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CH.com then and now... (Read 3410 times)
swimchica623
CH.com Old Timer
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Get hit.  Hit back harder.
 That's life.


Posts: 284
Ocean Pines, MD, USA
Gender: female
Re: CH.com then and now...
Reply #25 - Dec 5th, 2008 at 9:52pm
 
What a great post!  This is a wonderful place and thank you everyone for all the work you have put into it (especially in those 8 years getting it ready for me to come in  Wink )  My "then" and "now" are different, as everyone's are.  I remember when I first got on this site.  I had been having migraines for years, but the summer before my senior year of college they started changing to what I now know is CH and I went to the neurologist, he diagnosed the new symptoms as cluster headaches.  I was confused because I didn't know what this was, and came onto this site.  I posted about the new diagnoses, about the migraines then too, and would I still be welcome??  I got two pages of warm responses, answering all my questions, and I didn't feel scared anymore!  The months before that, from April when things got really painful and weird until November when I joined things were just scary for me because they were unknown.  It felt good to have people who understood, especially as the symptoms continued changing into pure CH by the end of the year.  I had someone to go to at the end of a hit at 2AM, someone to explain to me how to cope so I could still graduate college, and someone that could make my parents understand everything too.  Now you have welcomed them into the CH family too. 
So THANKS and like Guiseppi it is okay to go back and think, but I am so much happier where I am now.   Smiley
Lisa
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cash5542
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I love YaBB 1G - SP1!


Posts: 1243
x1|Ocean Pines|USA|usa|498|141|MD,Maryland
Gender: female
Re: CH.com then and now...
Reply #26 - Dec 6th, 2008 at 8:46am
 
[quote author=50334F331D0 link=1228358237/22#22 date=1228448969]And that is what is all about. Saving people going down the same road we did. I cried when I found ths site. I don't think I am the only one.  


Mike

I cried too but for different reasons. When Lisa told me she had CH I was in total denial. I was downright mad at you guys, filling her head with thoughts of CH. The more I read the more the pieces fit and eventually I accepted that my baby had CH and we were in for a rough ride. Thank you for being there for her when she needed you so much and thank you for helping me accept and understand this.

Charlotte
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