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Pixie-elf CH.com Hall of Famer Offline I've tried the rest, and busting is the best! Posts: 517 Beaumont,Tx Gender:	Anyone had visual change in your cluster eye? Oct 22^nd, 2008 at 12:02am My Mom is contacting my neuro, I've noticed this over the past few weeks and told her a few days ago... Just asking in case maybe someone else has had this happen. I'm mostly worried it's one of my other neurological conditions acting up, but I figured I'd ask here just in case. slinks back off to bed
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maalstroom

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Re: Anyone had visual change in your cluster eye?
Reply #1 - Oct 22^nd, 2008 at 12:21am

What exactly do you mean Pixie? Is your sight blurred, or does it perceives colours different?
Does it percevere, or just some short time after a hit? Does it hurt in the eyeball, or not at all?

Speaking for myself, I never experienced anything like that, so let's wait what others say about it.
It wouldn't hurt however to contact a doctor about it, ya never know if it's something to be carefull off.

Keep us posted, okay?

All the best, Pascal.

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Pixie-elf

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Re: Anyone had visual change in your cluster eye?
Reply #2 - Oct 22^nd, 2008 at 12:37am

maalstroom wrote on Oct 22^nd, 2008 at 12:21am:

What exactly do you mean Pixie? Is your sight blurred, or does it perceives colours different?
Does it percevere, or just some short time after a hit? Does it hurt in the eyeball, or not at all?

Speaking for myself, I never experienced anything like that, so let's wait what others say about it.
It wouldn't hurt however to contact a doctor about it, ya never know if it's something to be carefull off.

Keep us posted, okay?

All the best, Pascal.

Well, I already have bad vision, astigmatisim, and all of that.

What I mean is, the vision has changed in that eye. As in my glasses prescription is no longer what it should be.

It doesn't feel any different other than normal. I don't mean it changes after a hit. It's the same at all times. It just looks as if my vision in that eye has declined and I need a stronger prescription for that lens.

I only noticed because I realized I was seeing more clearly(with my glasses) out of my right eye than my left. Left is my cluster eye.

I'm hoping someone else has experienced this, or it's just a coincidence that the vision in my cluster eye is getting worse...

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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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Just Plain Carl

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Re: Anyone had visual change in your cluster eye?
Reply #3 - Oct 22^nd, 2008 at 12:55am

   I have. I wear a contact lens in my right eye for reading and nothing in my left eye. My ch is on the left side.
   My vision is not as clear as it was.
   I did read that this is a side effect of Prednisone, so I just attributed it to that. Maybe something else going on. I don't know.
slinking off to bed myself
   JPC

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George

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Re: Anyone had visual change in your cluster eye?
Reply #4 - Oct 22^nd, 2008 at 1:08am

No, haven't noticed any vision changes on my CH side--other than the usual over-forty stuff.

I think it may be unrelated--although Karl mentioned to me this evening that his neuro told him he can often tell which side a clusterhead gets hit on by looking at the patient's retina. Karl didn't know what his neuro meant by that, and I don't either.

Best,

George

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sandie99

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Re: Anyone had visual change in your cluster eye?
Reply #5 - Oct 22^nd, 2008 at 5:01am

Well, my left eye is my better eye, and left is also the ch side (although I've had shadows and few hits on the right).

I have noticed, however, that if there is some sort of hurting on one eye, it's always on the left side. But I do know now that there's nothing to worry about, although I did think in the beginning that ch can have some sort of impact on my left eye. I check my eye sight regularly, and it has stayed the same since 2004.

Sanna

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Indestructible CH.com Newbie Offline Tomorrow is going to be a great day! Posts: 17 KCMO Gender:	Re: Anyone had visual change in your cluster eye? Reply #6 - Oct 22^nd, 2008 at 6:40am Yes I have About 4 years ago I had the worst CH of my life. Afterwards I noticed 'floaters' in my eye, and they've been there ever since. JOHN
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DennisM1045

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Re: Anyone had visual change in your cluster eye?
Reply #7 - Oct 22^nd, 2008 at 7:17am

Before I was diagnosed with CH I noticed a difference in the function of my eyes. My right (cluster side) was significantly more blury than my left. At that time I was convinced that the attacks had something to do with my eye. After all, that's where the focus of the pain was.

