Alright just when I though I knew what a KIP 10 was the Beast came and showed me I did not have a clue... I haft to say I'm getting scared of this cycle.

I just got done with a 2.5 hour KIP10 and I'm not sure I want to say that (knock on wood) because I thought I knew what one was and I don't want to assume anything anymore.

I tried O2 for over an 1.5 hours with 2 Red-Bulls, then Ice packs, then Hot Water and finally an old Migrainal I found in my dresser. Nothing it just kept rising, I wish I could put into words what I was feeling the only thing I can say is my entire being was engulfed by this (for lack of a better word) pain, I could not switch my mind to anything but this pain. I was screaming for god to take it away for anything to make it stop ANYTHING, then after forever it shifted and started to burn through my mind but it was more like freezing me in this state and then it was over. I was face down hanging over the side of bathtub with water running over my head and down my back.

I'm in disbelief of what just happened I have this shadow that's just sitting there waiting for me to make a wrong move, to start the dance again.

As I said this cycle has been different from any in the past in intensity, length, and what stops them, I'm not sure if its good or bad.

I know I've asked this before but what has your experience been when your cycles have went crazy, did they improve or stay in the worse state for the following attacks.

I thought I knew what a KIP10 was and I'm hear to tell you I Did not have a clue until tonight.

Thank you all for being hear, if you weren't I would be going this alone

~James

I'm sorry you had such a rough one James.  I wish I could offer you some bit of wisdom but I'm stumped this year as well.  The beast has changed completely for me this year, I have clue what to expect anymore.

I've got a question for others as well.  After you get a hit, does your pain go away until you are hit again? or does it linger there all day long?  I know I have migraines w/ CH and I never know which is which some days.  I get hit sometimes up to 10xs a day mostly during the day or very early morning 3-5 am; but I am in pain most of the day..usually a low level 3-4 with spikes of up to 7-8.  I'm grateful at the moment that the level 10's have backed off for the moment anyway.

Marc who? sorry never heard of him LMAO

i was talking about the lage lizard lived around 10 million years ago give or take a century lol

small arms and a very large ............... hmmm Tail

Mark 

Hi Lefty,

Thanks for the support, but as far as the avatar you meen you have never thought if I could just remove this piece it would all go away  

Thats what I thought when I saw it.....

Good Point I'll change it I have better ones

~James

Hi James,

Sorry that you had to endure the misfortune of a Kip 10.  I've had my share of Kip 9 and Kip 10 attacks over the years.  In each case, if the abortives didn't work, I wound up suffering for anywhere from 1 to 3 hours from them, with pain so intense, it became my world, until the attacks ended.  The screaming and the crying was no fun either.  In some cases these nasty attacks occurred when my headaches started to get out of control during a cycle, prompting my neuro to change my meds.  Nowadays, because my CH usually is severe (most of my attacks are Kip 8 or kip 9 with at least one Kip 10 per cycle, leaving my neuro to believe that my CH is very aggressive), it's treated with  some pretty heavy duty stuff, to stop the cycle, from the onset.  Still occasionally things get out of hand, requiring a change of meds to settle things down.

Following a Kip 9 or  Kip 10, I usually feel off for a few hours - kind of wrung out.  And, I occasionally have lingering effects from it - runny nose and watering eye on the side of the attack (my right side), and occasionally a lingering low grade headache.  This cycle, I seem to be having more shadows than usual.  Also, on Saturday night I had what I'd call a strange "non-attack".  I had all of the hallmarks symptomwise of a Kip 8 or greater CH attack - mega runny nose in one nostril, and a mega tearing eye, but only a very minor level of pain.  I had none of that excruciating all encompassing pain I typically get with attacks like these.  The only thing I can figure, is that the Lyrica I'm taking this cycle, is blunting the pain from the attacks, but not the other symptoms.  Very odd!!

Thanks all,

I'm coming to see this thing literally has a mind of it's own, whenever I think I have a tract on it , it changes. Ellen what you described as a non attack sound strange to say the least, but I know I will take that over a full kip10 with the pain  

The last couple days I have been battling residual damage, my relationship with my wife, our business, financial, and selling our house just to name a few. I cannot believe how much damage this has caused in such a short amount of time.

Here wishing everyone pain free time

~James

James,

   Please try to hang in there.  somewhere, inside of you is the strength to get through this.  think of all of us around you the next time you feel alone, and try to focus on us all fighting this with you.  Try not to panic if that happens again, that will make it worse.  I know its hard not to, but if you keep calm, you have more of a chance for the O2 to work.
   Please dont give up.

Hugs,
Christine