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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hey all old hand new cycle, curious

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Hey all old hand new cycle, curious (Read 1319 times)

guitardude

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Hey all old hand new cycle, curious
Jan 29^th, 2009 at 10:30am

A few months ago someone told me about a new nasal spray that was showing some success. It was ( or so im told) specifically designed for CH sufferers. Anybody heard of this new "miracle, ha ha " or is it just another expensive dead end? 22 yrs with the devil and Ive tried it all...... any feedeback would be appreciated, thanks and good luck to all. I hope you all go out of cycle soon,,,, GD

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Hey all old hand new cycle, curious Reply #1 - Jan 29^th, 2009 at 10:34am To my knowledge, there are not any medications made specifically for cluster headache sufferers. There are nasal spray meds for migraine users that cluster headache sufferers use though. i.e. Imitrex and Zomig
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

guitardude CH.com Newbie Offline I Love CH.com! Posts: 4	Re: Hey all old hand new cycle, curious Reply #2 - Jan 29^th, 2009 at 10:40am Yeah thats what suprised me too, but I was told this last summer zomig is worthless and imitrex isnt much better than the headache plus out of my price range. shit, guess i need to go kicking through the cowshit for some fungus............
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Melissa

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Re: Hey all old hand new cycle, curious
Reply #3 - Jan 29^th, 2009 at 10:45am

guitardude wrote on Jan 29^th, 2009 at 10:40am:

Yeah thats what suprised me too, but I was told this last summer zomig is worthless and imitrex isnt much better than the headache plus out of my price range. shit, guess i need to go kicking through the cowshit for some fungus............ Undecided

I would not rule out trying something that has not worked for one person. I have used the imitrex nasal spray in the past with success in aborting an attack in 15 minutes myself.

Do you have Oxygen? Please click on the link oxygen info to the left of your screen and read up on it if you do not.

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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guitardude

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Re: Hey all old hand new cycle, curious
Reply #4 - Jan 29^th, 2009 at 10:52am

yeah, done the oxygin, done the imitrex, prednizone, ergot, sansert, and some others that i cant even remember, like I said 22 yrs, three or 4 quacks, had one neuro who told me they would just try different meds till they found one that worked and then they would know whats wrong, im luckier than most as mine only hit every yr or2 but to be honest, Ive given up on Dr.s,,,,,,,, just takin my money, running brain scans that show nothing and given me crap that doesnt work. (sigh) maybe someday..... hey thanks for the replies anyway.

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Melissa

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Re: Hey all old hand new cycle, curious
Reply #5 - Jan 29^th, 2009 at 10:58am

Many who have tried O2 in the past and not had it work for them, try it again with a new cycle with a proper mask and a higher flow rate, have had it end up working for them (again, I'm one of them also).

I don't mean to sound redundant, but I urge you to rethink O2. It is possible to aquire it without the assistance of a doctor, as many here use welders O2.

Good luck,
mel

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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guitardude CH.com Newbie Offline I Love CH.com! Posts: 4	Re: Hey all old hand new cycle, curious Reply #6 - Jan 29^th, 2009 at 11:43am OK M I will check it out, thanks.............
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GatorScott CH.com Newbie Offline Go Gators! Posts: 19 Orlando, FL Gender:	Re: Hey all old hand new cycle, curious Reply #7 - Jan 29^th, 2009 at 12:44pm GD- I read some interesting stuff yesterday on the BB about an herbal approach. Might be something to look into. Here's the link to Killowatt3's thread: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Best of luck. Scott
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