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DeathsHead

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"i do not know what i
do not know" wittgenstein

Posts: 6
Living in a nightmare
Gender: male

Note to members of CH.com new and especialy older
Dec 17^th, 2008 at 5:25pm

My name is Gary (Deathshead) my wife and partner is Garys_Girl. i have been lurking and reading for years on this sight and garys_girl has posted many questions for me and on my behalf and for her own support. though there have been some ups and downs in regards to how some members have responded to some of her/my/our decisions and how they decided to express it, I must say in all caps THIS HAS BEEN ONE OF THE FEW PLACES/PEOPLE THAT HAVE HELPED TO KEEP ME ALIVE!!!! the information, advice, thoughts, well reasoned arguments, the thought provoking discourse and research have helped to keep me going. i especialy appreciate that so many people who have experimented with new things have shared their successes or failures. it has almost become second nature to log on when anything new developes and many times i have found comfort in just reading through posts by other members.

Sadly I AM NOT ALONE and this made it that much easier for me to cope. going forward i hope to meet many of you and so sorry for rambling i just needed to thank you all for being here most of all i am thankful for garys_girl finding this oasis

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They should change the death penalty from lethal injection to "life" with med-resistant chronic cluster headaches (with no 02 or other abortives).

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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Note to members of CH.com new and especialy older Reply #1 - Dec 17^th, 2008 at 5:29pm Bout time you quit lurking Gary and jumped in. Yes it tis a sad malady that we have, but we learn to cope and rise above it. Welcome home bro.
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Note to members of CH.com new and especialy older Reply #2 - Dec 17^th, 2008 at 5:30pm Helllo Gary, nice to meet you. mel
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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: Note to members of CH.com new and especialy older Reply #3 - Dec 17^th, 2008 at 5:36pm Yep, Nice to have ya check in. PFD's JPC
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DeathsHead

CH.com Newbie

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"i do not know what i
do not know" wittgenstein

Posts: 6
Living in a nightmare
Gender: male

Re: Note to members of CH.com new and especialy older
Reply #4 - Dec 17^th, 2008 at 6:09pm

thank you for the welcome.

i forgot to mention i'm chronic since march 2006, i haven't been pain free at all since probably march 2007. i've seen like 8 neurologists tried 34 drugs, had a couple of hospitalizations. Treatment has also included several large blunt instruments and pulled my own tooth hoping the pain would leak out the hole. 02 was a blessing and now a curse as i cant "will" it to work but Garys_Girl always immediatly shares new 02 info. she says to say THANK YOU to batch and she'll tell me about that later.

again thank you

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They should change the death penalty from lethal injection to "life" with med-resistant chronic cluster headaches (with no 02 or other abortives).

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RichardN

CH.com Hall of Famer

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Posts: 963
x1|Crossville|USA,Tn
Gender: male

Re: Note to members of CH.com new and especialy older
Reply #5 - Dec 17^th, 2008 at 6:50pm

Hi Gary . . . glad you checked in

It was my wife that found this site for me (2/02) . . . . and saved my life. Was a basket-case when I got here . . . always afraid of the next one (how soon, how long, how bad will it be?) . . for over a year afraid to take my grandson to the woods (or anywhere else) for fear of having him be the only witness to my death (CH pain being such that you KNOW it's got to be something . . . tumor or impending stroke, etc. . . that will prove fatal).

This place gave me a name-for-the-pain, the info to take to my doc so I could get meds that actually worked (Verapamil & 02). I finally had some control over this beast of ours. And like many others I shed many tears reading the stories and descriptions from people who DID know what these damn things feel like . . . and guided me down the road to many PF days.

This place IS a family of folks who REALLY know your pain. . . and that alone is something most of us didn't have when we came here.

Welcome Home,

Be Safe, PFDANs

Richard

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I can live with the beast as long as I don't have to "dance" with the bastard.

