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Dark.Liberty CH.com Newbie Offline I Love CH.com! Posts: 5	Hiya Dec 7^th, 2008 at 11:38pm Hey everybody! Pleased to meetcha all... I myself do not suffer from cluster headaches. I joined this site with my lover, who is a chronic sufferer. I hope to learn as much as possible about this disorder, and from those who know it better than anyone else can. I hope i can be supportive to everyone as well as my dear. :]
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Hiya Reply #1 - Dec 7^th, 2008 at 11:43pm Hi, DL. I'm sure you must have plenty of questions, and I hope you will feel free to ask them. We'll answer as best we can. As a supporter, you are welcome here--as far as we are concerned, supporters are the gold standard in human beings. Again--welcome to CH.com. Best wishes, George
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Dark.Liberty CH.com Newbie Offline I Love CH.com! Posts: 5	Re: Hiya Reply #2 - Dec 7^th, 2008 at 11:52pm thanks for the warm welcome, mr. george! see you all on the board. :]
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thebbz Ex Member	Re: Hiya Reply #3 - Dec 8^th, 2008 at 4:33pm We like supporters. I am married to one. Welcome and glad your here. all the best the bb
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on my knees Ex Member	Re: Hiya Reply #4 - Dec 8^th, 2008 at 4:53pm always lovin the the supporters, i agree with George they are the gold standard.
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Hiya Reply #5 - Dec 8^th, 2008 at 4:54pm Hello and welcome to the site. I'm a supporter too. My husband, Blake, has been a sufferer for many years. If you have questions or concerns, please ask away. The people here are a wealth of information and always willing to help. Be well, Jackie
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flipperlips

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Live, Laugh, Love

Posts: 935
Mcallen, TX
Gender: female

Re: Hiya
Reply #6 - Dec 8^th, 2008 at 11:24pm

Hi and a big welcome to Clusterville. We are pleased to meet you as well. I'm also a supporter. My hubby was eposodic for 12 years and has been chronic now for the past 3 1/2 years.

Pull up a chair and get ready to read, read and read some more. Like Jackie said if you have questions feel free to ask. There is always someone here ready and willing to help.

Please remember to take care of yourself, too.

Jen

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Only one life.....only one chance to make the moment count for something - Racer1_NC

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RichardN

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Posts: 963
x1|Crossville|USA,Tn
Gender: male

Re: Hiya
Reply #7 - Dec 9^th, 2008 at 12:21am

Hi and Welcome

Can you tell us what meds your partner is on? What's been tried, worked, failed?

Is 02 available at the correct flow-rate and proper mask?

Please have him/her take the cluster quiz (link on left) and give us the results. You'll want to familiarize yourself with "the kip scale" (link on left) also, as we all use it to describe our pain levels.

Read, read read, . . . give us any info you can, and feel free to ask any questions you might have.

Be Safe, PFDANs

Richard

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I can live with the beast as long as I don't have to "dance" with the bastard.

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Guiseppi

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San Diego to Florida 05-16-2011

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SAN DIEGO, CALIFORNIA USA
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Re: Hiya
Reply #8 - Dec 9^th, 2008 at 12:02pm

Welcome and God Bless you for being a supporter. My wife's tolerated thse with me for almsot 29 years. She found this board for me and has saved my sanity more then once!

Do let us know what med etc have worked, haven't worked etc., give us a chance to throw some suggestions your way. And check out the supporters board too. Good place to bitch about what pains in the butt we can be with others who understand. Thanks again for being a supporter...you guys rock! Smiley

Guiseppi

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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Mosaicwench

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www.mosaicwench.com

Posts: 3507
Near Milwaukee WI, USA
Gender: female

Re: Hiya
Reply #9 - Dec 9^th, 2008 at 12:48pm

Hello fellow supporter!

I'm a supporter of 17+ years and I hang around with these folks even though my DH is off the Board for awhile.

This is a great bunch of people and don't be afraid if a get-together springs up in your vicinity. Meeting other clusterheads did my hubby a world of good, not to mention what it did for me. The get-togethers gave me a family I never knew I had!

Welcome!

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Hiya Reply #10 - Dec 9^th, 2008 at 2:48pm Another big welcome from me too. Please DO tell us your partners history of meds, what's worked, how long has he had them, chronic or episodic, things like that. If we know more about him we can steer you in the right direction for getting him help and letting you know what to do for him. Linda
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seasonalboomer

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CH messes with my isness

Posts: 2517
Charlotte, NC
Gender: male

Re: Hiya
Reply #11 - Dec 9^th, 2008 at 5:01pm

Kudo's to you and your interest in learning all you can for your partner. Having an understanding partner is a big bonus to many of us who live with CH. Everyone is different in the way they "deal" with it and how we act when we're dealing with it.

I'm a withdrawer and prefer to be left alone. But honestly knowing that someone is on the other side of the house that understands why I need some quiet time is of comfort to me. And when I come out she gives me a hug and, well, that's what a supporter can be.

You being here is fantastic. Read up.

Scott

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Scott

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Dark.Liberty

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I Love CH.com!

Posts: 5

Re: Hiya
Reply #12 - Dec 10^th, 2008 at 12:49am

sorry about the late response to all you helpful folks.

for a detailed account of the person of whom i am supporting, please refer to the first post LadyRadiator had. we joined this community together.

as an added annotation to her account, she has access to oxygen, though i have yet to see the apparatus myself, as this is a very recent development.

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