but it is so slight when it comes on that, even after 8 years I feel like there is a chance that it will pass.  The problem is that it usually doesn't and it goes from 0 to 60 immediately.  I find when I feel a shadow coming on, I put a finger or two gently on my temple - if I feel my pulse greater on the side that shadows, I know it is coming. 
-- As far as shifting sides, while I have not experienced it, all my reading says that it sometimes does.
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thebbz
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Re: What do Shadows feel like?
Reply #7 - Oct 17th, 2008 at 11:46pm
 
It's the demon parked with the engine running.  Wink Mine include tinnitis, mild jabbing, general ache on the effected side, burning eyes and hot head.
all the best
thebb
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ClusterChuck
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Re: What do Shadows feel like?
Reply #8 - Oct 18th, 2008 at 12:51am
 
As the others have said, a shadow is nothing but a low level hit.  A shadow is a hit that is less than a KIP 4 or 5.  Many times, a shadow never develops into a full hit.  But, a shadow can some times last for hours, or even days ...

Shadows are more annoying, than anything else.

As far as switching sides, they do sometimes switch sides, between cycles.  That is not that unusual.  Something more rare, though, is when they switch during a cycle, or in someone like me, a chronic, they bounce back and forth.  I never know which side I am going to be hit on.  But that is fairly rare.

Does this help?

Chuck
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Pixie-elf
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Re: What do Shadows feel like?
Reply #9 - Oct 18th, 2008 at 1:08am
 
I used to mistake my shadows for sinus pressure. I seriously thought I just had a really nasty sinus infection...

Boy was I wrong...

Oh, on the pulse being greater on one side than the other, I get the same thing... It's annoying to me, really.
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« Last Edit: Oct 18th, 2008 at 1:10am by Pixie-elf »  

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BarbaraD
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Re: What do Shadows feel like?
Reply #10 - Oct 18th, 2008 at 7:29am
 
ClusterChuck wrote on Oct 18th, 2008 at 12:51am:
As the others have said, a shadow is nothing but a low level hit.  A shadow is a hit that is less than a KIP 4 or 5.  Many times, a shadow never develops into a full hit.  But, a shadow can some times last for hours, or even days ...

Shadows are more annoying, than anything else.

Does this help?

Chuck

That pretty well sizes it up for me.

Hugs BD
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Batch
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Re: What do Shadows feel like?
Reply #11 - Oct 18th, 2008 at 11:43am
 
Carol,

Rather than going into some kind of metaphysical and nuanced explanation that’s as easy to hold as a soup sandwich...  Why not talk in more concrete terms that are a bit easier to grasp and upon which we can all agree?  For starters, please consult the origin of the term "Shadow" as coined by Bob Kipple.  It's defined in "the kip scale” link on the left:

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In simple terms as Bob defined them...  Shadows are the pain of cluster headache attacks ranging from Kip-1 through Kip-5.

I prefer to use a more defined physical scale we can all understand like water freezes at 32º F (0º C) and it boils at 212º F (100º C).  If you compare this to the 10-point pain scale, it's Kip-0 to Kip-10.  Now find a point in the middle we can agree upon like...  When does your eye start to water and your nose run?  I anchor that clearly recognizable cluster headache symptom at Kip-6 to Kip-7.   How's that so far?

That's still not sufficient to accurately calibrate the pain scale...  so here's another recognizable cluster headache symptom I think most of us can also agree upon and that's the pain level that wakes you up and at which you cannot get back to sleep.  I've found I wake up around Kip-4 and cannot get back to sleep at Kip-5 or above...  that is…  unless I've had too many rum & cokes.

Now...  just to toss a little more bacon on the fire...  I'll make another observation...   I think there are two types of cluster headache attacks that I call "shadows" and "stingers."  In a numerical sense, and as explained earlier, shadows are cluster headache attacks where the pain is primarily vascular in origin and they fall in the range of Kip-1 to Kip-5.  Stingers cover the range Kip-6 through Kip-9.  They include the vascular pain and also involve the trigeminal nerve with progressively more extreme pain and most if not all the classic cluster headache symptoms…  
 
I stop at Kip-9 as I agree with Chuck…  A Kip-10 is a very special kind of cluster headache that only a few ever experience.  I’ll further qualify that by saying a Kip-10 in Star Trek terms is like going into Warp Drive…  A lot of people claim to have regular attacks at Kip-10, but after talking to folks like Chuck who have actually experienced them over the years, there is nothing regular about them and you'll know when you've had one.  It’s a cluster headache like no other with pain so severe and so excruciating, the ER is the only solution.  And when they finally end... you're left so profoundly washed out and wasted, sleep is the only thing that happens next.

So shadows are a lot like shit…  they just happen...  They creep up slowly, last from twenty minutes to as much as a day or longer, then fade away.  They annoy you rather than hurt at the lower Kip-levels, and rarely ever escalate beyond a Kip-5.  When they do get that high, they consume your attention with a gnawing pain that makes other activities impossible.  

Stingers, on the other hand, let you know at the onset of an attack, that the Space Shuttle engines are at 105% thrust, and both booster rockets have just ignited.  Lift off is inevitable.  They frequently escalate from onset to Kip-7 or Kip 8 in less than two minutes... much less time for some... and you leap or run for your abortive of choice.  You move even faster when a stinger wakes you from a sound sleep because you know the beast already has a head start making an abort long and difficult.

Of course these are just my observations, and I know we are all wired differently, but I hope this helps answer your question about shadows.  I treat shadows like any other cluster headache and I abort them with oxygen therapy at flow rates high enough to support hyperventilation as fast as possible.

Take Care,

V/R, Batch
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Re: What do Shadows feel like?
Reply #12 - Oct 18th, 2008 at 12:34pm
 
the only time i know that my cycle is going to start is when it hearts on the cluster side
at 1st the pain is not strong k4 k5
but if i get it on the cluster side i know it will start the cycle
it never went from one side to the other
for me anyway
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