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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Note to members of CH.com new and especialy older Reply #6 - Dec 17^th, 2008 at 7:22pm Hi Gary....nice to see ya. Welcome! Jackie
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flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: Note to members of CH.com new and especialy older Reply #7 - Dec 17^th, 2008 at 7:46pm Welcome Gary Sorry you're having such a hard time. I hope that things start looking up for you real soon. Jen
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Note to members of CH.com new and especialy older Reply #8 - Dec 17^th, 2008 at 7:47pm Welcome Gary and nice to meet you. This place is a life-saver to so many...glad Laurie found it on your behalf. Now stop pulling those perfectly healthy teeth and listen to what she has gleaned from here. O.K.? Linda
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Note to members of CH.com new and especialy older Reply #9 - Dec 17^th, 2008 at 8:02pm Hi Gary and welcome aboard. You are lucky to have such a great supporter, makes all the difference in the world to a CH sufferer. Barry
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CH-HELL Ex Member	Re: Note to members of CH.com new and especialy older Reply #10 - Dec 17^th, 2008 at 8:24pm Welcome Gary, My wife also found this site before me and I hesitantly became a member and I'm glad I did its nice just to be able talk to people who understand. If you ever need to vent feel free to pm me or call I think you have my #. Hang in there and welcome to the nut house. Phil
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thebbz Ex Member	Re: Note to members of CH.com new and especialy older Reply #11 - Dec 17^th, 2008 at 8:30pm It's about time, headbanger. Feel free to PM or call. You are not alone in this, you have a number one supporter, and us as well. This condition will not get me or you. We shall prevail. all the best and I look forward to talking with you more. the bb
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Note to members of CH.com new and especialy older Reply #12 - Dec 17^th, 2008 at 9:03pm How funny, my wife found this site for me too! (God we men can be stubborn asses!) Glad you've jumped in, your wife's a class act, hang on to that one! Joe
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seasonalboomer CH.com Hall of Famer Offline CH messes with my isness Posts: 2517 Charlotte, NC Gender:	Re: Note to members of CH.com new and especialy older Reply #13 - Dec 17^th, 2008 at 10:05pm Gary, Nice to have you here. Only advice (and this is strictly regarding your moniker) (and strictly in good humor)..."leave the gun, grab the canoli" Scott
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Garys_Girl

CH.com Hall of Famer

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Making biscuits

Posts: 821
Planet Cat, NJ
Gender: female

Re: Note to members of CH.com new and especialy older
Reply #14 - Dec 17^th, 2008 at 10:39pm

Hi Gary.

I, too, have thanked so many people and DJ and Steph (who own the site) profusely.

I'm so glad you decided to check in. It couldn't be home here without you. ...And you've got a lot of people here rooting for you.

One thing you will NOT hear here? "I've had one of those."

I know you're not into that - "joining" - thing. But a lot of the people who hang out here aren't either. I do think you'll appreciate that this site is not a nazi police state.

If you're doing this to make me happy? You're a total love and I already couldn't love you more. I'm not gonna be surprised if you find a lot of things you like about actually interacting here. Even if it's just to visit JPC's "crap" thread and write CRAP.

But I'm warning you right now - we CANNOT take in clusterheads like we've taken in cats. I don't care if you come to think of all these people as brothers and sisters - they are NOT moving in with us!

((((((((((((((((((((hugs))))))))))))))))))

Your devoted wife,

Laurie

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This is enough already

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flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: Note to members of CH.com new and especialy older Reply #15 - Dec 17^th, 2008 at 10:45pm Dang it Laurie, I was just gonna ask you if Phil and I could move in
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ANNSIE Ex Member	Re: Note to members of CH.com new and especialy older Reply #16 - Dec 17^th, 2008 at 10:47pm Gary, you have no idea how proud I am of you to see you finally posting and reaching out to the wonderful people here. HUGS
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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: Note to members of CH.com new and especialy older Reply #17 - Dec 17^th, 2008 at 10:49pm Jen, quite frankly we'd rather be up in Michigan. Well - maybe come May, actually. Laurie
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flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: Note to members of CH.com new and especialy older Reply #18 - Dec 17^th, 2008 at 10:55pm Oh really!!!! Where are you going to be?
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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: Note to members of CH.com new and especialy older Reply #19 - Dec 17^th, 2008 at 11:33pm Well, we'd LIKE to be fishing! Laurie
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flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: Note to members of CH.com new and especialy older Reply #20 - Dec 18^th, 2008 at 6:50pm Well, there's plenty of places to do that here Sorry Gary, I totally highjacked your thread
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Note to members of CH.com new and especialy older Reply #21 - Dec 18^th, 2008 at 7:55pm Hey Gary - welcome to the ~~loony bin~~family! You've got one fantastic supporter. Stick around - we kind of grow on folks. Carol
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MrsT

CH.com Veteran

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I Love CH.com!

Posts: 100
San Diego, CA
Gender: female

Re: Note to members of CH.com new and especialy older
Reply #22 - Dec 18^th, 2008 at 7:59pm

Garys_Girl wrote on Dec 17^th, 2008 at 10:39pm:

I don't care if you come to think of all these people as brothers and sisters - they are NOT moving in with us!

Are you sure, Laurie?? I'm an easy episodic. I can cook, bake, grow veggie gardens, and make the healthiest cat food from scratch! Oh, my husband is well ~~box~~ trained too!

Hi, Gary!! You got a good one! Smiley

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Charlotte CH.com Alumnus Offline Posts: 2385 Patterson,California Gender:	Re: Note to members of CH.com new and especialy older Reply #23 - Dec 18^th, 2008 at 8:21pm Very nice to meet you, Gary. Your wife has been very kind to me and I really appreciate her. Charlotte
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Note to members of CH.com new and especialy older Reply #24 - Dec 18^th, 2008 at 8:36pm Hi Gary! It is so nice to "meet" you. Laurie and I are old friends. LOL! I hope to meet you both in person someday! Jeannie
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