After seeing my Opthamologist, I went through a battery of examinations at the Scapens Eye Research Institute in Boston. These are some of the best eye Drs in the world. Other than a slight enlargement of the opitical nerve in that eye, they found nothing wrong with it. The enlargement was chalked up to a genetics. I had reached another dead end...

About a year later I finally got my diagnosis.

Having said all that, I'd consult with my Neurologist just to be safe.

Good luck...

-Dennis-

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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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ninja mom

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Re: Anyone had visual change in your cluster eye?
Reply #8 - Oct 22^nd, 2008 at 11:50am

Pixie,
I haven't had changes like you mention, but I do get floaters and flashes (NOT aura) on the cluster side. Saw my eye doc and he didn't find anything significant-he strongly recommended that I mention this to my neuro, which I did, which just confused the neuro Huh

I think there is a connection but I'm not a doctor, nor do I play one on TV.

Hope you're feeling better!
PFDAN y'all
kathy

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Skyhawk5

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Re: Anyone had visual change in your cluster eye?
Reply #9 - Oct 22^nd, 2008 at 1:16pm

My CH eye is not as good as the other. In '05 I developed a blocked tear duct and had surgery to put in drainage tubes. I was in cycle and had an attack while being rolled out of the O.R. I was on 80mgs of prednisone at the time and thought I was safe.

I have thought since then that maybe this was caused due to getting pred in my eyes from handling it.?? Makes me curious as to how many with eye questions have or are using pred? , Don

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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Anyone had visual change in your cluster eye? Reply #10 - Oct 22^nd, 2008 at 1:20pm Hi Pixie, My right eye is my weaker eye. I don't wear glasses but my left is dominant for sure. CH is right side for me. Jeannie
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Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: Anyone had visual change in your cluster eye? Reply #11 - Oct 22^nd, 2008 at 1:27pm Hello Pixie: I have right sided CH. My right eye is weaker and I started to notice halos around bright lights after my CH started. Ray
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Anyone had visual change in your cluster eye? Reply #12 - Oct 22^nd, 2008 at 4:17pm I have "blurry" days with my left eye (cluster side) and other days that are clear. Never can tell which it's gonna be till I wake up in the morning. Blurry days usually go with a slight shadow. This really started more after I had catarac surgery back several years ago.. Hugs BD
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LeeS

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Re: Anyone had visual change in your cluster eye?
Reply #13 - Oct 23^rd, 2008 at 11:33am

Interesting that you mention cataract surgery Barb. This came up elsewhere recently, following this recent research abstract (although I do appreciate the very low base):

Quote:

J Headache Pain. 2008 Aug 21. [Epub ahead of print]

Cataract in chronic cluster headache: two case reports and review of the literature.

Benemei S, Nicoletti P, Geppetti P, Bonciani M.
Unit of Clinical Pharmacology, University of Florence, Florence, Italy

Cluster headache (CH) consists of attacks of severe, unilateral orbital/supraorbital/temporal pain, lasting for 15-180 min, occurring once or more times a day, and associated with ipsilateral conjunctival injection, lacrimation and other symptoms. Cataract is clouding of the lens of the eye causing a progressive and painless loss of vision. We describe the cases of two men (not relative, but with the same last name, which originates from north-eastern Italy) that in young adult age, after years of suffering from chronic CH, developed cataract on the same side of the pain attacks. Patient 1 was diagnosed as having cataract 18 years after the onset of episodic (and subsequently chronic) CH. Patient 2 began suffering from chronic CH at the age of 44 years and after 8 years he developed cataract. This is the first report of cataract in patient suffering of CH and occurring in the eye affected by the pain attack.

-Lee

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