Click this link to read a post I like on the clusterheadaches.com message board...

Jun 6^th, 2025 at 1:51pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › A Belated Hello

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

A Belated Hello (Read 633 times)

PbZep

CH.com Newbie

Offline

I Love CH.com!

Posts: 8

A Belated Hello
Feb 11^th, 2009 at 1:37am

Well, I am a 23 year old college student living in Colorado. I'm a twenty-three year old student because of the headaches that started at age 18, and twice a day clawing at my eyes and trying to bang my head on the wall or the floor hard enough to just pass out (never worked) wasn't the best way towards college success.

To be honest, I feel like one of the luckiest individuals on the face of the earth, because for the past 12 months or so, I've been in complete remission; haven't even "seen" a whisper of a shadow. Everything is wonderful, and I laugh at mere pains like the broken ribs I got playing hockey a few months ago.

Anyways, I feel like one of the luckiest individuals on the planet and yet... if you'll pardon the language, I'm scared shitless that it will come back, and I still sometimes wake up at night after a nightmare, completely expecting to feel the telltale signs of a "5 minutes to detonation" time bomb ticking in my head.

As it is, if the worst does occur, I am comforted in the fact that I've found a message board of individuals who have experienced what I have... something that I never found over the four years of post-high-school umm... "college hazing pains" as I sarcastically called it myself.

Finally, I want to add that the best part of all of this camaraderie is the fact that I don't have to talk about attacks with woefully ignorant people who cannot be made to understand or believe. "Is it like a migrane?" Ugh, even writing the naivete makes me wince. Or worse, the ER nurses and docs who are supposed to be there for you, "what is your pain on a scale from 1 to 10?" Screaming out a hundred even when its true never made them think you less of a drug seeker did it?

Ok, a belated hello to this board; may ye all have sleep filled nights.

IP Logged

Click Here to visit the CH.com Facebook page!

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: A Belated Hello Reply #1 - Feb 11^th, 2009 at 8:13am Welcome to the family Tell us about your experiences with meds and treatments you have tried and there will be many good folks here that will give you advice and guidence. Sorry you had to join us but you have found a safe haven To PFD. Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: A Belated Hello Reply #2 - Feb 11^th, 2009 at 8:36am Welcome, Led Zeppelin. Nice to meet you, and thanks for the introduction. Looking forward to your posts in the future. Best wishes, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

Jeannie

CH.com Sponsor

Offline

Live, Laugh, Love....

Posts: 2333
St Louis, Missouri
Gender: female

Re: A Belated Hello
Reply #3 - Feb 11^th, 2009 at 9:45am

Hi Zep!

Welcome home! I was in the same boat that your are in. The fear of the beast returning was consuming my life when I cam here a year ago. The wonderful people here taught me to " live life between the hits". It is the single most valuable lesson I could have learned.

Stick around and learn all you can. Soon you'll feel more prepared to fight when the battle is on.

Glad you found us!

Jeannie

« Last Edit: Feb 11^th, 2009 at 10:40am by Jeannie »

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney

IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: A Belated Hello
Reply #4 - Feb 11^th, 2009 at 10:15am

Welcome to the board! My youngest graduated from Regis University in Denver last year, she's fallen in love with Colorado! That's after being born and raised in sunny San Diego.

What have you been given in the past? Have you tried oxygen yet? For men it's enjoying an over 80% success rate. I can abort an attack, be completely pain free, in 6-8 minutes just using 02. Certainly worth a try.

You'll never be alone again, welocme to your new second home! Wink

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

PbZep

CH.com Newbie

Offline

I Love CH.com!

Posts: 8

Re: A Belated Hello
Reply #5 - Feb 11^th, 2009 at 1:10pm

Someone even already recognized my name... heh.

Well Guiseppi, and to everyone else who found something that helps, it really makes me happy that you've found your elixir. Iddy, I tried everything... verapamil didn't work. Predisolone, flexeril and soma... nothing really helped. I hadn't heard about oxygen until a few months ago and I want to give it a try if I ever (knock on wood) need it. The best I could do was have an energy drink standing by and pray, 9 mgs melatonin for after the night attack. I saved my imitrex shots for particularly nasty episodes, they helped sometimes.

Painkillers didn't do much... morphine, demerol, dilaudid and the like seemed to make bad attacks worse, except I got to be fuzzy while I rocked. A shot of them helped during an easier ride, but we can't be having that daily can we? Or at least... I was afraid of being an addict. Against my better judgement, I even tried *sigh* (hard to admit doing illegal drugs publically) cocaine once, to numb and vasoconstrict. It aborted the attack completely, but I was too big a wuss to try again.

The attacks... twice a day... longer episodes, 60-90 minutes on average. The one early morning was easier, a K4 maybe to wish me a great day, the one around midnight made me question my reasons for living before, during and afterwards.. the K7s, 8s and 9s. I swear I had a 10 three or four times a month. For God sakes, I don't even want to sit here remembering! Ok, talk about that more later

I enjoy playing ice hockey, reading, music and dating. In fact, one piece of advice ill be searching for during my extended stay here will be how to bring another human being into your own personal circle of hell... what kind of person it takes to live with a sufferer.

Aaaaand, that's me.

Oh, one question I have... how long in remission before I can get comfortable and relax a little? I still just KNOW its coming back, even if it may not.

« Last Edit: Feb 11^th, 2009 at 1:25pm by PbZep »

IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: A Belated Hello Reply #6 - Feb 11^th, 2009 at 1:23pm If I've been pain free for 2 weeks I go for the beer test. If I drink a beer, and I'm still in cycle, I get hit within 10-20 minutes. If I get no hits, I know I'm really off cycle. Make sure you read the link on the left, "Oxygen Info." If it's used incorrectly it's useless, used correctly it can be magic~! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Chad

CH.com Hall of Famer

Offline

Posts: 738
Emmaus, PA
Gender: male

Re: A Belated Hello
Reply #7 - Feb 11^th, 2009 at 1:35pm

Welcome my friend!

If you've been in remission for over a year, enjoy every moment of it.
When i'm in cycle I just keep on thinking positive that remission is near. I'm hoping that my treatment of rc seeds keeps the beast away longer than usual. Please read everything on this site and maybe you'll find things that work for you. I'm more of a naturalists where others use pharmaceutical drugs. Which ever works best for you is the key. If you can get O2, do it. I have never tried it merely because insurance doesn't cover it and my cycles are short (7 weeks tops). I find that exercise helps a bunch with a lot of water. If you're willing to try hallucinogens, read the clusterbuster site. That's about all.

Good luck and don't think about the next cycle, enjoy life!

Peace,
Chad

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!