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  New CH.com Forum › Supporter's Corner › Children and Cluster's › Need advice
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Need advice (Read 2692 times)
DonnaH_again
Ex Member
Need advice
Oct 22nd, 2008 at 1:35pm  
My son John's 12 year old son Brandon has been having what appear to be migraines for a while.

Brandons  having a CT today and I need some input on what meds are safe for kids with Clusters, if indeed that is what the diagnosis will be.

John started the exact same way.........migraines (?) at age 12 turning into clusters at 17.  John took Periactin and then Inderol, but of course neither helped.

John's going to gather some info here to arm himself with, but I know that some of you have children with ch and would like to know what you give them for help.

I also posted this on the General Post message board so that it wouldn't be missed.

Thanks,
Donna
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Batch
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Bremerton, WA
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Re: Need advice
Reply #1 - Nov 18th, 2008 at 4:34pm  
Donna,

Oxygen therapy with a non-rebreather mask...  and lots of it at flow rates high enough to support hyperventilation.  It is very safe, inexpensive, and there are no side effects.  You can't say that about any of the other commonly prescribed preventative or abortive medications...

PM, e-mail, or Skype me if you have any questions.  I'll be glad to help.

V/R, Batch
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« Last Edit: Nov 18th, 2008 at 4:36pm by Batch »  
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ashrod88
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Re: Need advice
Reply #2 - Jun 23rd, 2012 at 8:52pm  
What helped for me when I was in high school was Verapamil which I took every night before bed and Imitrex nasal spray that I took every morning. I won't say that I am completely cluster free but instead of having 8 clusters a day, I may only have 2.
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