Sorry you had to move.  Have you looked up sufferer recommended doctors here?  Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

I assume you already use 02 at at least 15 lpm?  With a non-rebreather mask?  The "Oxygen Info" link on left takes you to a site where you can purchase the best mask for CH purposes (02ptimask).

Have you tried Melatonin?  Available OTC.  You can read up on it here - helps quite a few with the night time hits.

There are a lot of other meds - both prevents and aborts - to try.  This is definitely the right place to learn.  Neuros tend to be tragically undereducated about current CH treatment and sufferers (and their supporters) often have to be their own advocates.

Laurie

ClusterChuck wrote on Dec 21^st, 2008 at 10:45pm:


Fixed er for ya...

Rolo...

You're on the right track if you are flipping through doctors, a lot of them are clueless, and don't have the time a/o inclination to study up. For individual headache relief, my experience is that if a drug is not going to help, you'll know it asap, time to try another one.

Have you tried the Triptans, like Zomig or Relpax. After 30 years of drug resistant, these guys have helped me in last two episodes.

It depends, but cold or hot showers have helped a few on the list, also odd things, Red Bull, Kudzu and a few more, and you don't have to wait for a prescription to at least try them.

A few web sites have current CH papers and experiments on them, from places like Journal of Neurology, or Head and Face pain. I like Wiley.com, but there are others. The paper abstracts are free, but you can go to the library for the Journals, or download them for a charge. If you print off ones that look good to you, and bring them to your MD or neurologist, your chance of getting a new script or procedure will rise markedly.

As someone said, you are your own best advocate, with some doctors, you are your only advocate. Warm up to the idea, sad but true.