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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Just checking in

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Just checking in (Read 791 times)

3-foot

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Posts: 25
Davisburg, Michigan
Gender: male

Just checking in
Dec 10^th, 2008 at 12:33pm

I'm just checking in to say hi. I've been in remission since April 2007. It's been so long I've almost forgotten the pain. Hard to believe I know. I still lurk on the message board now and then, and I took the survey a couple weeks ago. It's so easy to forget about this world of pain when it isn't haunting you. I hope you'll all forgive me for my neglect.

It's not all that unusual for me to be in remission for long periods so I am sure eventually it will come back but for now life is good. Spring is my usual time for an episode to start so I have 4 months or so before I even have to worry. In the mean time I have plenty of other things to be concerned about. It's not a good time to be in the automotive business let me tell you.

How long are Imitrex injections good for in storage, anyway? My verapmil is past it's shelf life I imagine, and my oxygen tank is depleted, it's been so long I am thinking about taking it out to the garage for storage, that tank isn't doing much for the romantic atmosphere of my bedroom.

That's all for now, pain free wishes to you all.

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Guiseppi

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Just checking in
Reply #1 - Dec 10^th, 2008 at 12:43pm

Always great to hear someone is in remission. I'd definitely get the oxygen tank filled! On or off cycle I've got half a dozen green E-Tanks cluttering up my garage. Scred to death of getting caught empty!

Trex I don't know about shelf life on.

And who knows...this could be the final remission and they NEVER come back!!

Guiseppi (The eternal optimist!)

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Redd

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Posts: 8457
Stevens Point USA Wisconsin
Gender: female

Re: Just checking in
Reply #2 - Dec 10^th, 2008 at 1:02pm

First...imitrex shelf life. Many peeps have used exired trex with good results. (don't forget the trex saving tip to the left of the board here).

If you still have an active script, and the trex works well for you, start stocking up now. I'd suggest storage in a light blocking container, Heavy paper bag would be good, in the far back of your fridge. This way..even when expired it will extend the shelf life.

Also I'd suggest that you find out if your O2 script is still ineffect, and always have at least 1-2 E tanks at the ready even out of cycle. The beast has a way of morphing. Just when you think you got it figured out...he mixes it up on you.

If you are expecting the beasts return this spring...get on the horn NOW to get in to your Neuro and get a game plan put together early. Sometimes it takes far too long to get an appointment and you want to be ready in advance.

Keep us posted as to how you are getting along, and ask any questions you may have.

"The goal of life living in agreement with Nature." ~Zeno

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3-foot

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Posts: 25
Davisburg, Michigan
Gender: male

Re: Just checking in
Reply #3 - Dec 11^th, 2008 at 12:12pm

Guiseppi wrote on Dec 10^th, 2008 at 12:43pm:

And who knows...this could be the final remission and they NEVER come back!!

Guiseppi (The eternal optimist!)

How I wish that was true, but I doubt it. My last remission lasted 6 years. It was so long in-between that when I got my first hit in 2007 I didn't even realize that is was cluster, until the second one hit me the next day. Typically they start out on the mild side and steadily grow in intensity so the first one or two are pretty minor.

Maybe I have 5 more years, that wouldn't be so bad, would it?

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Just checking in Reply #4 - Dec 11^th, 2008 at 1:20pm Oh I wouldn't mind a 5 year remission!! Joe
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