Prednisolon DAK 25 mg  (bi kidney bark hormone) Not actually sure its translated correct  !

I tried this 2 x 25 mg in 5 days to stop a cluster period.  First time I was in a 3 months period  and the attack stopped on day 3.

Totally free for 4 month and then it came back.  on second day, I start a new 5 days treatment and it worked after 1 day, but came back after i finished the

5 days treatment.  I decide to try with another 2 x 25mg x 5 day as I was in middle of nowhere and did not bring enough Sumatriptan injections.

I stopped and its now almost 4 months ago.

It is like a miracle for me and hope it can help others as well.   I can live with my cluster and always have Sumatriptan injections with me, but when its really hard
days with  up to 6 x 5ml Sumatriptan injections (seldom)  it is really a miracle to stop the attack totally in few days.

I am new in this forum and suffered of this sh.. 30 years now, I will tell my story later on, just for now wants to share my experience with this treatment
Hope it can help other in same efficiency way as me.

(bi kidney bark hormone will usually have some side effect for long time use according my doctor, but 2x25mgx5 days is absolutely not a problem from time to time.

Good luck and remember to discuss it with your doctor first !  Feel free to drop me a line if any question.

Klaus wrote on Dec 8^th, 2008 at 1:55am:



Hello Klaus

I am very glad that you have found what works for you and helps you stop your attacks and thank you for taking the time to try and help others with your experience

but I am afraid I do need to add a few words of warning to your advice if others are reading it and thinking of trying what you have done as the drugs you are recommending people take are not being dosed in a way that is normal or even entirely safe I'm afraid

Prednisolone

I don't know what bi-kidney bark hormone is but Prednisolone is quite frequently used to break CH cycles. However, it is a powerful corticosteroid and should be dosed differently to the way you took it and also MUST be tapered off over time, i.e. the dose reduced gradually over a period of time NOT suddenly stopped after 5 days. The max dose recommended is usually 60mg per day (less for smaller people) reduced by 10 mg every 3 days until stopped. It shouldn't be taken long term either although I know thankfully you didn't.

Sumatriptan
6 doses a day is bad idea. It is recommended that you have no more than 2 in 24 hours and we have had some really serious incidents reported on this board when people have taken more than this and been very ill. Please don't risk it again. Most of us have done it at some time when desperate but it really can be dangerous to your heart and circulation.

This is why so many of us use 02 as our main abortive and I urge you to try it rather than using so many triptans. You can use 02 as many times as you like in 24 hours.

I hope this helps.

Do post again and tell us a bit about yourself?

Wendy the Brit

Hi Wendy the Brit and others with fast reply here.

I know Prednisolon never will end up on the list of health products. I know some people on daily dose of 50-60 mg for month and up to 6 months
(Not for Cluster headache) Even some as high as 80mg/day

The dose of 2x25 mg in 5 days was recommended from a professor working with Cluster patients daily.
As you mention 6 injection with imigran within 24 hrs sounds as a deadly cocktail for me as well, so it was for sure worth to try out with Prednisolon.

I have to mention I did not feel any side effect, or lets say only very small side effect.

I know about oxygen and have use it for many years. I am from Denmark but live in China for now, and the oxygen things could be a bit complicated to get here.

I am usually carefully with injections and pills, try to search all information as i guess we all are scared about long term side effects.

Back to Sumatriptan, I also know the recommended dose of 2 x 6ml /24 hrs, and its really hard to find any information about overdose and I often discuss it
with my doctor and he cant find any good explanation either as long I an fine and not feel different side effect than usual. Sumatriptan will be completely out of your body
quite fast. According the professor in cluster, its more about the risk of getting a kind of addictions, so the Sumatriptan it self will trigger the next attack.

Well, we can ask different people and we will get different answers, and will sit back with all our doubt we dont wanna play russian roulette, right

I will for sure take Prednisolon another 5 days if or when the hell comes back (i know its not if, but its legal to hope
After years with only short periods without CH, it feels like a miracle and I am happy a short 5 days treatment works for me, and hope so badly its only every 3-6 month i have to
repeat.

Thanks Wendy, sure my  tongue is Danish and my English becomes "Chinglish" here

Hummmm, 1mg per kilo of bodyweight, thats nice, then I can go as high as 90 mg hehe

bi-kidney bark hormone, was my best attemt to translate from Danish.
     
Does "suprarenal gland hormone" give more meaning ?

It's an overall naming of these kinds of medz's (I think)

There may some confusion between Methyl Prednisolone and Prednisone? Very different dosages.

wildhaus wrote on Dec 8^th, 2008 at 12:27pm:


This Q has come up before and last time I checked (and will go and do so again!) Prednisone and Prednisolone were the same drug that had slightly differing names depending which country it was dispensed in.

methyprednisolone isn't one I know so will go and look up that one as well!

W

Quote:


That's because Prednisone lowers your bone desnity if used for extended periods. I had to go on calcium suppliments after I tapered off Prednisone.
TomM

A bit confused by the translation to be honest Klaus but from your highlighted parts I would hesitantly suggest that the doses look insanely high and unnecessary. The person may have had no side effects AT THE TIME but the damage high dose or long term steroids do isn't always immediately obvious as previous posts make clear.

I would prefer to stick in my comfort zone of max 60mgs per day. I have never seen anything higher than this recommended to Ch'ers so have to stick to what I know


Wendy

i was concerned about overdosing on the imitrex so I ended up doing the trick that is suggested, by taking the vile out of the injector cartridge and then pushing  the needle in my arm and using a q tip to push about half or sometimes just a third of the drug in.. then I could do a few of these through the day... I would imagine its differnt with everyone, as far as how much of the drug is really required to kill the pain enough to get things done,, but reducing the amount of imitrex injection works good for me, so at least I dont over do the drug... 

Oxygen didnt do much for me when I tried it, but I am going to try it again with a different mask... not giving up on the oxygen.  The CPAP machine is just working great so far...