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I am back after two years (Read 842 times)
TAHwife
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I am married to a cluster
head and am helpless!


Posts: 10
Erie, PA
Gender: female
I am back after two years
Nov 15th, 2008 at 1:53pm
 
I am T's wife.  He was cluster free for a little over two years and crap , they are back.  He started about 6 wks ago.  Same old thing, only he is older, 65 and retired so at least he doesn't have to deal with working and cluster headaches.
I have been reading the forums and find that more and more people are on oxygen, which was an option a few years ago and also imitrex injections, which is new to me.
It really doesn't look like a lot of people are really getting a lot of relieve for any period of time.  Since I am partially retired, I am also living with his pain, not that I didn't before. 
T has reverse blood flow in his left arm, has anyone else heard of this or has it?  Doc's discovered this about 5 yrs ago.  Put on bp meds.  He alos is border diabetic and has high cholestrol.  T wouldn't miss taking the above drugs, as he calls them "preventative meds" but is bucking me about finding a doc that will give him oxygen or injections.  He is very bullheaded!!!
We lived in Northwestern Pa..anyone from around here that I could "vent" with?
How can we put a man on the moon, send people into space for months at a time and yet can't get cure for CH suffers, or cancer or any other disease that doc's don't "really know the cause of the cure?"
Sorry for the rambling and ranting.  Just have had it.  I truly hope there are people out there that are pain free today.  KarenNov 15th, 2008 at 1:51pm
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Karen
eastofparadise758  
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Guiseppi
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San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: I am back after two years
Reply #1 - Nov 15th, 2008 at 2:30pm
 
Ramble away you're a supporter, God knows you've earned the right to vent!!! I'm one of the really strong proponents of oxygen. 30 years of dancing with the beast and it's still my first round abort and the most effective. Under the meds section, Chuck has posted "Oxygen Terms Explained". Give it a look, it has pretty pictures and answers every question I could think to ask!!! Welcome back, damned sorry you had to come back though. And thank you for being a supporter, you guys rock! Smiley

Guiseppi
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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coach_bill
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"Dont expect me to lay
down for this"


Posts: 680
x0|euclid|USA||0|0|OH,Ohio
Gender: male
Re: I am back after two years
Reply #2 - Nov 22nd, 2008 at 9:29am
 
Sorry to hear of your return, but im glad to know you found the right place. I hope this is a short cycle or maybe even just a couple of solo hits. Were here if you need us, Be Well..  Coach Bill
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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tuck
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Damn this cross is heavy
!


Posts: 232
Gillespie , Illinois
Gender: male
Re: I am back after two years
Reply #3 - Nov 22nd, 2008 at 9:35am
 
weilcome!!!  I too am a big fan of O2.  I had tryed it years ago to no avail, only to find out on THIS SITE that i was using it wrong. It has been heavan sent. Good luck to you and yours!!!!!!  Tuck
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cancer shmancer,, i get cluster headaches!
 
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